Literature DB >> 19467165

Cystic fibrosis foundation: achieving the mission.

Bruce C Marshall1, Chris M Penland, Leslie Hazle, Melissa Ashlock, Diana Wetmore, Preston W Campbell, Robert J Beall.   

Abstract

The Cystic Fibrosis Foundation is a voluntary, nonprofit, health organization whose mission is "to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease." While substantial progress has been made, as evidenced by a marked increase in the median predicted age of survival, much work remains to be done. Ongoing medical programs and activities of the Cystic Fibrosis Foundation, which span basic science, drug discovery, drug development, clinical care, patient education, and advocacy, will be described in this article. The key role of respiratory therapists in the cystic fibrosis community will be highlighted.

Entities:  

Mesh:

Year:  2009        PMID: 19467165     DOI: 10.4187/002013209790983223

Source DB:  PubMed          Journal:  Respir Care        ISSN: 0020-1324            Impact factor:   2.258


  8 in total

1.  Educating the adolescent and young adult with cystic fibrosis about their reproductive risks and options.

Authors:  Milner Owens Staub; Kevin Leon; Nathaniel H Robin
Journal:  Chest       Date:  2013-02-01       Impact factor: 9.410

2.  Building quality indicators to improve care for adults with congenital heart disease.

Authors:  Michelle Gurvitz; Ariane Marelli; Rita Mangione-Smith; Kathy Jenkins
Journal:  J Am Coll Cardiol       Date:  2013-09-27       Impact factor: 24.094

3.  Progress in cystic fibrosis and the CF Therapeutics Development Network.

Authors:  Steven M Rowe; Drucy S Borowitz; Jane L Burns; John P Clancy; Scott H Donaldson; George Retsch-Bogart; Scott D Sagel; Bonnie W Ramsey
Journal:  Thorax       Date:  2012-10       Impact factor: 9.139

4.  Using ClinicalTrials.gov to understand the state of clinical research in pulmonary, critical care, and sleep medicine.

Authors:  Jamie L Todd; Kyle R White; Karen Chiswell; Asba Tasneem; Scott M Palmer
Journal:  Ann Am Thorac Soc       Date:  2013-10

5.  Guidelines for the Development of Comprehensive Care Centers for Congenital Adrenal Hyperplasia: Guidance from the CARES Foundation Initiative.

Authors:  Richard J Auchus; Selma Feldman Witchel; Kelly R Leight; Javier Aisenberg; Ricardo Azziz; Tânia A Bachega; Linda A Baker; Arlene B Baratz; Laurence S Baskin; Sheri A Berenbaum; David T Breault; Barbara I Cerame; Gerard S Conway; Erica A Eugster; Stephanie Fracassa; John P Gearhart; Mitchell E Geffner; Katharine B Harris; Richard S Hurwitz; Aviva L Katz; Brinda N Kalro; Peter A Lee; Gretchen Alger Lin; Karen J Loechner; Ian Marshall; Deborah P Merke; Claude J Migeon; Walter L Miller; Tamara L Nenadovich; Sharon E Oberfield; Kenneth A Pass; Dix P Poppas; Michele A Lloyd-Puryear; Charmian A Quigley; Felix G Riepe; Richard C Rink; Scott A Rivkees; David E Sandberg; Traci L Schaeffer; Richard N Schlussel; Francis X Schneck; Ellen W Seely; Diane Snyder; Phyllis W Speiser; Bradford L Therrell; Carol Vanryzin; Maria G Vogiatzi; Michael P Wajnrajch; Perrin C White; Alan E Zuckerman
Journal:  Int J Pediatr Endocrinol       Date:  2011-01-10

Review 6.  Reflections on the Future of Pharmaceutical Public-Private Partnerships: From Input to Impact.

Authors:  Remco L A de Vrueh; Daan J A Crommelin
Journal:  Pharm Res       Date:  2017-06-06       Impact factor: 4.200

7.  FDA orphan products clinical trial grants: assessment of outcomes and impact on rare disease product development.

Authors:  Kathleen L Miller; Christine Mueller; Gumei Liu; Katherine I Miller Needleman; Janet Maynard
Journal:  Orphanet J Rare Dis       Date:  2020-09-03       Impact factor: 4.123

Review 8.  Tobramycin Inhalation Powder (TIP): An Efficient Treatment Strategy for the Management of Chronic Pseudomonas Aeruginosa Infection in Cystic Fibrosis.

Authors:  John Lam; Steven Vaughan; Michael D Parkins
Journal:  Clin Med Insights Circ Respir Pulm Med       Date:  2013-11-13
  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.