Literature DB >> 19839276

The ethics of expectations: biobanks and the promise of personalised medicine.

Alan Petersen1.   

Abstract

Expectations play a major role in 'driving' biotechnology research and development. However, their ethical significance has been largely overlooked. This article examines the dynamics and ethics of expectations surrounding biotechnologies, focusing on biobanks and the promise of personalised medicines. It explores the personal and social implications of expectations, especially where technologies fail to eventuate. The article identifies the claims and practices that support the expectations pertaining to biotechnologies and some of the factors that work against the fulfilment of predicted innovations. It is argued that the role of expectations in shaping thinking and action needs to be taken seriously by those who are concerned about the ethical implications of biotechnologies.

Mesh:

Year:  2009        PMID: 19839276

Source DB:  PubMed          Journal:  Monash Bioeth Rev        ISSN: 1321-2753


  10 in total

1.  Hype and public trust in science.

Authors:  Zubin Master; David B Resnik
Journal:  Sci Eng Ethics       Date:  2011-11-02       Impact factor: 3.525

2.  Personalised medicine: a critique on the future of health care.

Authors:  Jacqueline Savard
Journal:  J Bioeth Inq       Date:  2013-03-21       Impact factor: 1.352

3.  Ocular gene transfer in the spotlight: implications of newspaper content for clinical communications.

Authors:  Shelly Benjaminy; Tania Bubela
Journal:  BMC Med Ethics       Date:  2014-07-16       Impact factor: 2.652

4.  "Is a cure in my sight?" Multi-stakeholder perspectives on phase I choroideremia gene transfer clinical trials.

Authors:  Shelly Benjaminy; Ian Macdonald; Tania Bubela
Journal:  Genet Med       Date:  2013-09-26       Impact factor: 8.822

5.  Neglected ethical issues in biobank management: Results from a U.S. study.

Authors:  R Jean Cadigan; Dragana Lassiter; Kaaren Haldeman; Ian Conlon; Erik Reavely; Gail E Henderson
Journal:  Life Sci Soc Policy       Date:  2013-12-01

6.  Conceptual and terminological confusion around personalised medicine: a coping strategy.

Authors:  Giovanni De Grandis; Vidar Halgunset
Journal:  BMC Med Ethics       Date:  2016-07-18       Impact factor: 2.652

7.  Is belief larger than fact: expectations, optimism and reality for translational stem cell research.

Authors:  Tania Bubela; Matthew D Li; Mohamed Hafez; Mark Bieber; Harold Atkins
Journal:  BMC Med       Date:  2012-11-06       Impact factor: 8.775

8.  Newspaper coverage of biobanks.

Authors:  Ubaka Ogbogu; Maeghan Toews; Adam Ollenberger; Pascal Borry; Helene Nobile; Manuela Bergmann; Timothy Caulfield
Journal:  PeerJ       Date:  2014-07-31       Impact factor: 2.984

Review 9.  Improving Decision Making about Genetic Testing in the Clinic: An Overview of Effective Knowledge Translation Interventions.

Authors:  France Légaré; Hubert Robitaille; Claire Gane; Jessica Hébert; Michel Labrecque; François Rousseau
Journal:  PLoS One       Date:  2016-03-03       Impact factor: 3.240

10.  Resilience, trust, and civic engagement in the post-CCSVI era.

Authors:  Shelly Benjaminy; Andrew Schepmyer; Judy Illes; Anthony Traboulsee
Journal:  BMC Health Serv Res       Date:  2018-05-16       Impact factor: 2.655

  10 in total

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