Literature DB >> 19822585

Athletic participation in severe hemophilia: bleeding and joint outcomes in children on prophylaxis.

Cassie Ross1, Neil A Goldenberg, Dana Hund, Marilyn J Manco-Johnson.   

Abstract

OBJECTIVES: We sought to determine joint outcomes relative to impact level of athletic participation among school-aged children who had hemophilia and were taking prophylactic factor replacement, as well as to investigate prognostic factors for joint outcomes.
METHODS: School-aged boys with severe hemophilia A or B at a single center were included in the study. Clinical data on baseline joint status, BMI, hemophilia treatment, bleeding episodes, joint assessments, athletic participation, and injuries were retrospectively reviewed. Data on athletic participation were supplemented, when incomplete in the medical record, via structured telephone interview.
RESULTS: Among 37 children with severe hemophilia A or B receiving factor prophylaxis, 73% participated in high-impact activities, whereas 27% participated in exclusively low-impact activities. The frequency of joint hemorrhages and new injuries did not appreciably differ between high- and low-impact athletics. In most instances, children developed <1 bleed or injury per season. A new target joint developed in 1 (3%) child. Sixteen percent of children met established BMI criteria for overweight, and 3% were obese. In logistic regression analyses with adjustment for prophylaxis frequency, level of athletic participation was not a significant prognostic factor for joint hemorrhage.
CONCLUSIONS: In the setting of regular prophylaxis and adult coaching and supervision, significant bleeding complications were uncommon and level of impact of athletic participation was not a prognostic factor for joint outcomes. Athletic participation with appropriate supervision and precautions should be encouraged in children with hemophilia receiving prophylaxis, given potential health benefits in an increasingly overweight pediatric population.

Entities:  

Mesh:

Year:  2009        PMID: 19822585     DOI: 10.1542/peds.2009-0072

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  9 in total

1.  Hemophilia in Sports: A Case Report and Prophylactic Protocol.

Authors:  Mark Maffet; Jimmy Roton
Journal:  J Athl Train       Date:  2016-11-18       Impact factor: 2.860

Review 2.  Sports participation recommendations for patients with bleeding disorders.

Authors:  Cailly Howell; Katherine Scott; Dilip R Patel
Journal:  Transl Pediatr       Date:  2017-07

Review 3.  How do we optimally utilize factor concentrates in persons with hemophilia?

Authors:  Ming Y Lim
Journal:  Hematology Am Soc Hematol Educ Program       Date:  2021-12-10

4.  Motivational techniques to improve self-care in hemophilia: the need to support autonomy in children.

Authors:  Sarah Bérubé; Florine Mouillard; Claudine Amesse; Serge Sultan
Journal:  BMC Pediatr       Date:  2016-01-11       Impact factor: 2.125

5.  Establishing an online physical exercise program for people with hemophilia.

Authors:  Barbara Wagner; Axel Seuser; Steffen Krüger; Marie Luca Herzig; Thomas Hilberg; Cihan Ay; Timothy Hasenöhrl; Richard Crevenna
Journal:  Wien Klin Wochenschr       Date:  2019-09-18       Impact factor: 1.704

6.  Eligibility for competitive sport medical certification of children with severe hemophilia: Italian observational study.

Authors:  Giuseppe Lassandro; Carmela Pastore; Anna Amoruso; Valentina Palladino; Domenico Accettura; Andrea Buzzi; Silvio Tafuri; Maria Filomena Gallone; Roberto Valente; Rodrigo Trisciuzzi; Cristina Cassone; Paola Giordano
Journal:  Acta Biomed       Date:  2022-03-14

7.  Illness perceptions and their relation to physical activity in children and adolescents with hemophilia.

Authors:  Sarah Bérubé; Claudine Amesse; Serge Sultan
Journal:  Health Psychol Behav Med       Date:  2020-10-04

Review 8.  Issues in pediatric haemophilia care.

Authors:  Paola Giordano; Massimo Franchini; Giuseppe Lassandro; Maria Felicia Faienza; Roberto Valente; Angelo Claudio Molinari
Journal:  Ital J Pediatr       Date:  2013-04-20       Impact factor: 2.638

Review 9.  Physical activity in individuals with haemophilia and experience with recombinant factor VIII Fc fusion protein and recombinant factor IX Fc fusion protein for the treatment of active patients: a literature review and case reports.

Authors:  Michael Wang; María Teresa Álvarez-Román; Pratima Chowdary; Doris V Quon; Kim Schafer
Journal:  Blood Coagul Fibrinolysis       Date:  2016-10       Impact factor: 1.276

  9 in total

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