Literature DB >> 19687119

Living with Ankylosing Spondylitis: the patient's perspective.

Kate E Hamilton-West1, Lyn Quine.   

Abstract

Ankylosing Spondylitis (AS) is a potentially debilitating chronic condition that necessitates a biopsychosocial approach for successful long-term management. However, the psychosocial consequences of AS are not well understood. In this study patients (N = 68) reported impacts of AS across a wide range of life domains; negative impacts included physical effects of AS, changes in mood or personality, effects on social life and relationships with friends and family, low self-esteem, stigma and worry about the future; positive impacts included increased exercise, feelings of achievement and empathy, stronger relationships, slower pace of life and a more positive perspective. Implications for treatment are discussed.

Entities:  

Mesh:

Year:  2009        PMID: 19687119     DOI: 10.1177/1359105309341394

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  14 in total

1.  Fear Assessment in Inflammatory Rheumatic diseases (FAIR) questionnaire: a cross-cultural adaptation and validation to the Turkish language.

Authors:  Okan Küçükakkaş; Aylin Rezvani; Ozan Volkan Yurdakul; Sena Tolu; Mehmet Serkan Kılıçoğlu; Teoman Aydın
Journal:  Clin Rheumatol       Date:  2018-07-28       Impact factor: 2.980

2.  Age-stratified trends in the progression of spinal radiographic damage in patients with ankylosing spondylitis: a longitudinal study.

Authors:  Tae-Han Lee; Bon San Koo; Bora Nam; Yun Jin Kim; Donghee Son; Seunghun Lee; Kyung Bin Joo; Tae-Hwan Kim
Journal:  Ther Adv Musculoskelet Dis       Date:  2022-05-23       Impact factor: 3.625

3.  A prospective study of novel disease activity indices for ankylosing spondylitis.

Authors:  T G Sundaram; Hafis Muhammed; Amita Aggarwal; Latika Gupta
Journal:  Rheumatol Int       Date:  2020-08-05       Impact factor: 2.631

4.  The impact of stigma in healthcare on people living with chronic illnesses.

Authors:  Valerie A Earnshaw; Diane M Quinn
Journal:  J Health Psychol       Date:  2011-07-28

5.  Gender differences in patient journey to diagnosis and disease outcomes: results from the European Map of Axial Spondyloarthritis (EMAS).

Authors:  Marco Garrido-Cumbrera; Denis Poddubnyy; Laure Gossec; Raj Mahapatra; Christine Bundy; Souzi Makri; Sergio Sanz-Gómez; Laura Christen; Carlos J Delgado-Domínguez; Victoria Navarro-Compán
Journal:  Clin Rheumatol       Date:  2021-01-19       Impact factor: 2.980

6.  Relationship between optimism and quality of life in patients with two chronic rheumatic diseases: axial spondyloarthritis and chronic low back pain: a cross sectional study of 288 patients.

Authors:  Sarah Kreis; Anna Molto; Florian Bailly; Sabrina Dadoun; Stéphanie Fabre; Christopher Rein; Christophe Hudry; Franck Zenasni; Sylvie Rozenberg; Edouard Pertuiset; Bruno Fautrel; Laure Gossec
Journal:  Health Qual Life Outcomes       Date:  2015-06-10       Impact factor: 3.186

Review 7.  Patient Burden of Axial Spondyloarthritis.

Authors:  Vibeke Strand; Jasvinder A Singh
Journal:  J Clin Rheumatol       Date:  2017-10       Impact factor: 3.517

Review 8.  Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care.

Authors:  Jonathan Packham
Journal:  Rheumatology (Oxford)       Date:  2018-08-01       Impact factor: 7.580

9.  Educational needs in patients with spondyloarthritis in Sweden - a mixed-methods study.

Authors:  Emma Haglund; Ann Bremander; Stefan Bergman; Ingrid Larsson
Journal:  BMC Musculoskelet Disord       Date:  2017-08-02       Impact factor: 2.362

10.  Development and psychometric validation of a patient-reported outcome measure to assess fears in rheumatoid arthritis and axial spondyloarthritis: the Fear Assessment in Inflammatory Rheumatic diseases (FAIR) questionnaire.

Authors:  Laure Gossec; Pierre Chauvin; Alain Saraux; Christophe Hudry; Gabrielle Cukierman; Thibault de Chalus; Caroline Dreuillet; Vincent Saulot; Sabine Tong; Françoise Russo-Marie; Jean-Michel Joubert; Francis Berenbaum
Journal:  Ann Rheum Dis       Date:  2017-11-04       Impact factor: 19.103

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