Literature DB >> 19332574

Is it ethical to deny genetic research participants individualised results?

P Affleck1.   

Abstract

This article examines a key ethical concern that has arisen in the work of the international research consortium GenoMEL (http://www.genomel.org) and that has relevance to all genetic research in humans. The question is whether it is ethical to deny research participants the opportunity to receive individualised genetic results obtained from the biological samples they provide. Where those results are of clinical importance, a "respect for persons" requirement would make the offering of those results imperative. However, where those results are of uncertain clinical value, the picture is less clear. This paper argues that researchers may not be ethically obliged to offer such results to their participants, because of competing ethical demands.

Entities:  

Mesh:

Year:  2009        PMID: 19332574     DOI: 10.1136/jme.2007.024034

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  17 in total

1.  Disclosure of individualized research results: a precautionary approach.

Authors:  David B Resnik
Journal:  Account Res       Date:  2011-11       Impact factor: 2.622

2.  Timing and context: important considerations in the return of genetic results to research participants.

Authors:  Kate A McBride; Nina Hallowell; Martin H N Tattersall; Judy Kirk; Mandy L Ballinger; David M Thomas; Gillian Mitchell; Mary-Anne Young
Journal:  J Community Genet       Date:  2015-05-26

3.  Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Authors:  Laurence Baret; Beatrice Godard
Journal:  Eur J Hum Genet       Date:  2011-06-15       Impact factor: 4.246

4.  A framework for analyzing the ethics of disclosing genetic research findings.

Authors:  Lisa Eckstein; Jeremy R Garrett; Benjamin E Berkman
Journal:  J Law Med Ethics       Date:  2014       Impact factor: 1.718

5.  Researchers' opinions towards the communication of results of biobank research: a survey study.

Authors:  Tineke M Meulenkamp; Sjef J K Gevers; Jasper A Bovenberg; Ellen M A Smets
Journal:  Eur J Hum Genet       Date:  2011-11-30       Impact factor: 4.246

6.  Preferences regarding genetic research results: comparing veterans and nonveterans responses.

Authors:  N Arar; J Seo; S Lee; H E Abboud; L A Copeland; P Noel; M Parchman
Journal:  Public Health Genomics       Date:  2010-09-09       Impact factor: 2.000

7.  Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.

Authors:  Nancy R Downing; Janet K Williams; Sandra Daack-Hirsch; Martha Driessnack; Christian M Simon
Journal:  Patient Educ Couns       Date:  2012-10-12

8.  How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry.

Authors:  Louise A Keogh; Douglass Fisher; Sherri Sheinfeld Gorin; Sheri D Schully; Jan T Lowery; Dennis J Ahnen; Judith A Maskiell; Noralane M Lindor; John L Hopper; Terrilea Burnett; Spring Holter; Julie L Arnold; Steven Gallinger; Mercy Laurino; Mary-Jane Esplen; Pamela S Sinicrope
Journal:  J Community Genet       Date:  2013-05-24

9.  Incidental findings: the time is not yet ripe for a policy for biobanks.

Authors:  Jennifer Viberg; Mats G Hansson; Sophie Langenskiöld; Pär Segerdahl
Journal:  Eur J Hum Genet       Date:  2013-09-25       Impact factor: 4.246

10.  Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.

Authors:  Juli Murphy Bollinger; Joan Scott; Rachel Dvoskin; David Kaufman
Journal:  Genet Med       Date:  2012-03-08       Impact factor: 8.822

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.