Literature DB >> 19891616

Genetic risks and healthy choices: creating citizen-consumers of genetic services through empowerment and facilitation.

Alison Harvey1.   

Abstract

Genetic testing to identify susceptibility to a variety of common complex diseases is increasingly becoming available. In this article, focusing on the development of genetic susceptibility testing for diet-related disease, I examine the emergence of direct-to-the-consumer genetic testing services and the (re)configuration of healthcare provision, both within and outside the specialist genetics service, in the UK. I identify two key techniques within these practices: empowerment and facilitation. Using Foucauldian social theory, I show that empowerment and facilitation are being positioned as tools for the creation of citizen-consumers who will make appropriate dietary choices, based on the results of their genetic analysis. Through these techniques, individuals are transformed into properly entrepreneurial citizens who will, through judicious choices, act to maximise their 'vital capital' (their health) and the capital of the social body. I argue that the user of these services is not purely an economic figure, making rational choices as a consumer, but that her configuration as a citizen-consumer who avails herself of genetic information and services in a proper manner ensures that she is fit to contribute to the economic life of our present.

Mesh:

Year:  2009        PMID: 19891616     DOI: 10.1111/j.1467-9566.2009.01202.x

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  8 in total

1.  Communication about DTC testing: commentary on a 'family experience of personal genomics'.

Authors:  Anna Middleton
Journal:  J Genet Couns       Date:  2012-01-06       Impact factor: 2.537

2.  Personal genomics and individual identities: motivations and moral imperatives of early users.

Authors:  Michelle L McGowan; Jennifer R Fishman; Marcie A Lambrix
Journal:  New Genet Soc       Date:  2010-09-01

3.  From "Personalized" to "Precision" Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.

Authors:  Eric Juengst; Michelle L McGowan; Jennifer R Fishman; Richard A Settersten
Journal:  Hastings Cent Rep       Date:  2016-09       Impact factor: 2.683

4.  Transparency of genetic testing services for 'health, wellness and lifestyle': analysis of online prepurchase information for UK consumers.

Authors:  Jacqueline A Hall; Rena Gertz; Joan Amato; Claudia Pagliari
Journal:  Eur J Hum Genet       Date:  2017-05-03       Impact factor: 4.246

5.  Personalized genomic medicine and the rhetoric of empowerment.

Authors:  Eric T Juengst; Michael A Flatt; Richard A Settersten
Journal:  Hastings Cent Rep       Date:  2012 Sep-Oct       Impact factor: 2.683

6.  After the revolution? Ethical and social challenges in 'personalized genomic medicine'

Authors:  Eric T Juengst; Richard A Settersten; Jennifer R Fishman; Michelle L McGowan
Journal:  Per Med       Date:  2012-06-01       Impact factor: 2.512

7.  State of play in direct-to-consumer genetic testing for lifestyle-related diseases: market, marketing content, user experiences and regulation.

Authors:  Paula Saukko
Journal:  Proc Nutr Soc       Date:  2013-02       Impact factor: 6.297

8.  Beyond clinical utility: The multiple values of DTC genetics.

Authors:  Mauro Turrini; Barbara Prainsack
Journal:  Appl Transl Genom       Date:  2016-02-01
  8 in total

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