Literature DB >> 19802549

Disclosure of the HIV infection status in children.

Sasi Arun1, Ajay K Singh, Rakesh Lodha, S K Kabra.   

Abstract

OBJECTIVE: To determine the perception of caregivers about the disclosure of the diagnosis of HIV infection in children.
METHODS: Caregivers of fifty HIV-infected children were enrolled in the study after taking written informed consent. They were interviewed using a structured questionnaire. The questionnaire included information on the demographic details, questions about the disclosure status of HIV infection in children and perceptions about the disclosure of status to child.
RESULTS: Only 7 out of the 50 children (14%) were aware of their HIV status while 43/50 (86%) were unaware; as reported by their guardians/ parents. Only 6 percent children (3/50) were given factual information about the disease while 68% (34/50) were given no information. Majority of caregivers felt mid-teenage as the appropriate age for disclosing the HIV infection status and that the parents were the appropriate persons to reveal the infection status (21/50, 42%).
CONCLUSION: There is need to develop and implement guidelines for disclosure of HIV infection status to HIV-infected children in resource limited settings.

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Mesh:

Year:  2009        PMID: 19802549     DOI: 10.1007/s12098-009-0177-z

Source DB:  PubMed          Journal:  Indian J Pediatr        ISSN: 0019-5456            Impact factor:   1.967


  15 in total

Review 1.  The disclosure of the diagnosis of cancer.

Authors:  L J Woodard; R J Pamies
Journal:  Prim Care       Date:  1992-12       Impact factor: 2.907

2.  Patterns of disclosure and perceptions of the human immunodeficiency virus in infected elementary school-age children.

Authors:  I Funck-Brentano; D Costagliola; N Seibel; E Straub; M Tardieu; S Blanche
Journal:  Arch Pediatr Adolesc Med       Date:  1997-10

3.  Paediatric HIV disclosure in South Africa -- caregivers' perspectives on discussing HIV with infected children.

Authors:  K Moodley; L Myer; D Michaels; M Cotton
Journal:  S Afr Med J       Date:  2006-03

Review 4.  Disclosure of HIV diagnosis to children: when, where, why, and how.

Authors:  A C Gerson; M Joyner; P Fosarelli; A Butz; L Wissow; S Lee; P Marks; N Hutton
Journal:  J Pediatr Health Care       Date:  2001 Jul-Aug       Impact factor: 1.812

5.  Communication of the cancer diagnosis to pediatric patients: impact on long-term adjustment.

Authors:  L A Slavin; J E O'Malley; G P Koocher; D J Foster
Journal:  Am J Psychiatry       Date:  1982-02       Impact factor: 18.112

6.  Diagnosis disclosure by family caregivers to children who have perinatally acquired HIV disease: when the time comes.

Authors:  S W Ledlie
Journal:  Nurs Res       Date:  1999 May-Jun       Impact factor: 2.381

7.  Predictors of psychological adjustment in school-age children infected with HIV.

Authors:  P J Bachanas; K A Kullgren; K S Schwartz; B Lanier; J S McDaniel; J Smith; S Nesheim
Journal:  J Pediatr Psychol       Date:  2001-09

8.  Disclosure of HIV/AIDS diagnosis to HIV-infected children in Thailand.

Authors:  Peninnah Oberdorfer; Thanyawee Puthanakit; Orawan Louthrenoo; Chawanun Charnsil; Virat Sirisanthana; Thira Sirisanthana
Journal:  J Paediatr Child Health       Date:  2006-05       Impact factor: 1.954

9.  Health care of children and adults with acquired immunodeficiency syndrome. A population-based analysis.

Authors:  B J Turner; S C Eppes; L E Markson; L J McKee; T R Fanning; R H Pantell
Journal:  Arch Pediatr Adolesc Med       Date:  1996-06

Review 10.  Disclosure of diagnosis to children with human immunodeficiency virus or acquired immunodeficiency syndrome.

Authors:  M Lipson
Journal:  J Dev Behav Pediatr       Date:  1994-06       Impact factor: 2.225

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  26 in total

1.  Emotional and behavioral disturbances in school going HIV positive children attending HIV clinic.

Authors:  Deepak Joshi; Mithilesh K Tiwari; Venkatnarayan Kannan; S S Dalal; S S Mathai
Journal:  Med J Armed Forces India       Date:  2017-01-07

2.  Changing methods of disclosure. Literature review of disclosure to children with terminal illnesses, including HIV.

Authors:  G Anita Heeren
Journal:  Innovation (Abingdon)       Date:  2011

3.  Disclosure of their status to youth with human immunodeficiency virus infection in the Dominican Republic: a mixed-methods study.

Authors:  Consuelo Beck-Sagué; Maria Claudia Pinzón-Iregui; Rosa Abreu-Pérez; Leonel Lerebours-Nadal; Christi M Navarro; Gladys Ibanez; Solange Soto; Mina Halpern; Stephen W Nicholas; Robert Malow; Jessy G Dévieux
Journal:  AIDS Behav       Date:  2015-02

4.  Patterns of disclosure of HIV status to infected children in a Sub-Saharan African setting.

Authors:  Lara M E Vaz; Suzanne Maman; Eugenia Eng; Oscar A Barbarin; Tomi Tshikandu; Frieda Behets
Journal:  J Dev Behav Pediatr       Date:  2011-05       Impact factor: 2.225

5.  Disclosure of HIV Status to Infected Children in South India: Perspectives of Caregivers.

Authors:  Maria L Ekstrand; Elsa Heylen; Kayur Mehta; G N Sanjeeva; Anita Shet
Journal:  J Trop Pediatr       Date:  2018-08-01       Impact factor: 1.165

6.  Disclosure and Clinical Outcomes Among Young Adolescents Living With HIV in Kenya.

Authors:  Bernadette Ngeno; Anthony Waruru; Irene Inwani; Lucy Nganga; Evelyn Ngugi Wangari; Abraham Katana; Anthony Gichangi; Ann Mwangi; Irene Mukui; George W Rutherford
Journal:  J Adolesc Health       Date:  2018-10-25       Impact factor: 5.012

Review 7.  Disclosure of their HIV status to infected children: a review of the literature.

Authors:  María C Pinzón-Iregui; Consuelo M Beck-Sagué; Robert M Malow
Journal:  J Trop Pediatr       Date:  2012-10-15       Impact factor: 1.165

Review 8.  Issues around childhood disclosure of HIV status - findings from a qualitative study in West Bengal, India.

Authors:  A Das; R Detels; M Javanbakht; S Panda
Journal:  Child Care Health Dev       Date:  2016-04-27       Impact factor: 2.508

9.  Notification of HIV status disclosure and its related factors in HIV-infected adolescents in 2009 in the Aconda program (CePReF, CHU Yopougon) in Abidjan, Côte d'Ivoire, The PRADO-CI Study.

Authors:  Guanga David Meless; Hortense Aka-Dago-Akribi; Chantal Cacou; Tanoh François Eboua; Addi Edmond Aka; Aimé Maxime Oga; Belinda Bouah; Messou Eugène; Corinne Moh; Elise Arrivé; Marguerite Timité-Konan; Valériane Leroy
Journal:  J Int AIDS Soc       Date:  2013-06-18       Impact factor: 5.396

Review 10.  Disclosure of HIV status to children in resource-limited settings: a systematic review.

Authors:  Rachel C Vreeman; Anna Maria Gramelspacher; Peter O Gisore; Michael L Scanlon; Winstone M Nyandiko
Journal:  J Int AIDS Soc       Date:  2013-05-27       Impact factor: 5.396

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