Andrew Long1, Anne Hesketh, Audrey Bowen. 1. School of Healthcare, University of Leeds, Rm 3.10, Baines Wing, Leeds LS2 9JT, UK. a.f.long@leeds.ac.uk
Abstract
OBJECTIVE: To validate a measure of the carer's perspective of a stroke survivor's communication in everyday life. DESIGN: Cross-sectional, interview-based, psychometric study. SETTING: A community sample from the northwest of England, UK. SUBJECTS: Fifty-eight carers and 58 stroke survivors with communication problems (aphasia and/or dysarthria) following a stroke within the previous 4-12 months. INTERVENTIONS: Administration of the 20-item Carer Communication Outcome after Stroke (Carer COAST) scale, on two occasions, within a two-week period; the 15-item Carers of Older People in Europe (COPE) Index, the patient Communication Outcome after Stroke (COAST) Scale, and collection of demographic and other data relating to the stroke survivor's disability (Barthel Index), degree of aphasia (Frenchay Aphasia Screening Test) and hospital diagnosis of aphasia/dysarthria. MAIN MEASURES: Acceptability (missing values), reliability (internal consistency and test-retest reliability) and construct validity. RESULTS: Carer COAST showed good acceptability (no incomplete items, sample spread 24-100%), internal consistency and test-retest reliability for the scale (a = 0.94; intraclass correlation (ICC) = 0.91) and its subscales (a = 0.78-0.90; ICC = 0.75-0.87), and indicative evidence on construct validity (Carer COAST, COPE subscales and COAST). There were statistically significant correlations between the communication items of Carer COAST and the negative impact of caregiving (r(s) = -0.29) and the financial difficulties of caregiving (r(s) = -0.38). CONCLUSIONS: The Carer COAST scale has considerable potential as a reliable and valid measure of the carer's perspective on the communication effectiveness of stroke survivors. Intercorrelations with COPE provide specific evidence of the impact of caring for a person with communication difficulties following a stroke.
OBJECTIVE: To validate a measure of the carer's perspective of a stroke survivor's communication in everyday life. DESIGN: Cross-sectional, interview-based, psychometric study. SETTING: A community sample from the northwest of England, UK. SUBJECTS: Fifty-eight carers and 58 stroke survivors with communication problems (aphasia and/or dysarthria) following a stroke within the previous 4-12 months. INTERVENTIONS: Administration of the 20-item Carer Communication Outcome after Stroke (Carer COAST) scale, on two occasions, within a two-week period; the 15-item Carers of Older People in Europe (COPE) Index, the patient Communication Outcome after Stroke (COAST) Scale, and collection of demographic and other data relating to the stroke survivor's disability (Barthel Index), degree of aphasia (Frenchay Aphasia Screening Test) and hospital diagnosis of aphasia/dysarthria. MAIN MEASURES: Acceptability (missing values), reliability (internal consistency and test-retest reliability) and construct validity. RESULTS: Carer COAST showed good acceptability (no incomplete items, sample spread 24-100%), internal consistency and test-retest reliability for the scale (a = 0.94; intraclass correlation (ICC) = 0.91) and its subscales (a = 0.78-0.90; ICC = 0.75-0.87), and indicative evidence on construct validity (Carer COAST, COPE subscales and COAST). There were statistically significant correlations between the communication items of Carer COAST and the negative impact of caregiving (r(s) = -0.29) and the financial difficulties of caregiving (r(s) = -0.38). CONCLUSIONS: The Carer COAST scale has considerable potential as a reliable and valid measure of the carer's perspective on the communication effectiveness of stroke survivors. Intercorrelations with COPE provide specific evidence of the impact of caring for a person with communication difficulties following a stroke.
Authors: Patrick J Doyle; William D Hula; Shannon N Austermann Hula; Clement A Stone; Julie L Wambaugh; Katherine B Ross; James G Schumacher Journal: Qual Life Res Date: 2012-06-24 Impact factor: 4.147
Authors: Rebecca Palmer; Munyaradzi Dimairo; Nicholas Latimer; Elizabeth Cross; Marian Brady; Pam Enderby; Audrey Bowen; Steven Julious; Madeleine Harrison; Abualbishr Alshreef; Ellen Bradley; Arjun Bhadhuri; Tim Chater; Helen Hughes; Helen Witts; Esther Herbert; Cindy Cooper Journal: Health Technol Assess Date: 2020-04 Impact factor: 4.014
Authors: Audrey Bowen; Anne Hesketh; Emma Patchick; Alys Young; Linda Davies; Andy Vail; Andrew F Long; Caroline Watkins; Mo Wilkinson; Gill Pearl; Matthew A Lambon Ralph; Pippa Tyrrell Journal: BMJ Date: 2012-07-13