Literature DB >> 19445341

A quality end of life from a palliative care patient's perspective.

Iris Gourdji1, Lynne McVey, Margaret Purden.   

Abstract

This qualitative study explored the meaning of quality of life (QOL) from the perspective of palliative care patients by examining their lived experiences and their perceptions of what contributes to their QOL. Ten in-patients--five women and five men--took part in in-depth, semi-structured interviews. When asked about their QOL, they spoke about three distinct aspects: the meaning of a quality life at this stage in their illness trajectory, the experience of living with the illness, and factors that contributed to their QOL. Patients' approach to life, illness life, and ideal quality life were found to create a sphere of influence that shaped their end-of-life experience. At the heart of living a quality end of life for these patients was their ability to "do the things that I usually do," "be helpful to others," and "live in a caring environment," The findings highlight the importance of understanding each of these factors: patients' approach to life, illness life, and ideal quality of life, and what they mean to patients in order to tailor interventions to enhance their QOL.

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Year:  2009        PMID: 19445341

Source DB:  PubMed          Journal:  J Palliat Care        ISSN: 0825-8597            Impact factor:   2.250


  4 in total

1.  Swallowing problems at the end of the palliative phase: incidence and severity in 164 unsedated patients.

Authors:  Hans Bogaardt; Laetitia Veerbeek; Katherine Kelly; Agnes van der Heide; Lia van Zuylen; Renée Speyer
Journal:  Dysphagia       Date:  2014-12-23       Impact factor: 3.438

2.  Exploring symptom meaning: perspectives of palliative care physicians.

Authors:  Celina F Estacio; Phyllis N Butow; Melanie R Lovell; Skye T Dong; Josephine M Clayton
Journal:  Support Care Cancer       Date:  2018-03-03       Impact factor: 3.603

3.  Culturally Congruent End-of-Life Care for Rural Appalachian People and Their Families.

Authors:  Sandra J Mixer; Mary Lou Fornehed; Jason Varney; Lisa C Lindley
Journal:  J Hosp Palliat Nurs       Date:  2014-12       Impact factor: 1.918

4.  Reporting of "quality of life": a systematic review and quantitative analysis of research publications in palliative care journals.

Authors:  Senthil P Kumar
Journal:  Indian J Palliat Care       Date:  2012-01
  4 in total

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