Literature DB >> 19878332

Physical activity levels and participation in sport in Irish people with haemophilia.

E Sherlock1, J S O'Donnell, B White, C Blake.   

Abstract

Physical activity and sport are associated with a range of health and social benefits. The aim of this study was to assess the level of sports participation and physical activity of Irish people with haemophilia (PWH). A questionnaire was administered to Irish PWH attending the National Centre for Hereditary Coagulation Disorders over a 3-month period. This included the International Physical Activity Questionnaire (IPAQ) and the Haemophilia Activities List (HAL). Comparisons with EU average data from European Physical Activity Surveillance System for physical activity scores (IPAQ) were made using independent t-tests and percentage variance. Relationships between age, functional limitation (based on HAL) and IPAQ scores were tested with Pearson's correlation. Sixty-one questionnaires were completed, representing 12% of the Irish haemophilia population. Age ranged from 16 to 63; all levels of severity were included. Forty-six percent of Irish PWH achieved a high level of physical activity, but overall physical activity [total metabolic equivalents of task (MET) min] in the group was only 66% of the EU average. Elderly patients and those with more functional limitations (with lower HAL scores) were significantly less active. Sports participation levels were in line with other PWH at 66%. Although 55% reported bleeds resulting from sport and 31% reported having had a significant injury attributable to sport, overall sport was viewed in a positive light. Irish PWH are physically active and play a wide range of sports. Further efforts are needed to achieve optimal safety and to ensure that maximum benefit is gained.

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Year:  2009        PMID: 19878332     DOI: 10.1111/j.1365-2516.2009.02111.x

Source DB:  PubMed          Journal:  Haemophilia        ISSN: 1351-8216            Impact factor:   4.287


  9 in total

1.  The role of disease severity in influencing body mass index in people with haemophilia: a single-institutional cross-sectional study.

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Review 2.  Recent advances in musculoskeletal physiotherapy for haemophilia.

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Journal:  Ther Adv Hematol       Date:  2018-07-02

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Journal:  J Blood Med       Date:  2016-05-17

4.  Physical Activity Monitoring and Acceptance of a Commercial Activity Tracker in Adult Patients with Haemophilia.

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Journal:  Int J Environ Res Public Health       Date:  2019-10-12       Impact factor: 3.390

5.  Eligibility for competitive sport medical certification of children with severe hemophilia: Italian observational study.

Authors:  Giuseppe Lassandro; Carmela Pastore; Anna Amoruso; Valentina Palladino; Domenico Accettura; Andrea Buzzi; Silvio Tafuri; Maria Filomena Gallone; Roberto Valente; Rodrigo Trisciuzzi; Cristina Cassone; Paola Giordano
Journal:  Acta Biomed       Date:  2022-03-14

6.  An Electronic Patient-Reported Outcome Mobile App for Data Collection in Type A Hemophilia: Design and Usability Study.

Authors:  Francesco Petracca; Rosaria Tempre; Maria Cucciniello; Oriana Ciani; Elena Pompeo; Luigi Sannino; Valeria Lovato; Giancarlo Castaman; Alessandra Ghirardini; Rosanna Tarricone
Journal:  JMIR Form Res       Date:  2021-12-01

Review 7.  Physical activity in individuals with haemophilia and experience with recombinant factor VIII Fc fusion protein and recombinant factor IX Fc fusion protein for the treatment of active patients: a literature review and case reports.

Authors:  Michael Wang; María Teresa Álvarez-Román; Pratima Chowdary; Doris V Quon; Kim Schafer
Journal:  Blood Coagul Fibrinolysis       Date:  2016-10       Impact factor: 1.276

8.  Construct validity of patient-reported outcome instruments in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.

Authors:  Katharine Batt; Michael Recht; David L Cooper; Neeraj N Iyer; Christine L Kempton
Journal:  Patient Prefer Adherence       Date:  2017-08-09       Impact factor: 2.711

9.  Balance, falls, and exercise: Beliefs and experiences in people with hemophilia: A qualitative study.

Authors:  Lorraine M Flaherty; Jennie Schoeppe; Rebecca Kruse-Jarres; Barbara A Konkle
Journal:  Res Pract Thromb Haemost       Date:  2017-12-04
  9 in total

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