Literature DB >> 19939313

Applying feminist, multicultural, and social justice theory to diverse women who function as caregivers in end-of-life and palliative home care.

Christopher J Mackinnon1.   

Abstract

OBJECTIVE: Women are largely responsible for providing care to terminally ill family members at home. The goal of this review is to conceptualize diverse women's experiences in palliative home care from feminist, multicultural, and social justice perspectives.
METHODS: Peer-reviewed manuscripts were identified using the following databases: CIMAHL, psycINFO, and pubMED. The following search terms were used: women/mothers/daughters, Caregiving, family caregivers, feminism, culture, multiculturalism, and palliative home care. Article reference lists were also reviewed. The majority of penitent articles which formed the basis for the arguments presented were drawn from nursing, medicine, and counseling psychology scholarship.
RESULTS: The application of feminist, multicultural, and social justice theory brings to attention several potential issues female caregivers may experience. First, there exist diverse ways in which women's Caregiving is manifested that tend to correspond with variations in culture, relationship, and age. Second, it is important to attend to changing expectations placed on women as a result of Caregiving at the end of life. Third, the changing power dynamics women may experience in end of life Caregiving are very complex. SIGNIFICANCE OF
RESULTS: The principle finding of the review was the highlighting of potential risks that culturally diverse female caregivers are likely to face at the end of life. The application of social justice theory provides a number of implications for practice and policy. Specifically, the identifying significant concerns regarding female caregivers in palliative home care, as well as suggesting ways to appropriately attend to these concerns, and oppression of women is less likely to be perpetuated, specific areas for future research in this domain are identified.

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Year:  2009        PMID: 19939313     DOI: 10.1017/S1478951509990514

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  6 in total

Review 1.  Report of the Lancet Commission on the Value of Death: bringing death back into life.

Authors:  Libby Sallnow; Richard Smith; Sam H Ahmedzai; Afsan Bhadelia; Charlotte Chamberlain; Yali Cong; Brett Doble; Luckson Dullie; Robin Durie; Eric A Finkelstein; Sam Guglani; Melanie Hodson; Bettina S Husebø; Allan Kellehear; Celia Kitzinger; Felicia Marie Knaul; Scott A Murray; Julia Neuberger; Seamus O'Mahony; M R Rajagopal; Sarah Russell; Eriko Sase; Katherine E Sleeman; Sheldon Solomon; Ros Taylor; Mpho Tutu van Furth; Katrina Wyatt
Journal:  Lancet       Date:  2022-02-01       Impact factor: 79.321

2.  Assessment of Private Homes as Spaces for the Dying Elderly.

Authors:  Tulika Bhattacharyya; Suhita Chopra Chatterjee; Dipannita Chand; Debolina Chatterjee; Jaydeep Sengupta
Journal:  Indian J Palliat Care       Date:  2017 Jul-Sep

3.  "Small small interventions, big big roles"- a qualitative study of patient, care-giver and health-care worker experiences of a palliative care programme in Kerala, India.

Authors:  Rekha Rachel Philip; Emilie Venables; Abdulla Manima; Jaya Prasad Tripathy; Sairu Philip
Journal:  BMC Palliat Care       Date:  2019-02-04       Impact factor: 3.234

4.  Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia.

Authors:  Emily Fisher; Sophie Crawley; Elizabeth L Sampson; Claudia Cooper; Rebecca Jones; Kanthee Anantapong; Kirsten Moore
Journal:  Dementia (London)       Date:  2022-02-07

5.  Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada's Compassionate Care Benefit.

Authors:  Melissa Giesbrecht; Valorie A Crooks; Allison Williams; Olena Hankivsky
Journal:  Int J Equity Health       Date:  2012-11-01

6.  Silent expectations: An exploration of women pre-Kindergarten teachers' mental health and wellness during Covid-19 and beyond.

Authors:  Vanessa Rodriguez; Natalia M Rojas; Ayesha Rabadi-Raol; Mariana V Souto-Manning; Laurie M Brotman
Journal:  Early Child Res Q       Date:  2021-12-22
  6 in total

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