Literature DB >> 19414477

Patient and informal caregivers' knowledge of heart failure: necessary but insufficient for effective self-care.

Alexander M Clark1, C Nicole Freydberg, Finlay A McAlister, Ross T Tsuyuki, Paul W Armstrong, Laurel A Strain.   

Abstract

AIMS: Self-care of heart failure (HF) is a process that is important, complex, and challenging. Little is understood of the contextual factors influencing self-care. We aimed to examine the individual and contextual factors perceived by patients and their informal caregivers' to influence their willingness and capacity to undertake effective HF self-care. METHODS AND
RESULTS: This was a qualitative study using semi-structured interviews with 42 patients with HF (NYHA Class II and III, mean age: 76 years, 64% males) and 30 nominated caregivers (63% spouses). All patients experienced severe and intrusive HF symptoms; a large proportion of patients practiced some of the range of recommended self-care activities. However, links between knowledge of HF and self-care were weak and long delays in seeking professional care were frequent. Factors consistently reported to influence self-care were faith in health professionals, beliefs about the local health system, and values linked to work associated with place, history, and culture.
CONCLUSION: Knowledge of HF and its management is a necessary though not sufficient determinant of HF self-care. Individual and contextual factors influence willingness and capacity to undertake effective HF self-care.

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Mesh:

Year:  2009        PMID: 19414477     DOI: 10.1093/eurjhf/hfp058

Source DB:  PubMed          Journal:  Eur J Heart Fail        ISSN: 1388-9842            Impact factor:   15.534


  38 in total

Review 1.  Care-seeking decisions for worsening symptoms in heart failure: a qualitative metasynthesis.

Authors:  S E Ivynian; M DiGiacomo; P J Newton
Journal:  Heart Fail Rev       Date:  2015-11       Impact factor: 4.214

2.  Long-term effects of a dyadic psycho-educational intervention on caregiver burden and morbidity in partners of patients with heart failure: a randomized controlled trial.

Authors:  Maria Liljeroos; Susanna Ågren; Tiny Jaarsma; Kristofer Årestedt; Anna Strömberg
Journal:  Qual Life Res       Date:  2016-09-08       Impact factor: 4.147

3.  Psychometric Validation of the Heart Failure Caregiver Questionnaire (HF-CQ®).

Authors:  Anna Strömberg; Nicola Bonner; Laura Grant; Bryan Bennett; Misook L Chung; Tiny Jaarsma; Marie Louise Luttik; Eldrin F Lewis; Frederico Calado; Celine Deschaseaux
Journal:  Patient       Date:  2017-10       Impact factor: 3.883

4.  Family presence and participation during medical visits of heart failure patients: An analysis of survey and audiotaped communication data.

Authors:  Crystal W Cené; Beth Haymore; Jeffrey P Laux; Feng-Chang Lin; Dana Carthron; Debra Roter; Lisa A Cooper; Patricia P Chang; Brian C Jensen; Paula F Miller; Giselle Corbie-Smith
Journal:  Patient Educ Couns       Date:  2016-09-03

5.  Characteristics of Persons Living With HIV Who Have Informal Caregivers in the cART Age of the Epidemic.

Authors:  Rebecca Schnall; Sabina Hirshfield; Jianfang Liu; Karolynn Siegel; Melissa Gradilla
Journal:  J Assoc Nurses AIDS Care       Date:  2017-09-07       Impact factor: 1.354

6.  A trial of family partnership and education interventions in heart failure.

Authors:  Sandra B Dunbar; Patricia C Clark; Carolyn M Reilly; Rebecca A Gary; Andrew Smith; Frances McCarty; Melinda Higgins; Daurice Grossniklaus; Nadine Kaslow; Jennifer Frediani; Carolyn Dashiff; Richard Ryan
Journal:  J Card Fail       Date:  2013-10-29       Impact factor: 5.712

Review 7.  Self care in patients with chronic heart failure.

Authors:  Barbara Riegel; Christopher S Lee; Victoria Vaughan Dickson
Journal:  Nat Rev Cardiol       Date:  2011-07-19       Impact factor: 32.419

Review 8.  Medication adherence and heart failure.

Authors:  Eric M Riles; Anuja V Jain; A Mark Fendrick
Journal:  Curr Cardiol Rep       Date:  2014-03       Impact factor: 2.931

9.  Counseling patients on facial volume replacement and adherence with posttreatment instructions.

Authors:  Doris Day
Journal:  Patient Prefer Adherence       Date:  2010-09-07       Impact factor: 2.711

10.  Mechanism of engaging self-management behavior in rural heart failure patients.

Authors:  Lufei Young; Susan Barnason; Kevin Kupzyk
Journal:  Appl Nurs Res       Date:  2015-10-03       Impact factor: 2.257

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