Literature DB >> 19782901

An everyday struggle-Swedish families' lived experiences during a child's cancer treatment.

Maria Björk1, Thomas Wiebe, Inger Hallström.   

Abstract

The aim was to elucidate families' lived experience during a child's cancer treatment. Interviews were conducted with members of 11 affected families. A hermeneutical phenomenological approach was chosen. "Focus on the ill child-An everyday struggle" emerged as an essential theme. The families' lived experience of daily life was described as "feeling drained," "disrupting family life," "feeling locked up and isolated," "retaining normality," "becoming experts," and "changing perspectives." The result indicates that life during a child's cancer treatment is a taxing period and that the entire family is in need of support to ease their burdens.

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Year:  2008        PMID: 19782901     DOI: 10.1016/j.pedn.2008.01.082

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  7 in total

1.  The Hospital at Home program: no place like home.

Authors:  M Lippert; S Semmens; L Tacey; T Rent; K Defoe; M Bucsis; T Shykula; J Crysdale; V Lewis; D Strother; L Lafay-Cousin
Journal:  Curr Oncol       Date:  2017-02-27       Impact factor: 3.677

2.  Childhood Cancer Survivors: Self-Reported Quality of Life during and after the Cancer Trajectory.

Authors:  Margaretha Stenmarker; Karin Enskär; Maria Björk; Mirka Pinkava; Bo Rolander; Marie Golsäter
Journal:  Asia Pac J Oncol Nurs       Date:  2020-09-14

3.  Sense of coherence over time for parents with a child diagnosed with cancer.

Authors:  Ingrid Bergh; Maria Björk
Journal:  BMC Pediatr       Date:  2012-06-21       Impact factor: 2.125

4.  Lived experiences of pediatric oncology nurses in Iran.

Authors:  Fariba Borhani; Abbas Abbaszadeh; Mohaddeseh Mohsenpour; Neda Asadi
Journal:  Iran J Nurs Midwifery Res       Date:  2013-09

5.  Health-related quality of life, culture and communication: a comparative study in children with cancer in Argentina and Sweden.

Authors:  Emelie Stenmarker; Karin Mellgren; Mónica Matus; Anna Schroder Hakansson; Margaretha Stenmarker
Journal:  J Patient Rep Outcomes       Date:  2018-10-17

6.  Family Adjustment When Facing Pediatric Cancer: The Role of Parental Psychological Flexibility, Dyadic Coping, and Network Support.

Authors:  Marieke Van Schoors; Annick Lena De Paepe; Jurgen Lemiere; Ann Morez; Koenraad Norga; Karolien Lambrecht; Liesbet Goubert; Lesley L Verhofstadt
Journal:  Front Psychol       Date:  2019-12-10

7.  Children Undergoing Radiotherapy: Swedish Parents' Experiences and Suggestions for Improvement.

Authors:  Charlotte Ångström-Brännström; Gunn Engvall; Tara Mullaney; Kristina Nilsson; Gun Wickart-Johansson; Anna-Maja Svärd; Tufve Nyholm; Jack Lindh; Viveca Lindh
Journal:  PLoS One       Date:  2015-10-28       Impact factor: 3.240

  7 in total

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