Literature DB >> 19364878

Southeast Asian parents raising a child with autism: a qualitative investigation of coping styles.

June Luong1, Marian K Yoder, Daryl Canham.   

Abstract

Autism is a developmental disability increasing in incidence over the past decade. Parents of children with autism experience prolonged levels of stress and isolation. Using qualitative research design, nine parents of children with autism participated in this study that focused on the effect of autism on the family, coping styles, and support systems. The target population was first-generation Southeast Asian American parents. Results revealed nine coping style patterns: (a) denial/passive coping, (b) empowerment, (c) redirecting energy, (d) shifting of focus, (e) rearranging life and relationships, (f) changed expectations, (g) social withdrawal, (h) spiritual coping, and (i) acceptance. The school was considered the primary supportive entity. Although findings may not be unique to the Southeast Asian group, the research provides an in-depth perspective on their lived experience, their struggles, and strengths. Insight gained from this investigation can help school nurses better understand the affect of autism on families, identify specific needs, and address these needs by advocating for appropriate supportive programs.

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Mesh:

Year:  2009        PMID: 19364878     DOI: 10.1177/1059840509334365

Source DB:  PubMed          Journal:  J Sch Nurs        ISSN: 1059-8405            Impact factor:   2.835


  21 in total

1.  Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India.

Authors:  Gauri Divan; Vivek Vajaratkar; Miraj U Desai; Luisa Strik-Lievers; Vikram Patel
Journal:  Autism Res       Date:  2012-03-30       Impact factor: 5.216

2.  Parental reaction to early diagnosis of their children's autism spectrum disorder: an exploratory study.

Authors:  Irina E Poslawsky; Fabiënne B A Naber; Emma Van Daalen; Herman Van Engeland
Journal:  Child Psychiatry Hum Dev       Date:  2014-06

3.  Development and Psychometric Evaluation of the Autism Stigma and Knowledge Questionnaire (ASK-Q).

Authors:  Ashley J Harrison; Laine P Bradshaw; Nilofer C Naqvi; Madison L Paff; Jonathan M Campbell
Journal:  J Autism Dev Disord       Date:  2017-10

4.  Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD).

Authors:  Wei Wei Lai; Tze Jui Goh; Tian P S Oei; Min Sung
Journal:  J Autism Dev Disord       Date:  2015-08

5.  The resilience of parents who have children with autism spectrum disorder in China: a social culture perspective.

Authors:  Meiju Zhao; Wangqian Fu
Journal:  Int J Dev Disabil       Date:  2020-04-13

6.  Mental Health and Coping in Parents of Children with Autism Spectrum Disorder (ASD) in Singapore: An Examination of Gender Role in Caring.

Authors:  Karen Qian Ping Ang; Pek Ru Loh
Journal:  J Autism Dev Disord       Date:  2019-05

7.  Challenges and coping strategies of parents of children with autism on the Kenyan coast.

Authors:  Joseph K Gona; Charles R Newton; Kenneth K Rimba; Rachel Mapenzi; Michael Kihara; Fonns V Vijver; Amina Abubakar
Journal:  Rural Remote Health       Date:  2016-04-20       Impact factor: 1.759

8.  The effects of early autism intervention on parents and family adaptive functioning.

Authors:  Annette Estes; Deanna M Swain; Katherine E MacDuffie
Journal:  Pediatr Med       Date:  2019-06-12

9.  Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis.

Authors:  Gal Bohadana; Shirley Morrissey; Jessica Paynter
Journal:  J Autism Dev Disord       Date:  2021-04

10.  The discovery of autism: Indian parents' experiences of caring for their child with an autism spectrum disorder.

Authors:  Miraj U Desai; Gauri Divan; Frederick J Wertz; Vikram Patel
Journal:  Transcult Psychiatry       Date:  2012-06-21
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