Literature DB >> 19381695

Patient information and education with modern media: the Spine Society of Europe Patient Line.

Ferran Pellisé1, P Sell.   

Abstract

The role of the patient as an active partner in health care, and not just a passive object of diagnostic testing and medical treatment, is widely accepted. Providing information to patients is considered a crucial issue and the central focus in patient educational activities. It is necessary to educate patients on the nature of the outcomes and the benefits and risks of the procedures to involve them in the decision-making process and enable them to achieve fully informed consent. Information materials must contain scientifically reliable information and be presented in a form that is acceptable and useful to patients. Given the mismatch between public beliefs and current evidence, strategies for changing the public perceptions are required. Traditional patient education programmes have to face the potential barriers of storage, access problems and the need to keep content materials up to date. A computer-based resource provides many advantages, including "just-in-time" availability and a private learning environment. The use of the Internet for patient information needs will continue to expand as Internet access becomes readily available. However, the problem is no longer in finding information, but in assessing the credibility and validity of it. Health Web sites should provide health information that is secure and trustworthy. The large majority of the Web sites providing information related to spinal disorders are of limited and poor quality. Patient Line (PL), a patient information section in the Web site of Eurospine, was born in 2005 to offer patients and the general population the accumulated expertise represented by the members of the society and provide up-to-date information related to spinal disorders. In areas where evidence is scarce, Patient Line provides a real-time opinion of the EuroSpine membership. The published data reflect the pragmatic and the common sense range of treatments offered by the Eurospine membership. The first chapters have been dedicated to sciatica, scoliosis, cervical pain syndromes, low back pain and motion preservation surgery. Since 2008, the information has been available in English, German, French and Spanish. The goal is for Patient Line to become THE European patient information Web site on spinal disorders, providing reliable and updated best practice and evidence-based information where the evidence exists.

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Mesh:

Year:  2009        PMID: 19381695      PMCID: PMC2899323          DOI: 10.1007/s00586-009-0973-1

Source DB:  PubMed          Journal:  Eur Spine J        ISSN: 0940-6719            Impact factor:   3.134


  29 in total

Review 1.  Helping patients access high quality health information.

Authors:  S Shepperd; D Charnock; B Gann
Journal:  BMJ       Date:  1999-09-18

Review 2.  Systematic review of rheumatoid arthritis patient education.

Authors:  Robert P Riemsma; Erik Taal; John R Kirwan; Johannes J Rasker
Journal:  Arthritis Rheum       Date:  2004-12-15

Review 3.  Back schools for nonspecific low back pain: a systematic review within the framework of the Cochrane Collaboration Back Review Group.

Authors:  M W Heymans; M W van Tulder; R Esmail; C Bombardier; B W Koes
Journal:  Spine (Phila Pa 1976)       Date:  2005-10-01       Impact factor: 3.468

4.  Effects of a media campaign on back beliefs is sustained 3 years after its cessation.

Authors:  Rachelle Buchbinder; Damien Jolley
Journal:  Spine (Phila Pa 1976)       Date:  2005-06-01       Impact factor: 3.468

5.  Should treatment of (sub)acute low back pain be aimed at psychosocial prognostic factors? Cluster randomised clinical trial in general practice.

Authors:  Petra Jellema; Daniëlle A W M van der Windt; Henriëtte E van der Horst; Jos W R Twisk; Wim A B Stalman; Lex M Bouter
Journal:  BMJ       Date:  2005-06-20

6.  Sharing decisions with patients: is the information good enough?

Authors:  A Coulter; V Entwistle; D Gilbert
Journal:  BMJ       Date:  1999-01-30

7.  Chronic disease self-management program for low back pain in the elderly.

Authors:  Mitchell Haas; Elyse Groupp; John Muench; Dale Kraemer; Ken Brummel-Smith; Rajiv Sharma; Bonnie Ganger; Michael Attwood; Alisa Fairweather
Journal:  J Manipulative Physiol Ther       Date:  2005-05       Impact factor: 1.437

Review 8.  Computer-based approaches to patient education: a review of the literature.

