OBJECTIVE: To determine the quality and content of English language Internet information about juvenile idiopathic arthritis (JIA) from the perspectives of consumers and healthcare professionals. METHODS: Key words relevant to JIA were searched across 10 search engines. Quality of information was appraised independently by 2 health professionals, 1 young adult with JIA, and a parent using the DISCERN tool. Concordance of the website content (i.e., accuracy and completeness) with available evidence about the management of JIA was determined. Readability was determined using Flesch-Kincaid grade level and Reading Ease Score. RESULTS: Out of the 3000 Web pages accessed, only 58 unique sites met the inclusion criteria. Of these sites only 16 had DISCERN scores above 50% (indicating fair quality). These sites were then rated by consumers. Most sites targeted parents and none were specifically developed for youth with JIA. The overall quality of website information was fair, with a mean DISCERN quality rating score of 48.92 out of 75 (+/- 6.56, range 34.0-59.5). Overall completeness of sites was 9.07 out of 16 (+/- 2.28, range 5.25-13.25) and accuracy was 3.09 out of 4 (+/- 0.86, range 2-4), indicating a moderate level of accuracy. Average Flesch-Kincaid grade level and Reading Ease Score were 11.48 (+/- 0.74, range 10.1-12.0) and 36.36 (+/- 10.86, range 6.30-48.1), respectively, indicating that the material was difficult to read. CONCLUSION: Our study highlights the paucity of high quality Internet health information at an appropriate reading level for youth with JIA and their parents.
OBJECTIVE: To determine the quality and content of English language Internet information about juvenile idiopathic arthritis (JIA) from the perspectives of consumers and healthcare professionals. METHODS: Key words relevant to JIA were searched across 10 search engines. Quality of information was appraised independently by 2 health professionals, 1 young adult with JIA, and a parent using the DISCERN tool. Concordance of the website content (i.e., accuracy and completeness) with available evidence about the management of JIA was determined. Readability was determined using Flesch-Kincaid grade level and Reading Ease Score. RESULTS: Out of the 3000 Web pages accessed, only 58 unique sites met the inclusion criteria. Of these sites only 16 had DISCERN scores above 50% (indicating fair quality). These sites were then rated by consumers. Most sites targeted parents and none were specifically developed for youth with JIA. The overall quality of website information was fair, with a mean DISCERN quality rating score of 48.92 out of 75 (+/- 6.56, range 34.0-59.5). Overall completeness of sites was 9.07 out of 16 (+/- 2.28, range 5.25-13.25) and accuracy was 3.09 out of 4 (+/- 0.86, range 2-4), indicating a moderate level of accuracy. Average Flesch-Kincaid grade level and Reading Ease Score were 11.48 (+/- 0.74, range 10.1-12.0) and 36.36 (+/- 10.86, range 6.30-48.1), respectively, indicating that the material was difficult to read. CONCLUSION: Our study highlights the paucity of high quality Internet health information at an appropriate reading level for youth with JIA and their parents.
Authors: Jennifer Stinson; Patrick McGrath; Ellen Hodnett; Brian Feldman; Ciaran Duffy; Adam Huber; Lori Tucker; Ross Hetherington; Shirley Tse; Lynn Spiegel; Sarah Campillo; Navreet Gill; Meghan White Journal: J Med Internet Res Date: 2010-07-29 Impact factor: 5.428
Authors: Mark Connelly; Laura E Schanberg; Stacy Ardoin; Michael Blakley; Ruy Carrasco; Peter Chira; Kristen Hayward; Maria Ibarra; Yukiko Kimura; Daniel J Kingsbury; Marisa S Klein-Gitelman; Erica Lawson; Jennifer Stinson Journal: J Pediatr Psychol Date: 2019-04-01
Authors: Wendy Hopmans; Naomi E Verstegen; Cornelis J A Haasbeek; Olga C Damman; Ben J Slotman; Danielle R M Timmermans; Suresh Senan Journal: J Radiosurg SBRT Date: 2012
Authors: Jennifer N Stinson; Chitra Lalloo; Amos S Hundert; Sarah Campillo; Tania Cellucci; Paul Dancey; Ciaran Duffy; Janet Ellsworth; Brian M Feldman; Adam M Huber; Nicole Johnson; Geert't Jong; Kiem Oen; Alan M Rosenberg; Natalie J Shiff; Lynn Spiegel; Shirley M L Tse; Lori Tucker; Joseph Charles Victor Journal: J Med Internet Res Date: 2020-07-29 Impact factor: 5.428