Literature DB >> 19687110

'Coping quite well with a few difficult bits': living with disfigurement in early adolescence.

Jess Prior1, Lindsay O'Dell.   

Abstract

Facial disfigurement affects approximately one in 500 children and young people in the UK. Four mothers and their four children aged 11-13 years who have a facial disfigurement were recruited through the charity Changing Faces, in order to examine the perspectives and concerns of adolescents and their mothers, and how they live with their disfigurement. Semi-structured interviews were analysed using Interpretative Phenomenological Analysis. The implications for research and practice in health psychology are discussed, and in particular the support and intervention of friends, constant vigilance and practical assistance from mothers, and the individual characteristics of the child are highlighted for further consideration.

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Year:  2009        PMID: 19687110     DOI: 10.1177/1359105309338972

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  4 in total

1.  Parents' experiences of caring for a young person with neurofibromatosis type 1 (NF1): a qualitative study.

Authors:  Jenny Barke; Jane Coad; Diana Harcourt
Journal:  J Community Genet       Date:  2015-07-23

2.  The Role of Appearance in Adolescents' Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents.

Authors:  Jenny Barke; Jane Coad; Diana Harcourt
Journal:  J Genet Couns       Date:  2016-03-22       Impact factor: 2.537

3.  Psychotropic drug use in adolescents born with an orofacial cleft: a population-based study.

Authors:  Sofia Nilsson; Juan Merlo; Viveka Lyberg-Åhlander; Elia Psouni
Journal:  BMJ Open       Date:  2015-04-02       Impact factor: 2.692

4.  Subjective Assessment of Head and Facial Appearance in Children with Craniosynostoses after Surgical Treatment.

Authors:  Dawid Larysz; Elżbieta Nieroba
Journal:  Healthcare (Basel)       Date:  2018-10-24
  4 in total

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