Literature DB >> 19479283

End-of-life research on patients' attitudes in Germany: a feasibility study.

R Voltz1, M Galushko, J Walisko, H Pfaff, F Nauck, L Radbruch, C Ostgathe.   

Abstract

INTRODUCTION: So far, hardly any experience exists whether end-of-life research on patients' attitudes towards hastened death in Germany is feasible and how it is perceived by the patients.
MATERIALS AND METHODS: During the initial phase of a validation study of the German version of the Schedule of Attitudes towards Hastened Death, we documented reasons for non-inclusion. RESULTS AND DISCUSSION: Of 124 patients seen on the participating palliative care units, 18 (15%) were finally included in the study. Reasons for non-inclusion were mainly due to the clinical status of the patients; the German specific history of involuntary euthanasia during the Nazi regime did not prevent patients to participate.
CONCLUSION: We conclude that end-of-life research in Germany is indeed feasible, however, faces difficulties similar to the international experience.

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Year:  2009        PMID: 19479283     DOI: 10.1007/s00520-009-0654-y

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  11 in total

1.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician.

Authors:  M F Folstein; S E Folstein; P R McHugh
Journal:  J Psychiatr Res       Date:  1975-11       Impact factor: 4.791

2.  Challenges in palliative care research; recruitment, attrition and compliance: experience from a randomized controlled trial.

Authors:  M S Jordhøy; S Kaasa; P Fayers; T Ovreness; G Underland; M Ahlner-Elmqvist
Journal:  Palliat Med       Date:  1999-07       Impact factor: 4.762

Review 3.  A systematic review of satisfaction with care at the end of life.

Authors:  Sydney Morss Dy; Lisa R Shugarman; Karl A Lorenz; Richard A Mularski; Joanne Lynn
Journal:  J Am Geriatr Soc       Date:  2007-11-20       Impact factor: 5.562

4.  The schedule of attitudes toward hastened death: Measuring desire for death in terminally ill cancer patients.

Authors:  B Rosenfeld; W Breitbart; M Galietta; M Kaim; J Funesti-Esch; H Pessin; C J Nelson; R Brescia
Journal:  Cancer       Date:  2000-06-15       Impact factor: 6.860

Review 5.  Recruitment experience in clinical trials: literature summary and annotated bibliography.

Authors:  D B Hunninghake; C A Darby; J L Probstfield
Journal:  Control Clin Trials       Date:  1987-12

6.  Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer.

Authors:  W Breitbart; B Rosenfeld; H Pessin; M Kaim; J Funesti-Esch; M Galietta; C J Nelson; R Brescia
Journal:  JAMA       Date:  2000-12-13       Impact factor: 56.272

7.  The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care.

Authors:  Mogens Groenvold; Morten Aa Petersen; Neil K Aaronson; Juan I Arraras; Jane M Blazeby; Andrew Bottomley; Peter M Fayers; Alexander de Graeff; Eva Hammerlid; Stein Kaasa; Mirjam A G Sprangers; Jakob B Bjorner
Journal:  Eur J Cancer       Date:  2005-09-12       Impact factor: 9.162

Review 8.  Challenges to and lessons learned from conducting palliative care research.

Authors:  Ann M O'Mara; Diane St Germain; Betty Ferrell; Tami Bornemann
Journal:  J Pain Symptom Manage       Date:  2008-08-19       Impact factor: 3.612

9.  "I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care.

Authors:  Marjolein Gysels; Cathy Shipman; Irene J Higginson
Journal:  J Pain Symptom Manage       Date:  2008-02-04       Impact factor: 3.612

10.  Desire for euthanasia or physician-assisted suicide in palliative cancer care.

Authors:  Keith G Wilson; Harvey Max Chochinov; Christine J McPherson; Merika Graham Skirko; Pierre Allard; Srini Chary; Pierre R Gagnon; Karen Macmillan; Marina De Luca; Fiona O'Shea; David Kuhl; Robin L Fainsinger; Andrea M Karam; Jennifer J Clinch
Journal:  Health Psychol       Date:  2007-05       Impact factor: 4.267

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  5 in total

1.  Issues of "life" and "death" for patients receiving palliative care--comments when confronted with a research tool.

Authors:  Raymond Voltz; Maren Galushko; Johanna Walisko; Ute Karbach; Nicole Ernstmann; Holger Pfaff; Friedemann Nauck; Lukas Radbruch; Christoph Ostgathe
Journal:  Support Care Cancer       Date:  2010-04-28       Impact factor: 3.603

Review 2.  [A wish to hasten death : what is behind it].

Authors:  S Stiel; F Elsner; M Pestinger; L Radbruch
Journal:  Schmerz       Date:  2010-04       Impact factor: 1.107

3.  Glioblastoma multiforme from diagnosis to death: a prospective, hospital-based, cohort, pilot feasibility study of patient reported symptoms and needs.

Authors:  Heidrun Golla; Maryam Ale Ahmad; Maren Galushko; Jürgen Hampl; Mohammad Maarouf; Michael Schroeter; Ulrich Herrlinger; Martin Hellmich; Raymond Voltz
Journal:  Support Care Cancer       Date:  2014-08-19       Impact factor: 3.603

Review 4.  Assessment of the wish to hasten death in patients with advanced disease: A systematic review of measurement instruments.

Authors:  Mercedes Bellido-Pérez; Cristina Monforte-Royo; Joaquín Tomás-Sábado; Josep Porta-Sales; Albert Balaguer
Journal:  Palliat Med       Date:  2016-10-22       Impact factor: 4.762

5.  The DEsire to DIe in Palliative care: Optimization of Management (DEDIPOM) - a study protocol.

Authors:  Kerstin Kremeike; Maren Galushko; Gerrit Frerich; Vanessa Romotzky; Stefanie Hamacher; Gary Rodin; Holger Pfaff; Raymond Voltz
Journal:  BMC Palliat Care       Date:  2018-02-20       Impact factor: 3.234

  5 in total

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