Literature DB >> 19629565

Symptomatology of MS: results from the German MS Registry.

Kristin Stuke, Peter Flachenecker, Uwe K Zettl, Wolfgang G Elias, Matthias Freidel, Judith Haas, Dorothea Pitschnau-Michel, Sebastian Schimrigk, Peter Rieckmann.   

Abstract

Since 2002, an MS Registry has been implemented by the German MS Society in more than 100 German MS centres. The objective is to provide information about disease characteristics, and to monitor the health care situation in a large population of patients. The aim of this report is to give detailed results on MS symptoms. By October 2008, data sets from 16,554 patients were recorded by 86 centres. A strikingly high number of persons suffered from fatigue and other "invisible" symptoms during early and late stages of the disease, underscoring the negative impact of these symptoms on quality of life in MS patients.

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Year:  2009        PMID： 19629565     DOI： 10.1007/s00415-009-5257-5

Source DB:  PubMed          Journal:  J Neurol        ISSN： 0340-5354            Impact factor:   4.849


  8 in total

1.  [MS registry in Germany--design and first results of the pilot phase].

Authors:  P Flachenecker; U K Zettl; U Götze; J Haas; S Schimrigk; W Elias; M Pette; M Eulitz; M Hennig; J Bertram; R Hollweck; A Neiss; M Daumer; D Pitschnau-Michel; P Rieckmann
Journal:  Nervenarzt       Date:  2005-08       Impact factor: 1.214

2.  Basic and escalating immunomodulatory treatments in multiple sclerosis: current therapeutic recommendations.

Authors:  H Wiendl; K V Toyka; P Rieckmann; R Gold; H-P Hartung; R Hohlfeld
Journal:  J Neurol       Date:  2008-10-29       Impact factor: 4.849

3.  The natural history of multiple sclerosis: a geographically based study. I. Clinical course and disability.

Authors:  B G Weinshenker; B Bass; G P Rice; J Noseworthy; W Carriere; J Baskerville; G C Ebers
Journal:  Brain       Date:  1989-02       Impact factor: 13.501

4.  Impairment, disability, and handicap in multiple sclerosis: a population-based study in Olmsted County, Minnesota.

Authors:  M Rodriguez; A Siva; J Ward; K Stolp-Smith; P O'Brien; L Kurland
Journal:  Neurology       Date:  1994-01       Impact factor: 9.910

5.  Defining the clinical course of multiple sclerosis: results of an international survey. National Multiple Sclerosis Society (USA) Advisory Committee on Clinical Trials of New Agents in Multiple Sclerosis.

Authors:  F D Lublin; S C Reingold
Journal:  Neurology       Date:  1996-04       Impact factor: 9.910

6.  Treatment patterns of multiple sclerosis patients: a comparison of veterans and non-veterans using the NARCOMS registry.

Authors:  Albert C Lo; Olympia Hadjimichael; Timothy L Vollmer
Journal:  Mult Scler       Date:  2005-02       Impact factor: 6.312

7.  Change in MS-related disability in a population-based cohort: a 10-year follow-up study.

Authors:  S J Pittock; W T Mayr; R L McClelland; N W Jorgensen; S D Weigand; J H Noseworthy; B G Weinshenker; M Rodriguez
Journal:  Neurology       Date:  2004-01-13       Impact factor: 9.910

Review 8.  National MS registries.

Authors:  Peter Flachenecker; Kristin Stuke
Journal:  J Neurol       Date:  2008-12       Impact factor: 4.849
  8 in total
  27 in total

1.  [Epidemiology of multiple sclerosis in Germany: regional differences and drug prescription in the claims data of the statutory health insurance].

Authors:  G Petersen; R Wittmann; V Arndt; D Göpffarth
Journal:  Nervenarzt       Date:  2014-08       Impact factor: 1.214

Review 2.  Quality of life in multiple sclerosis: determinants, measurement, and use in clinical practice.

Authors:  Deborah M Miller; Rebecca Allen
Journal:  Curr Neurol Neurosci Rep       Date:  2010-09       Impact factor: 5.081

Review 3.  Development and pilot phase of a European MS register.

Authors:  Peter Flachenecker; Laura Khil; Sverrir Bergmann; Mariusz Kowalewski; Ion Pascu; Francisco Pérez-Miralles; Jaume Sastre-Garriga; Thomas Zwingers
Journal:  J Neurol       Date:  2010-05-05       Impact factor: 4.849

4.  Biological outcome measurements for behavioral interventions in multiple sclerosis.

Authors:  Anja Fischer; Christoph Heesen; Stefan M Gold
Journal:  Ther Adv Neurol Disord       Date:  2011-07       Impact factor: 6.570

5.  The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference.

Authors:  Michaela Coenen; Alarcos Cieza; Jenny Freeman; Fary Khan; Deborah Miller; Andrea Weise; Jürg Kesselring
Journal:  J Neurol       Date:  2011-03-04       Impact factor: 4.849

6.  Unmet needs of patients feeling severely affected by multiple sclerosis in Germany: a qualitative study.

Authors:  Maren Galushko; Heidrun Golla; Julia Strupp; Ute Karbach; Claudia Kaiser; Nicole Ernstmann; Holger Pfaff; Christoph Ostgathe; Raymond Voltz
Journal:  J Palliat Med       Date:  2014-02-14       Impact factor: 2.947

7.  Detection of altered hippocampal morphology in multiple sclerosis-associated depression using automated surface mesh modeling.

Authors:  Stefan M Gold; Mary-Frances O'Connor; Raja Gill; Kyle C Kern; Yonggang Shi; Roland G Henry; Daniel Pelletier; David C Mohr; Nancy L Sicotte
Journal:  Hum Brain Mapp       Date:  2012-07-30       Impact factor: 5.038

8.  [Pharmaceutical prescription for multiple sclerosis : evaluation of pharmaceutical consumption at private health insurance].

Authors:  F Wild
Journal:  Nervenarzt       Date:  2013-02       Impact factor: 1.214

Review 9.  Advances in multiple sclerosis research in 2009.

Authors:  Stefan Nessler; Wolfgang Brück
Journal:  J Neurol       Date:  2010-08-06       Impact factor: 4.849

10.  [Importance and treatment of spasticity in multiple sclerosis : results of the MOVE 1 study].

Authors:  T Henze; P Flachenecker; U K Zettl
Journal:  Nervenarzt       Date:  2013-02       Impact factor: 1.214
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