Literature DB >> 19939302

Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life.

Karen E Steinhauser1, Stewart C Alexander, Ira R Byock, Linda K George, James A Tulsky.   

Abstract

OBJECTIVE: Patients approaching the end of life not only face challenges to physical well-being but also threats to emotional and spiritual integrity. Yet, identifying appropriate, effective, and brief interventions to address those concerns has proven elusive. We developed an intervention based on life review and emotional disclosure literatures and conducted a pilot study to determine feasibility and acceptability. This article presents qualitative intervention responses.
METHOD: We conducted a three-armed randomized control trial to evaluate the effects of preparation and life completion discussion on health outcomes in patients with advanced serious illness. Hospice-eligible subjects were randomly assigned to one of three groups: (1) intervention (life completion discussion intervention), (2) attention control (relaxation meditation), and control (no intervention). Subjects in the intervention arm met with a facilitator three times. Session 1 focused on life story, Session 2 on forgiveness, and Session 3, on heritage and legacy.
RESULTS: Eighteen subjects participated in the pilot intervention interviews. Subjects from a range of socioeconomic backgrounds completed the intervention with equal facility. Results from Session 1 demonstrate narrative responses participants gave as they reconnected with previous life roles, values, and accomplishments. The second session illustrated reflections of choices one might have made differently and exploration of forgiveness offered and sought. Content from the first and second sessions laid the foundation for discussing Session 3's lessons learned and heritage and legacy. Responses are summarized to assist clinicians in anticipating life review content that may improve overall quality of life at the end of life. SIGNIFICANCE OF
RESULTS: Discussions of life completion may improve important health outcomes for patients at the end of life. This intervention may provide a brief, standardized, and transportable means for improving the quality of life of patients with advanced serious illness.

Entities:  

Mesh:

Year:  2009        PMID: 19939302     DOI: 10.1017/S147895150999040X

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  12 in total

1.  Legacy Making Through Illness Blogs: Online Spaces for Young Adults Approaching the End-of-Life.

Authors:  Jessica Keim-Malpass; Katharine Adelstein; Dio Kavalieratos
Journal:  J Adolesc Young Adult Oncol       Date:  2015-12       Impact factor: 2.223

2.  Beyond the bucket list: Unfinished and business among advanced cancer patients.

Authors:  Melissa P Masterson; Elizabeth Slivjak; Greta Jankauskaite; William Breitbart; Hayley Pessin; Elizabeth Schofield; Jason Holland; Wendy G Lichtenthal
Journal:  Psychooncology       Date:  2018-07-27       Impact factor: 3.894

3.  Forgiveness.

Authors:  William Breitbart
Journal:  Palliat Support Care       Date:  2018-06

4.  Exploring the End-of-Life Experiences of Advanced Cancer Patients from India.

Authors:  Maria Wajid; Eslavath Rajkumar; J Romate
Journal:  Health Psychol Res       Date:  2022-06-28

5.  The life in sight application study (LISA): design of a randomized controlled trial to assess the role of an assisted structured reflection on life events and ultimate life goals to improve quality of life of cancer patients.

Authors:  Renske Kruizinga; Michael Scherer-Rath; Johannes B A M Schilderman; Mirjam A G Sprangers; Hanneke W M Van Laarhoven
Journal:  BMC Cancer       Date:  2013-07-26       Impact factor: 4.430

6.  Decisions at the end of life: have we come of age?

Authors:  Linda Emanuel; Karen Glasser Scandrett
Journal:  BMC Med       Date:  2010-10-08       Impact factor: 8.775

7.  Prevalence and risk factors of depressive symptoms in a Canadian palliative home care population: a cross-sectional study.

Authors:  Kathryn A Fisher; Hsien Seow; Kevin Brazil; Shannon Freeman; Trevor Frise Smith; Dawn M Guthrie
Journal:  BMC Palliat Care       Date:  2014-03-17       Impact factor: 3.234

8.  Associations between advanced cancer patients' survival and family caregiver presence and burden.

Authors:  J Nicholas Dionne-Odom; Jay G Hull; Michelle Y Martin; Kathleen Doyle Lyons; Anna T Prescott; Tor Tosteson; Zhongze Li; Imatullah Akyar; Dheeraj Raju; Marie A Bakitas
Journal:  Cancer Med       Date:  2016-02-10       Impact factor: 4.452

9.  Development and evaluation of the Dignity Talk question framework for palliative patients and their families: A mixed-methods study.

Authors:  Qiaohong Guo; Harvey Max Chochinov; Susan McClement; Genevieve Thompson; Tom Hack
Journal:  Palliat Med       Date:  2017-11-13       Impact factor: 4.762

Review 10.  Emotional disclosure in palliative care: A scoping review of intervention characteristics and implementation factors.

Authors:  Daisy McInnerney; Nuriye Kupeli; Paddy Stone; Kanthee Anantapong; Justin Chan; Kate Flemming; Nicholas Troop; Bridget Candy
Journal:  Palliat Med       Date:  2021-05-29       Impact factor: 4.762

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