Literature DB >> 19459200

The Bt-DUX: development of a subjective measure of health-related quality of life in patients who underwent surgery for lower extremity malignant bone tumor.

W Peter Bekkering1, Theodora P M Vliet Vlieland, Hendrik M Koopman, Gerard R Schaap, H W Bart Schreuder, Auke Beishuizen, Wim J E Tissing, Peter M Hoogerbrugge, Jacob K Anninga, Antonie H M Taminiau.   

Abstract

BACKGROUND: To examine the practical applicability, internal consistency, and validity of the Bt-DUX, a disease-specific Health Related Quality of Life (HRQoL) instrument. The Bt-Dux was developed to examine patients' individual values of their life after a malignant bone tumor of the lower extremity at four domains (cosmetic, social, emotional, and functional). PROCEDURE: Patients were eligible for this cross-sectional, multicenter study if they underwent surgery for a malignant tumor of the leg in a period ranging between 12 and 60 months before the recruitment. Assessments included: Bt-DUX, Toronto Extremity Salvage Score (TESS) Short Form (SF)-36, TNO-AZL Questionnaire for Adult's Quality of Life (TAAQOL), and TNO-AZL Children's Quality of Life Questionnaire (TACQOL).
RESULTS: Seventy-two patients (35 male, 37 female), mean age 17 (SD 4) years were included. Limb sparing surgery took place in 32 patients and ablative surgery in 40 patients. The Bt-DUX was completed in less than 5 min and easy to comprehend. The mean Bt-DUX score was 69.8 (SD 15.5), with Cronbach's alpha being 0.92. Domain-total correlations ranged between 0.84 and 0.88 (P < 0.01). Correlations between Bt-DUX Total score and TESS, SF-36 Physical and Mental Component Summary scales and selected TACQOL and TAAQOL scores were statistically significant (P < 0.05), except for the social scale of the TACQOL. The Bt-DUX was able to discriminate between patients with higher and lower TESS scores (P < 0.05).
CONCLUSION: The Bt-DUX was found to be a practical and valid instrument. Its added value compared with existing HRQoL measures needs to be further established. (c) 2009 Wiley-Liss, Inc.

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Year:  2009        PMID: 19459200     DOI: 10.1002/pbc.22078

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  5 in total

1.  Cross-cultural adaptation and validation of the Chinese version of Toronto Extremity Salvage Score for patients with extremity sarcoma.

Authors:  Leilei Xu; Minghui Sun; Weixiang Sun; Xiaodong Qin; Zezhang Zhu; Shoufeng Wang
Journal:  Springerplus       Date:  2016-07-19

Review 2.  Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer.

Authors:  Samantha C Sodergren; Olga Husson; Jessica Robinson; Gudrun E Rohde; Iwona M Tomaszewska; Bella Vivat; Rebecca Dyar; Anne-Sophie Darlington
Journal:  Qual Life Res       Date:  2017-03-01       Impact factor: 4.147

3.  Cross-Cultural Validation of the Italian Version of the Bt-DUX: A Subjective Measure of Health-Related Quality of Life in Patients Who Underwent Surgery for Lower Extremity Malignant Bone Tumour.

Authors:  Mattia Morri; Peter Willem Bekkering; Marco Cotti; Matilde Meneghini; Enrico Venturini; Alessandra Longhi; Elisabetta Mariani; Cristiana Forni
Journal:  Cancers (Basel)       Date:  2020-07-23       Impact factor: 6.639

4.  What matters to children with lower limb deformities: an international qualitative study guiding the development of a new patient-reported outcome measure.

Authors:  Harpreet Chhina; Anne F Klassen; Jacek A Kopec; John Oliffe; Christopher Iobst; Noemi Dahan-Oliel; Aditya Aggarwal; Tim Nunn; Anthony P Cooper
Journal:  J Patient Rep Outcomes       Date:  2021-04-01

5.  Use of a simple form to facilitate communication on long-term consequences of treatment in sarcoma survivors.

Authors:  Ivar Hompland; Lena Fauske; Geir Fagerjord Lorem; Øyvind S Bruland
Journal:  Clin Sarcoma Res       Date:  2020-01-16
  5 in total

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