Authors:  D Lewis
Journal:  J Am Med Inform Assoc       Date:  1999 Jul-Aug       Impact factor: 4.497

9.  Surfing for scoliosis: the quality of information available on the Internet.

Authors:  Sameer Mathur; Nael Shanti; Mario Brkaric; Vivek Sood; Justin Kubeck; Carl Paulino; Andrew A Merola
Journal:  Spine (Phila Pa 1976)       Date:  2005-12-01       Impact factor: 3.468

Review 10.  Patient education in the developing world--a discipline comes of age.

Authors:  John Hubley
Journal:  Patient Educ Couns       Date:  2006-04
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  12 in total

1.  GEER, the Multidisciplinary Spanish Society for Spine Specialists.

Authors:  F Pellisé; I González-Barrios; M Aebi
Journal:  Eur Spine J       Date:  2011-08-18       Impact factor: 3.134

2.  Allegations of Failure to Obtain Informed Consent in Spinal Surgery Medical Malpractice Claims.

Authors:  Jennifer Grauberger; Panagiotis Kerezoudis; Asad J Choudhry; Mohammed Ali Alvi; Ahmad Nassr; Bradford Currier; Mohamad Bydon
Journal:  JAMA Surg       Date:  2017-06-21       Impact factor: 14.766

3.  Internet use by parents of children attending a dedicated scoliosis outpatient clinic.

Authors:  Joseph F Baker; Brian M Devitt; Sam Lynch; Connor J Green; Damien P Byrne; Patrick J Kiely
Journal:  Eur Spine J       Date:  2012-07-21       Impact factor: 3.134

4.  Memory Loss, Alzheimer's Disease and General Anesthesia: A Preoperative Concern.

Authors:  Adam Thaler; Read Siry; Lufan Cai; Paul S García; Linda Chen; Renyu Liu
Journal:  J Anesth Clin Res       Date:  2012-02-20

5.  Psychiatric Social Work Consultations for Persons with Neurological disorders in a Tertiary Care Hospital during COVID-19 Lockdown: A Retrospective Observational Study.

Authors:  Chithiraivalli Kuppusamy; Muhammed Noorudin; Damadahalli Papanna Harishkumar; Krishna Jayanthi Puthanthottam Mohanan; Sinu Ezhumalai
Journal:  Indian J Psychiatr Soc Work       Date:  2022-02-23

6.  Patterns of internet use by parents of children attending a pediatric surgical service.

Authors:  F Hand; Dermot Thomas McDowell; D T Mc Dowell; R W Glynn; H Rowley; A Mortell
Journal:  Pediatr Surg Int       Date:  2013-04-25       Impact factor: 1.827

7.  mHealth Tool for Alcohol Use Disorders Among Latinos in Emergency Department.

Authors:  Fuad Abujarad; Federico E Vaca
Journal:  Proc Int Symp Hum Factors Ergon Healthc       Date:  2015-06

8.  The Qualification of Outcome after Cervical Spine Surgery by Patients Compared to the Neck Disability Index.

Authors:  Roland Donk; Andre Verbeek; Wim Verhagen; Hans Groenewoud; Allard Hosman; Ronald Bartels
Journal:  PLoS One       Date:  2016-08-23       Impact factor: 3.240

9.  Cost-effectiveness of providing patients with information on managing mild low-back symptoms in an occupational health setting.

Authors:  J Rantonen; J Karppinen; A Vehtari; S Luoto; E Viikari-Juntura; M Hupli; A Malmivaara; S Taimela
Journal:  BMC Public Health       Date:  2016-04-12       Impact factor: 3.295

10.  Preparation, validation, and evaluation of an information leaflet for patients undergoing day-care surgeries under general anesthesia at a busy tertiary care hospital.

Authors:  Amit Raja Panigrahi; Sumitra G Bakshi
Journal:  J Anaesthesiol Clin Pharmacol       Date:  2021-07-15
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