Literature DB >> 19385741

Introduction to special issue: advancing the ethics of community-based participatory research.

Nancy Shore1, Kristine A Wong, Sarena D Seifer, Jessica Grignon, Vanessa Northington Gamble.   

Abstract

Increasingly communities are engaging in community-based participatory research (CBPR) to address their pressing health concerns, frequently in partnership with institutions. CBPR with its underlying values challenges us to expand the traditional framework of ethical analysis to include community-level and partnership-oriented considerations. This special issue considers ethical considerations inherent in CBPR, presents examples of how communities have created their own processes for research ethics review, and identifies challenges CBPR teams may encounter with institution-based research ethics committees. Drawing upon the special issue articles and the work conducted by Community-Campus Partnerships for Health and the Tuskegee University National Center for Bioethics in Research and Health Care, we propose an approach and a set of strategies to create a system of research ethics review that more fully accounts for individual and community-level considerations.

Year:  2008        PMID: 19385741     DOI: 10.1525/jer.2008.3.2.1

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  8 in total

1.  Community consultation and public disclosure: preliminary results from a new model.

Authors:  Cornelia A Ramsey; Bonnie Quearry; Elizabeth Ripley
Journal:  Acad Emerg Med       Date:  2011-07-05       Impact factor: 3.451

2.  Ethics and Science in the Participatory Era: A Vignette-Based Delphi Study.

Authors:  Elizabeth Bromley; Lisa Mikesell; Dmitry Khodyakov
Journal:  J Empir Res Hum Res Ethics       Date:  2017-07-10       Impact factor: 1.742

3.  The National Clinician Scholars Program: Teaching Transformational Leadership and Promoting Health Justice Through Community-Engaged Research Ethics.

Authors:  Elizabeth Bromley; Loretta Jones; Marjorie S Rosenthal; Michele Heisler; Julie A Sochalski; Deborah Koniak-Griffin; Cristina Punzalan; Kenneth B Wells
Journal:  AMA J Ethics       Date:  2015-12-01

4.  From subject to participant: ethics and the evolving role of community in health research.

Authors:  Elizabeth Bromley; Lisa Mikesell; Felica Jones; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2015-03-19       Impact factor: 9.308

5.  Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation.

Authors:  Erika Blacksher; Susan Brown Trinidad; R Brian Woodbury; Scarlett E Hopkins; Erica L Woodahl; Bert B Boyer; Wylie Burke; Vanessa Hiratsuka
Journal:  J Empir Res Hum Res Ethics       Date:  2022-02-28       Impact factor: 1.978

6.  Consent and community engagement in diverse research contexts.

Authors: 
Journal:  J Empir Res Hum Res Ethics       Date:  2013-10       Impact factor: 1.742

7.  Stakeholder-driven, consensus development methods to design an ethical framework and guidelines for engaged research.

Authors:  Giselle Corbie-Smith; Mysha Wynn; Alan Richmond; Stuart Rennie; Melissa Green; Stephanie M Hoover; Sable Watson-Hopper; Kyle Simone Nisbeth
Journal:  PLoS One       Date:  2018-06-21       Impact factor: 3.240

8.  Ethical considerations related to participation and partnership: an investigation of stakeholders' perceptions of an action-research project on user fee removal for the poorest in Burkina Faso.

Authors:  Matthew R Hunt; Patrick Gogognon; Valéry Ridde
Journal:  BMC Med Ethics       Date:  2014-02-20       Impact factor: 2.652

  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.