Literature DB >> 19307314

Advocating for a parent with dementia in a long-term care facility: the process experienced by daughters.

Alain Legault1, Francine Ducharme.   

Abstract

Daughter caregivers of elders with dementia become their parents' advocates over time. This role takes on even greater importance when one or both parents are placed in a long-term care facility. This article presents the results of a qualitative study aimed at explaining how this advocacy role evolves following institutionalization. In-depth interviews were conducted with daughters (N = 14) of an institutionalized parent with dementia and selected using a theoretical sampling procedure. Data analysis using grounded theory revealed three interrelated processes that explain role transformation of the daughters: integration in the care setting, evaluation of quality of care, and development of trust. Implications for involving daughters as care partners in long-term care settings are offered.

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Year:  2009        PMID: 19307314     DOI: 10.1177/1074840709332929

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  8 in total

1.  Informal caregivers of persons with dementia, their use of and needs for specific professional support: a survey of the National Dementia Programme.

Authors:  José M Peeters; Adriana Pa Van Beek; Anneke L Francke; Julie Hcm Meerveld; Peter Mm Spreeuwenberg
Journal:  BMC Nurs       Date:  2010-06-07

2.  Caregivers' desired patterns of communication with nursing home staff- just TALKKK!

Authors:  Janice L Palmer
Journal:  J Gerontol Nurs       Date:  2012-02-15       Impact factor: 1.254

3.  Facilitators and barriers to implement nurse-led interventions in long-term dementia care: a qualitative interview study with Swiss nursing experts and managers.

Authors:  Julian Hirt; Melanie Karrer; Laura Adlbrecht; Susi Saxer; Adelheid Zeller
Journal:  BMC Geriatr       Date:  2021-03-05       Impact factor: 3.921

4.  Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff?

Authors:  Linda Jm Hoek; Jolanda Cm van Haastregt; Erica de Vries; Ramona Backhaus; Jan Ph Hamers; Hilde Verbeek
Journal:  Dementia (London)       Date:  2020-09-25

5.  End-of-life care communications and shared decision-making in Norwegian nursing homes--experiences and perspectives of patients and relatives.

Authors:  Elisabeth Gjerberg; Lillian Lillemoen; Reidun Førde; Reidar Pedersen
Journal:  BMC Geriatr       Date:  2015-08-19       Impact factor: 3.921

6.  Extending "Continuity of Care" to include the Contribution of Family Carers.

Authors:  Cecilia Wong-Cornall; John Parsons; Nicolette Sheridan; Timothy Kenealy; Allie Peckham
Journal:  Int J Integr Care       Date:  2017-06-27       Impact factor: 5.120

Review 7.  From Family Involvement to Family Inclusion in Nursing Home Settings: A Critical Interpretive Synthesis.

Authors:  Gloria Puurveen; Jennifer Baumbusch; Preet Gandhi
Journal:  J Fam Nurs       Date:  2018-02-19       Impact factor: 3.818

8.  Interventions to foster family inclusion in nursing homes for people with dementia: a systematic review.

Authors:  Ramona Backhaus; Linda J M Hoek; Erica de Vries; Jolanda C M van Haastregt; Jan P H Hamers; Hilde Verbeek
Journal:  BMC Geriatr       Date:  2020-10-30       Impact factor: 3.921

  8 in total

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