Literature DB >> 19502907

Management of patients with rheumatoid arthritis in Latin America: a consensus position paper from Pan-American League of Associations of Rheumatology and Grupo Latino Americano De Estudio De Artritis Reumatoide.

Loreto Massardo1, María E Suárez-Almazor, Mario H Cardiel, Arnulfo Nava, Roger A Levy, Ieda Laurindo, Enrique R Soriano, Eduardo Acevedo-Vázquez, Alberto Millán, Carlos Pineda-Villaseñor, Claudio Galarza-Maldonado, Carlo V Caballero-Uribe, Rolando Espinosa-Morales, Bernardo A Pons-Estel.   

Abstract

OBJECTIVE: A consensus meeting of representatives of 18 Latin-American and Caribbean countries gathered in Reñaca, Chile, for 2 days to identify problems and provide recommendations for the care of patients with rheumatoid arthritis (RA) in Latin America, a region where poverty and other health priorities make the efforts to provide effective and high quality care difficult. This report includes recommendations for health professionals, patients, and health authorities in Latin America, with an emphasis on education and therapeutic issues.
METHODS: Fifty-one rheumatologists (list available only online on the JCR website) from 18 Latin-American and Caribbean countries with a special interest in RA participated in the consensus meeting. Participants were experts identified and appointed by the National Societies of Rheumatology affiliated with the Pan-American League of Associations for Rheumatology (PANLAR) and by the Grupo Latino Americano De Estudio de Artritis Reumatoide (GLADAR)-an independent group of Latin American rheumatologist researchers were also invited to the meeting. Eight topics were identified as priorities: patient, community and allied health professional education, health policy and decision making, programs for early detection and appropriate treatment of RA, role of classic disease modifying antirheumatic drugs (DMARDs), role of biologic therapy, and drug safety surveillance. To reach consensus, a survey with questions relevant to the topic of interest was sent to all participants before the meeting. During a 2 day meeting, the answers of the survey were reviewed and discussed by each group, with final recommendations on action items.
RESULTS: The specific topic of the survey was answered by 86% of the participants and 68% of them answered the entire survey. It was agreed that RA and rheumatic diseases which are currently not but should be public health priorities in Latin America, because of their prevalence and impact on quality of life.
CONCLUSIONS: Strategic areas identified as priorities for our region included: early diagnosis and access to care by multidisciplinary teams, creation of databases to identify infections with the use of biologic agents in RA which are relevant to Latin America, and overall efforts to improve the care of RA patients in accordance with international standards. Implementation of educational programs aimed to improve self-management for patients with RA was also considered crucial.

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Year:  2009        PMID: 19502907     DOI: 10.1097/RHU.0b013e3181a90cd8

Source DB:  PubMed          Journal:  J Clin Rheumatol        ISSN: 1076-1608            Impact factor:   3.517


  15 in total

1.  Rheumatoid arthritis in the developing world: stepping up to the challenge.

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2.  GALECTIN-8 Is a Neuroprotective Factor in the Brain that Can Be Neutralized by Human Autoantibodies.

Authors:  Evelyn Pardo; Francisca Barake; Juan A Godoy; Claudia Oyanadel; Sofía Espinoza; Claudia Metz; Claudio Retamal; Loreto Massardo; Cheril Tapia-Rojas; Nibaldo C Inestrosa; Andrea Soza; Alfonso González
Journal:  Mol Neurobiol       Date:  2019-05-22       Impact factor: 5.590

3.  Systematic and progressive implementation of the centers of excellence for rheumatoid arthritis: a methodological proposal.

Authors:  Pedro Santos-Moreno; Carlo V Caballero-Uribe; Maria Loreto Massardo; Claudio Galarza Maldonado; Enrique R Soriano; Carlos Pineda; Mario Cardiel; Juan Alberto Benavides; Paula Andrea Beltrán
Journal:  Clin Rheumatol       Date:  2017-08-24       Impact factor: 2.980

4.  Challenges and opportunities for diagnosis and treatment of rheumatoid arthritis in Latin America.

Authors:  Carlos Pineda; Carlo V Caballero-Uribe
Journal:  Clin Rheumatol       Date:  2015-07-17       Impact factor: 2.980

5.  Educational website incorporating rheumatoid arthritis patient needs for Latin American and Caribbean countries.

Authors:  Francisca Massone; María Eugenia Martínez; Virginia Pascual-Ramos; Rosana Quintana; Lilith Stange; Carlo V Caballero-Uribe; Leandro Ferreyra-Garrot; María Kourilovitch; Margarita Duarte; Carlos Baumert; Cristián Vergara; Néstor Gareca; Cecilia Rodríguez; Vianna Khoury; Mariela Medina; Mario H Cardiel; Loreto Massardo
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6.  Recommendations and the state of the evidence for physical activity interventions for adults with rheumatoid arthritis: 2007 to present.

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Journal:  Rheumatol Int       Date:  2021-10-05       Impact factor: 2.631

Review 9.  Education for patients with rheumatoid arthritis in Latin America and the Caribbean.

Authors:  Vianna Khoury; Maria Kourilovitch; Loreto Massardo
Journal:  Clin Rheumatol       Date:  2015-07-17       Impact factor: 2.980

10.  REAL-PANLAR Project for the Implementation and Accreditation of Centers of Excellence in Rheumatoid Arthritis Throughout Latin America: A Consensus Position Paper From REAL-PANLAR Group on Improvement of Rheumatoid Arthritis Care in Latin America Establishing Centers of Excellence.

Authors:  Pedro Santos-Moreno; Claudio Galarza-Maldonado; Carlo V Caballero-Uribe; Mario H Cardiel; Loreto Massardo; Enrique R Soriano; José Aguilar Olano; José F Díaz Coto; Gabriel R Durán Pozo; Inês Guimarães da Silveira; Vianna J Khoury de Castrejón; Leticia Lino Pérez; Carlos A Méndez Justo; Rubén A Montufar Guardado; Rafael Muños; Sergio Murillo Elvir; Ernesto R Paredes Domínguez; Bernardo Pons-Estel; Carlos R Ríos Acosta; Sayonara Sandino; Carlos E Toro Gutiérrez; Sol María Villegas de Morales; Carlos Pineda
Journal:  J Clin Rheumatol       Date:  2015-06       Impact factor: 3.517

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