Literature DB >> 19487180

Determinants of participation in HIV clinical trials: the importance of patients' trust in their provider.

Elizabeth R Volkmann1, Deon Claiborne, Judith S Currier.   

Abstract

PURPOSE: To investigate the factors that contribute to willingness to participate in HIV clinical trials and to determine the impact of a brief intervention on willingness to participate.
METHODS: 115 consecutive outpatients receiving HIV primary care participated in this prospective study. Each patient completed a questionnaire about clinical trials and met with a research assistant who discussed the purpose of clinical trials. After the educational intervention, participants completed a second questionnaire and responses from the two surveys were compared.
RESULTS: 115 patients were enrolled (56% had previously enrolled in a clinical trial; 50% of whom were currently enrolled in a trial); 92% would consider participating in a future clinical trial. Increased patient trust in the provider was associated with increased willingness to participate in a trial. After the intervention, 94% indicated that they would be willing to be contacted about a clinical trial for which they may be eligible and 85% preferred to be contacted by their primary physician.
CONCLUSIONS: Patients' trust in their provider may predict willingness to participate in clinical trial. Providing HIV-infected patients and their providers with information about HIV clinical trials at the site where they receive care may increase participation rates in HIV clinical trials.

Entities:  

Mesh:

Year:  2009        PMID: 19487180     DOI: 10.1310/hct1002-104

Source DB:  PubMed          Journal:  HIV Clin Trials        ISSN: 1528-4336


  13 in total

1.  Successful recruitment of a multi-site international randomized placebo-controlled trial in people with HIV with attention to diversity of race and ethnicity: critical role of central coordination.

Authors:  Kathleen V Fitch; Emma M Kileel; Sara E Looby; Markella V Zanni; Laura R Sanchez; Carl J Fichtenbaum; Edgar T Overton; Carlos Malvestutto; Judith A Aberg; Karin L Klingman; Beverly Alston-Smith; Judith Lavelle; Anne Rancourt; Sharlaa Badal-Faesen; Sandra Wagner Cardoso; Anchalee Avihingsanon; Sandesh Patil; Craig A Sponseller; Kathleen Melbourne; Heather J Ribaudo; Katharine Cooper-Arnold; Patrice Desvigne-Nickens; Udo Hoffmann; Pamela S Douglas; Steven K Grinspoon
Journal:  HIV Res Clin Pract       Date:  2020-03-11

2.  Follow YOUR Heart: development of an evidence-based campaign empowering older women with HIV to participate in a large-scale cardiovascular disease prevention trial.

Authors:  Markella V Zanni; Kathleen Fitch; Corinne Rivard; Laura Sanchez; Pamela S Douglas; Steven Grinspoon; Laura Smeaton; Judith S Currier; Sara E Looby
Journal:  HIV Clin Trials       Date:  2017-03

3.  Increasing and supporting the participation of persons of color living with HIV/AIDS in AIDS clinical trials.

Authors:  Marya Viorst Gwadz; Pablo Colon; Amanda S Ritchie; Noelle R Leonard; Charles M Cleland; Marion Riedel; DeShannon Bowens; Angela D Banfield; Patricia Chang; Robert Quiles; Donna Mildvan
Journal:  Curr HIV/AIDS Rep       Date:  2010-11       Impact factor: 5.071

4.  Development and Validation of the Biomedical Research Trust Scale (BRTS) in English and Spanish.

Authors:  Sharon H Baik; Mariana Arevalo; Clement Gwede; Cathy D Meade; Paul B Jacobsen; Gwendolyn P Quinn; Kristen J Wells
Journal:  J Empir Res Hum Res Ethics       Date:  2016-09-21       Impact factor: 1.742

5.  Development of a multilevel intervention to increase HIV clinical trial participation among rural minorities.

Authors:  Giselle Corbie-Smith; Ebun Odeneye; Bahby Banks; Margaret Shandor Miles; Malika Roman Isler
Journal:  Health Educ Behav       Date:  2012-09-18

6.  Factors associated with past research participation among low-income persons living with HIV.

Authors:  Jacquelyn Slomka; Georgios Kypriotakis; John Atkinson; Pamela M Diamond; Mark L Williams; Damon J Vidrine; Roberto Andrade; Roberto Arduino
Journal:  AIDS Patient Care STDS       Date:  2012-06-11       Impact factor: 5.078

7.  Essential components of effective HIV care: a policy paper of the HIV Medicine Association of the Infectious Diseases Society of America and the Ryan White Medical Providers Coalition.

Authors:  Joel E Gallant; Adaora A Adimora; J Kevin Carmichael; Michael Horberg; Mari Kitahata; E Byrd Quinlivan; James L Raper; Peter Selwyn; Steven Bruce Williams
Journal:  Clin Infect Dis       Date:  2011-10-20       Impact factor: 9.079

8.  The Motivations and Experiences of Young Women in a Microbicide Trial in the USA and Puerto Rico.

Authors:  Rebecca Giguere; Gregory D Zimet; Jessica A Kahn; Curtis Dolezal; Cheng-Shiun Leu; Marina Mabragaña; Ian McGowan; Alex Carballo-Diéguez
Journal:  World J AIDS       Date:  2013-09

9.  Designing a sexual network study of men who have sex with other men: exploring racial and ethnic preferences in study design and methods.

Authors:  Katie B Biello; Jowanna Malone; Kenneth H Mayer; Angela Robertson Bazzi; Matthew J Mimiaga
Journal:  AIDS Care       Date:  2016-06-17

10.  Racial/ethnic differences in trust in health care: HIV conspiracy beliefs and vaccine research participation.

Authors:  Ryan P Westergaard; Mary Catherine Beach; Somnath Saha; Elizabeth A Jacobs
Journal:  J Gen Intern Med       Date:  2014-01       Impact factor: 5.128

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