Literature DB >> 19837938

Efficacy and safety of long-term continuous growth hormone treatment in children with Prader-Willi syndrome.

Roderick F A de Lind van Wijngaarden1, Elbrich P C Siemensma, Dederieke A M Festen, Barto J Otten, Edgar G A H van Mil, Joost Rotteveel, Roelof J H Odink, G C B Karen Bindels-de Heus, Mariëtte van Leeuwen, Danny A J P Haring, Gianni Bocca, E C A Mieke Houdijk, J J Gera Hoorweg-Nijman, René C F M Vreuls, Petr E Jira, A S Paul van Trotsenburg, Boudewijn Bakker, Eelco J Schroor, Jan Willem Pilon, Jan M Wit, Stenvert L S Drop, Anita C S Hokken-Koelega.   

Abstract

BACKGROUND: Children with Prader-Willi syndrome (PWS) have abnormal body composition and impaired growth. Short-term GH treatment has beneficial effects.
OBJECTIVES: The aim of the study was to investigate effects of long-term continuous GH treatment on body composition, growth, bone maturation, and safety parameters.
SETTING: We conducted a multicenter prospective trial.
DESIGN: Fifty-five children with a mean +/- sd age of 5.9 +/- 3.2 yr were followed during 4 yr of continuous GH treatment (1 mg/m(2) . d). Data were annually obtained in one center: fat percentage (fat%) and lean body mass (LBM) by dual-energy x-ray absorptiometry, height, weight, head circumference, bone age, blood pressure, and fasting IGF-I, IGF binding protein-3, glucose, insulin, glycosylated hemoglobin, total cholesterol, high-density lipoprotein, and low-density lipoprotein. sd scores (SDS) were calculated according to Dutch and PWS reference values (SDS and SDS(PWS)).
RESULTS: Fat%SDS was significantly lower after 4 yr of GH treatment (P < 0.0001). LBMSDS significantly increased during the first year (P = 0.02) but returned to baseline values the second year and remained unchanged thereafter. Mean +/- sd height normalized from -2.27 +/- 1.2 SDS to -0.24 +/- 1.2 SDS (P < 0.0001). Head circumference SDS increased from -0.79 +/- 1.0 at start to 0.07 +/- 1.1 SDS after 4 yr. BMISDS(PWS) significantly decreased. Mean +/- sd IGF-I and the IGF-I/IGF binding protein-3 ratio significantly increased to 2.08 +/- 1.1 and 2.32 +/- 0.9 SDS, respectively. GH treatment had no adverse effects on bone maturation, blood pressure, glucose homeostasis, and serum lipids.
CONCLUSIONS: Our study in children with PWS shows that 4 yr of continuous GH treatment (1 mg/m(2) . d) improves body composition by decreasing fat%SDS and stabilizing LBMSDS and head circumference SDS and normalizes heightSDS without adverse effects. Thus, long-term continuous GH treatment is an effective and safe therapy for children with PWS.

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Year:  2009        PMID: 19837938     DOI: 10.1210/jc.2009-0454

Source DB:  PubMed          Journal:  J Clin Endocrinol Metab        ISSN: 0021-972X            Impact factor:   5.958


  22 in total

Review 1.  Prader-Willi Syndrome - Clinical Genetics, Diagnosis and Treatment Approaches: An Update.

Authors:  Merlin G Butler; Jennifer L Miller; Janice L Forster
Journal:  Curr Pediatr Rev       Date:  2019

2.  Prader-Willi syndrome: a single center's experience in Korea.

Authors:  Yea Ji Kim; Chong Kun Cheon
Journal:  Korean J Pediatr       Date:  2014-07-23

3.  Clinical management of behavioral characteristics of Prader-Willi syndrome.

Authors:  Alan Y Ho; Anastasia Dimitropoulos
Journal:  Neuropsychiatr Dis Treat       Date:  2010-05-06       Impact factor: 2.570

4.  Macronutrient Regulation of Ghrelin and Peptide YY in Pediatric Obesity and Prader-Willi Syndrome.

Authors:  Pinar Gumus Balikcioglu; Metin Balikcioglu; Michael J Muehlbauer; Jonathan Q Purnell; David Broadhurst; Michael Freemark; Andrea M Haqq
Journal:  J Clin Endocrinol Metab       Date:  2015-08-10       Impact factor: 5.958

5.  Effect of recombinant human growth hormone on changes in height, bone mineral density, and body composition over 1-2 years in children with Hurler or Hunter syndrome.

Authors:  Lynda E Polgreen; William Thomas; Paul J Orchard; Chester B Whitley; Bradley S Miller
Journal:  Mol Genet Metab       Date:  2013-12-11       Impact factor: 4.797

Review 6.  Prader-Willi Syndrome: Clinical Genetics and Diagnostic Aspects with Treatment Approaches.

Authors:  Merlin G Butler; Ann M Manzardo; Janice L Forster
Journal:  Curr Pediatr Rev       Date:  2016

7.  Long-term growth hormone therapy changes the natural history of body composition and motor function in children with prader-willi syndrome.

Authors:  Aaron L Carrel; Susan E Myers; Barbara Y Whitman; Jens Eickhoff; David B Allen
Journal:  J Clin Endocrinol Metab       Date:  2010-01-08       Impact factor: 5.958

8.  A Randomized Safety and Efficacy Study of Somavaratan (VRS-317), a Long-Acting rhGH, in Pediatric Growth Hormone Deficiency.

Authors:  Wayne V Moore; Huong Jil Nguyen; Gad B Kletter; Bradley S Miller; Douglas Rogers; David Ng; Jerome A Moore; Eric Humphriss; Jeffrey L Cleland; George M Bright
Journal:  J Clin Endocrinol Metab       Date:  2015-12-16       Impact factor: 5.958

9.  Correlation of Genotype and Perinatal Period, Time of Diagnosis and Anthropometric Data before Commencement of Recombinant Human Growth Hormone Treatment in Polish Patients with Prader-Willi Syndrome.

Authors:  Agnieszka Lecka-Ambroziak; Marta Wysocka-Mincewicz; Katarzyna Doleżal-Ołtarzewska; Agata Zygmunt-Górska; Teresa Żak; Anna Noczyńska; Dorota Birkholz-Walerzak; Renata Stawerska; Maciej Hilczer; Monika Obara-Moszyńska; Barbara Rabska-Pietrzak; Elżbieta Gołębiowska; Adam Dudek; Elżbieta Petriczko; Mieczysław Szalecki
Journal:  Diagnostics (Basel)       Date:  2021-04-28

10.  Endocrine manifestations and management of Prader-Willi syndrome.

Authors:  Jill E Emerick; Karen S Vogt
Journal:  Int J Pediatr Endocrinol       Date:  2013-08-21
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