Literature DB >> 19966130

How patients use access to their full health records: a qualitative study of patients in general practice.

Brian Fisher1, Vanita Bhavnani, Marlene Winfield.   

Abstract

OBJECTIVE: To explore how patients use record access, its impact and the benefits and drawbacks of using it.
DESIGN: Qualitative study using focus group interviews, individual interviews and telephone interviews.
SETTING: General practice offering electronic access to full medical records using PAERS system. PARTICIPANTS: Forty-three patients aged between 20 and 71 years participated. Of these, nine were in the healthy group, eight had long-term health conditions, 10 were in the mental health group and 16 were pregnant.
RESULTS: Three themes emerged as to how patients used record access - participation in care, quality of care and self-care strategies. Record access was used to help prepare patients for consultations, compensate for poor or complex communication during consultations and to reduce the fragmentation of care. Record access had a small impact on health behavior intentions. Overall patients felt that record access reinforced trust and confidence in doctors and helped them feel like partners in healthcare.
CONCLUSION: This study suggests that record access improves shared management, with patients using their records to improve interactions with healthcare providers, make decisions about their health and improve the quality of the care they receive. These findings also suggest a possible long-term potential for record access to improve health outcomes.

Entities:  

Mesh:

Year:  2009        PMID: 19966130      PMCID: PMC2789021          DOI: 10.1258/jrsm.2009.090328

Source DB:  PubMed          Journal:  J R Soc Med        ISSN: 0141-0768            Impact factor:   5.344


  18 in total

1.  The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records.

Authors:  James J Cimino; Vimla L Patel; Andre W Kushniruk
Journal:  Int J Med Inform       Date:  2002-12-18       Impact factor: 4.046

2.  The first generation of e-patients.

Authors:  Tom Ferguson; Gilles Frydman
Journal:  BMJ       Date:  2004-05-15

3.  Potential of electronic personal health records.

Authors:  Claudia Pagliari; Don Detmer; Peter Singleton
Journal:  BMJ       Date:  2007-08-18

Review 4.  A descriptive feast but an evaluative famine: systematic review of published articles on primary care computing during 1980-97.

Authors:  E Mitchell; F Sullivan
Journal:  BMJ       Date:  2001-02-03

5.  Giving patients access to their medical records via the internet: the PCASSO experience.

Authors:  Daniel Masys; Dixie Baker; Amy Butros; Kevin E Cowles
Journal:  J Am Med Inform Assoc       Date:  2002 Mar-Apr       Impact factor: 4.497

Review 6.  The effects of promoting patient access to medical records: a review.

Authors:  Stephen E Ross; Chen-Tan Lin
Journal:  J Am Med Inform Assoc       Date:  2003 Mar-Apr       Impact factor: 4.497

7.  Patients' experiences when accessing their on-line electronic patient records in primary care.

Authors:  Cecilia Pyper; Justin Amery; Marion Watson; Claire Crook
Journal:  Br J Gen Pract       Date:  2004-01       Impact factor: 5.386

8.  Patient opinion--EHR assessment from the users perspective.

Authors:  Laura Zurita; Christian Nøhr
Journal:  Stud Health Technol Inform       Date:  2004

9.  Patients' access to their online electronic health records.

Authors:  Cecilia Pyper; Justin Amery; Marion Watson; Claire Crook; Ben Thomas
Journal:  J Telemed Telecare       Date:  2002       Impact factor: 6.184

10.  Providing a web-based online medical record with electronic communication capabilities to patients with congestive heart failure: randomized trial.

Authors:  Stephen E Ross; Laurie A Moore; Mark A Earnest; Loretta Wittevrongel; Chen-Tan Lin
Journal:  J Med Internet Res       Date:  2004-05-14       Impact factor: 5.428

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  40 in total

1.  Mobile Device Applications for Electronic Patient Portals in Oncology.

Authors:  Kelvin K Pho; Rong Lu; Samantha Gates; Jennifer Cai; Donglu Xie; Yang Xie; Simon J Craddock Lee; David E Gerber
Journal:  JCO Clin Cancer Inform       Date:  2019-02

2.  Patients' access to their electronic record: proceed with caution.

Authors:  Richard Vautrey
Journal:  Br J Gen Pract       Date:  2013-06       Impact factor: 5.386

3.  Testing the Electronic Personal Health Record Acceptance Model by Nurses for Managing Their Own Health: A Cross-sectional Survey.

Authors:  K Gartrell; A M Trinkoff; C L Storr; M L Wilson; A P Gurses
Journal:  Appl Clin Inform       Date:  2015-04-08       Impact factor: 2.342

4.  Personal health records, symptoms, uncertainty, and mood in brain tumor patients.

Authors:  Jennifer E Cahill; Lin Lin; Geri LoBiondo-Wood; Terri S Armstrong; Alvina A Acquaye; Elizabeth Vera-Bolanos; Mark R Gilbert; Nikhil S Padhye
Journal:  Neurooncol Pract       Date:  2014-05-05

Review 5.  Personal health records: a scoping review.

Authors:  N Archer; U Fevrier-Thomas; C Lokker; K A McKibbon; S E Straus
Journal:  J Am Med Inform Assoc       Date:  2011 Jul-Aug       Impact factor: 4.497

6.  Patient portal utilization: before and after stage 2 electronic health record meaningful use.

Authors:  Kea Turner; Young-Rock Hong; Sandhya Yadav; Jinhai Huo; Arch G Mainous
Journal:  J Am Med Inform Assoc       Date:  2019-10-01       Impact factor: 4.497

7.  Increase in Cancer Center Staff Effort Related to Electronic Patient Portal Use.

Authors:  Andrew L Laccetti; Beibei Chen; Jennifer Cai; Samantha Gates; Yang Xie; Simon J Craddock Lee; David E Gerber
Journal:  J Oncol Pract       Date:  2016-10-31       Impact factor: 3.840

8.  Patient-initiated electronic health record amendment requests.

Authors:  David A Hanauer; Rebecca Preib; Kai Zheng; Sung W Choi
Journal:  J Am Med Inform Assoc       Date:  2014-05-26       Impact factor: 4.497

9.  The impact of patient record access on appointments and telephone calls in two English general practices: a population-based study.

Authors:  Caroline Fitton; Richard Fitton; Amir Hannan; Brian Fisher; Lawrie Morgan; David Halsall
Journal:  London J Prim Care (Abingdon)       Date:  2014

10.  Development and evaluation of CAHPS questions to assess the impact of health information technology on patient experiences with ambulatory care.

Authors:  D Keith McInnes; Julie A Brown; Ron D Hays; Patricia Gallagher; James D Ralston; Mildred Hugh; Michael Kanter; Carl A Serrato; Carol Cosenza; John Halamka; Lin Ding; Paul D Cleary
Journal:  Med Care       Date:  2012-11       Impact factor: 2.983

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