Literature DB >> 19541545

Racial differences in patient expectations prior to resective epilepsy surgery.

Christine Bower Baca1, Eric M Cheng, Susan S Spencer, Stefanie Vassar, Barbara G Vickrey.   

Abstract

We assessed the nature and frequency of preoperative expectations among patients with refractory epilepsy who were enrolled in a seven-center observational study of epilepsy surgery outcomes. At enrollment, patients responded to open-ended questions about expectations for surgical outcome. With the use of an iterative cutting-and-sorting technique, expectation themes were identified and rank-ordered. Associations of expectations with race/ethnicity were evaluated. Among 391 respondents, the two most frequently endorsed expectations (any rank order) were driving (62%) and job/school (43%). When only the most important (first-ranked) expectation was analyzed, driving (53%) and cognition (17%) were most frequently offered. Nonwhites endorsed job/school and cognition more frequently and driving less frequently than whites (all P0.05), whether expectations of any order or only first-ranked expectations were included. Elucidating the reason for these differences can aid in the clinical decision-making process for resective surgery and potentially address disparities in its utilization.

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Year:  2009        PMID: 19541545      PMCID: PMC2746976          DOI: 10.1016/j.yebeh.2009.05.010

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  8 in total

1.  The multicenter study of epilepsy surgery: recruitment and selection for surgery.

Authors:  Anne T Berg; Barbara G Vickrey; John T Langfitt; Michael R Sperling; Thaddeus S Walczak; Shlomo Shinnar; Carl W Bazil; Steven V Pacia; Susan S Spencer
Journal:  Epilepsia       Date:  2003-11       Impact factor: 5.864

2.  Patient expectations of temporal lobe surgery.

Authors:  S J Wilson; M M Saling; P Kincade; P F Bladin
Journal:  Epilepsia       Date:  1998-02       Impact factor: 5.864

3.  A randomized, controlled trial of surgery for temporal-lobe epilepsy.

Authors:  S Wiebe; W T Blume; J P Girvin; M Eliasziw
Journal:  N Engl J Med       Date:  2001-08-02       Impact factor: 91.245

4.  Patients' aims for epilepsy surgery: desires beyond seizure freedom.

Authors:  D C Taylor; D McMacKin; H Staunton; N Delanty; J Phillips
Journal:  Epilepsia       Date:  2001-05       Impact factor: 5.864

5.  Patient attitudes about treatments for intractable epilepsy.

Authors:  Kari Swarztrauber; Sandra Dewar; Jerome Engel
Journal:  Epilepsy Behav       Date:  2003-02       Impact factor: 2.937

6.  Racial disparities in the use of surgical treatment for intractable temporal lobe epilepsy.

Authors:  J G Burneo; L Black; R C Knowlton; E Faught; R Morawetz; R I Kuzniecky
Journal:  Neurology       Date:  2005-01-11       Impact factor: 9.910

7.  Racial variations in the rates of carotid angiography and endarterectomy in patients with stroke and transient ischemic attack.

Authors:  E Z Oddone; R D Horner; M E Monger; D B Matchar
Journal:  Arch Intern Med       Date:  1993-12-27

8.  Initial outcomes in the Multicenter Study of Epilepsy Surgery.

Authors:  S S Spencer; A T Berg; B G Vickrey; M R Sperling; C W Bazil; S Shinnar; J T Langfitt; T S Walczak; S V Pacia; N Ebrahimi; D Frobish
Journal:  Neurology       Date:  2003-12-23       Impact factor: 9.910

  8 in total
  5 in total

1.  Risk disclosure and preclinical Alzheimer's disease clinical trial enrollment.

Authors:  Joshua D Grill; Jason Karlawish; David Elashoff; Barbara G Vickrey
Journal:  Alzheimers Dement       Date:  2012-11-08       Impact factor: 21.566

2.  Assessing preoperative hope and expectations related to functional neurosurgery: a new questionnaire.

Authors:  Michalina Radomska; João Flores Alves Dos Santos; Kerstin Weber; Marc Baertschi; Pierre R Burkhard; François Herrmann; Sanaâ Belayachi; Nicolas Favez; Alessandra Canuto
Journal:  BMC Psychol       Date:  2022-03-04

Review 3.  Underutilization of epilepsy surgery: Part I: A scoping review of barriers.

Authors:  Debopam Samanta; Adam P Ostendorf; Erin Willis; Rani Singh; Satyanarayana Gedela; Ravindra Arya; M Scott Perry
Journal:  Epilepsy Behav       Date:  2021-02-18       Impact factor: 2.937

Review 4.  Would people living with epilepsy benefit from palliative care?

Authors:  Benzi M Kluger; Cornelia Drees; Thomas R Wodushek; Lauren Frey; Laura Strom; Mesha-Gay Brown; Jacquelyn L Bainbridge; Sarah N Fischer; Archana Shrestha; Mark Spitz
Journal:  Epilepsy Behav       Date:  2020-11-24       Impact factor: 3.337

5.  Long-Term Electroclinical and Employment Follow up in Temporal Lobe Epilepsy Surgery. A Cuban Comprehensive Epilepsy Surgery Program.

Authors:  Lilia Maria Morales Chacón; Ivan Garcia Maeso; Margarita M Baez Martin; Juan E Bender Del Busto; María Eugenia García Navarro; Nelson Quintanal Cordero; Bárbara Estupiñan Díaz; Lourdes Lorigados Pedre; Ricardo Valdés Yerena; Judith Gonzalez; Randy Garbey Fernandez; Abel Sánchez Coroneux
Journal:  Behav Sci (Basel)       Date:  2018-02-01
  5 in total

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