Literature DB >> 19962846

"I need to lead my own life in any case"--a study of patients in dialysis with or without a partner.

Marie-Louise Ekelund1, Sven Ingmar Andersson.   

Abstract

OBJECTIVE: To elicit psychological and psychosocial problems existing in patients in dialysis and their partners, its being felt that the diversity involved has important implications for how service in dialysis units is delivered to patients and their partners.
METHODS: The results of a series of interviews of 39 patients in dialysis and 21 partners of theirs, each interview individual, concerning their ways of thinking and their feelings and the behaviour, were analyzed in qualitative and content-oriented terms.
RESULTS: Five basic themes could be identified: importance of treatment being individualized, dependency on an apparatus, consequences of the disease and its treatment, hopes for the future, and thoughts concerning life and death. Diversities relating to age, civil status, cultural and gender matters were disclosed.
CONCLUSION: The interview approach illustrated the importance of extended professional and individualized support in handling psychological and psychosocial disparities and needs in order to make treatment regimes more acceptable to the persons involved. PRACTICE IMPLICATIONS: Suggestions are made concerning efforts to improve the care of patients receiving dialysis, and the importance of working with the patients and those closest to them in multidisciplinary teams. (c) 2009 Elsevier Ireland Ltd. All rights reserved.

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Year:  2009        PMID: 19962846     DOI: 10.1016/j.pec.2009.10.025

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  5 in total

1.  "Maybe They Don't Even Know That I Exist": Challenges Faced by Family Members and Friends of Patients with Advanced Kidney Disease.

Authors:  Ann M O'Hare; Jackie Szarka; Lynne V McFarland; Elizabeth K Vig; Rebecca L Sudore; Susan Crowley; Lynn F Reinke; Ranak Trivedi; Janelle S Taylor
Journal:  Clin J Am Soc Nephrol       Date:  2017-03-29       Impact factor: 8.237

2.  Quality of life improved for patients after starting dialysis but is impaired, initially, for their partners: a multi-centre, longitudinal study.

Authors:  Currie Moore; Lesley-Anne Carter; Sandip Mitra; Suzanne Skevington; Alison Wearden
Journal:  BMC Nephrol       Date:  2020-05-18       Impact factor: 2.388

3.  Lived Experiences of Patients with Chronic Kidney Disease Receiving Hemodialysis in Felege Hiwot Comprehensive Specialized Hospital, Northwest Ethiopia.

Authors:  Hailemariam Tadesse; Hordofa Gutema; Yosef Wasihun; Samuel Dagne; Yonatan Menber; Pammela Petrucka; Netsanet Fentahun
Journal:  Int J Nephrol       Date:  2021-08-25

4.  Validation of the Disease-Specific Components of the Kidney Disease Quality of Life-36 (KDQOL-36) in Chinese Patients Undergoing Maintenance Dialysis.

Authors:  Julie Y Chen; Edmond P H Choi; Eric Y F Wan; Anca K C Chan; Joyce P Y Tsang; Karina H Y Chan; W K Lo; S L Lui; W L Chu; Cindy L K Lam
Journal:  PLoS One       Date:  2016-05-05       Impact factor: 3.240

5.  Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.

Authors:  Javier Roberti; Amanda Cummings; Michelle Myall; Jonathan Harvey; Kate Lippiett; Katherine Hunt; Federico Cicora; Juan Pedro Alonso; Carl R May
Journal:  BMJ Open       Date:  2018-09-04       Impact factor: 2.692

  5 in total

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