Literature DB >> 19576265

Coordinated multidisciplinary care for Huntington's disease. An outpatient department.

Ruth B Veenhuizen1, Aad Tibben.   

Abstract

Huntington's disease is characterised by a complex set of motor, neuropsychologic and psychiatric symptoms which start slowly and progress over many years to a state of complete dependency. The symptomatic treatment during the ambulatory years is divers. In the northern part of the Netherlands coordinated multidisciplinary care is offered to patients diagnosed with Huntington's disease. A team of a neurologist, psychologist, occupational therapist, speech and language therapist, social worker and nursing home doctor monitors the patient and companion on a half-year basis and provide them with a plan of care. A case manager coordinates the plan of care in the dwelling place of the patient. In this article this type of care is outlined and illustrated with case histories.

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Mesh:

Year:  2009        PMID: 19576265     DOI: 10.1016/j.brainresbull.2009.06.017

Source DB:  PubMed          Journal:  Brain Res Bull        ISSN: 0361-9230            Impact factor:   4.077


  15 in total

Review 1.  Therapy in Huntington's disease: where are we?

Authors:  Martha A Nance
Journal:  Curr Neurol Neurosci Rep       Date:  2012-08       Impact factor: 5.081

Review 2.  The Promise of Telemedicine for Movement Disorders: an Interdisciplinary Approach.

Authors:  H Ben-Pazi; P Browne; P Chan; E Cubo; M Guttman; A Hassan; J Hatcher-Martin; Z Mari; E Moukheiber; N U Okubadejo; A Shalash
Journal:  Curr Neurol Neurosci Rep       Date:  2018-04-13       Impact factor: 5.081

3.  Further evidence of reliability and validity of the Huntington's disease quality of life battery for carers: Italian and French translations.

Authors:  Aimee Aubeeluck; Julie Dorey; Ferdinando Squitieri; Emilie Clay; Edward J N Stupple; Annunziata De Nicola; Heather Buchanan; Tiziana Martino; Mondher Toumi
Journal:  Qual Life Res       Date:  2012-07-21       Impact factor: 4.147

4.  'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients.

Authors:  Aimee Victoria Aubeeluck; Heather Buchanan; Edward J N Stupple
Journal:  Qual Life Res       Date:  2011-11-13       Impact factor: 4.147

5.  Coordinated multidisciplinary care for ambulatory Huntington's disease patients. Evaluation of 18 months of implementation.

Authors:  Ruth B Veenhuizen; Branda Kootstra; Wilma Vink; Janneke Posthumus; Pleuntje van Bekkum; Margriet Zijlstra; Jelleke Dokter
Journal:  Orphanet J Rare Dis       Date:  2011-11-18       Impact factor: 4.123

6.  Huntington's disease from the patient, caregiver and physician's perspectives: three sides of the same coin?

Authors:  Krzysztof Banaszkiewicz; Emilia J Sitek; Monika Rudzińska; Witold Sołtan; Jarosław Sławek; Andrzej Szczudlik
Journal:  J Neural Transm (Vienna)       Date:  2012-03-08       Impact factor: 3.575

7.  Utilisation of Healthcare and Associated Services in Huntington's disease: a data mining study.

Authors:  Monica Busse; Dr Hasan Al-Madfai; Joyce Kenkre; G Bernhard Landwehrmeyer; Annarita Bentivoglio; Anne Rosser
Journal:  PLoS Curr       Date:  2011-01-21

8.  Unmet needs for healthcare and social support services in patients with Huntington's disease: a cross-sectional population-based study.

Authors:  Marleen R van Walsem; Emilie I Howe; Kristin Iversen; Jan C Frich; Nada Andelic
Journal:  Orphanet J Rare Dis       Date:  2015-09-28       Impact factor: 4.123

9.  Health Care Delivery Practices in Huntington's Disease Specialty Clinics: An International Survey.

Authors:  Jan C Frich; Daniela Rae; Richard Roxburgh; Zofia H Miedzybrodzka; Mary Edmondson; Erika Bjorklund Pope; LaVonne Goodman; Monica S Haddad; Joe Giuliano; Eugene C Nelson; Mark Guttman; Martha Nance
Journal:  J Huntingtons Dis       Date:  2016-06-27

10.  Assistive Technology for Cognition and Health-related Quality of Life in Huntington's Disease.

Authors:  Marleen R van Walsem; Emilie I Howe; Jan C Frich; Nada Andelic
Journal:  J Huntingtons Dis       Date:  2016-10-01
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