Literature DB >> 19251831

Informal carer bereavement outcome: relation to quality of end of life support and achievement of preferred place of death.

G E Grande1, G Ewing.   

Abstract

This study investigated (a) whether carer bereavement outcome is affected by the achievement of the patient's and/or carers' preferred place of death and (b) the relationship between carer satisfaction with end of life care and bereavement outcome. Participants were 216 carers of patients referred to hospice at home (H@H). Prospective recording of preferred and actual place of death were obtained from H@H records. Carers' level of grief and mental health and assessment of end of life care were obtained through postal survey three to four months post-bereavement. Fulfilment of carer preference for place of death only related to post-bereavement mental health at P < 0.1. Adequacy of psychological support showed the clearest relationship with bereavement outcome both in univariate and multivariate analyses. The level of support, particularly psychological, may be more important for carers' bereavement outcome than achievement of the preferred place of death for the patient.

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Year:  2009        PMID: 19251831     DOI: 10.1177/0269216309102620

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  13 in total

Review 1.  Measuring Experience With End-of-Life Care: A Systematic Literature Review.

Authors:  Jessica Penn Lendon; Sangeeta C Ahluwalia; Anne M Walling; Karl A Lorenz; Oluwatobi A Oluwatola; Rebecca Anhang Price; Denise Quigley; Joan M Teno
Journal:  J Pain Symptom Manage       Date:  2014-12-24       Impact factor: 3.612

2.  Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey.

Authors:  Barbara Gomes; Paul McCrone; Sue Hall; Julia Riley; Jonathan Koffman; Irene J Higginson
Journal:  Support Care Cancer       Date:  2013-06-08       Impact factor: 3.603

3.  Heterogeneity and changes in preferences for dying at home: a systematic review.

Authors:  Barbara Gomes; Natalia Calanzani; Marjolein Gysels; Sue Hall; Irene J Higginson
Journal:  BMC Palliat Care       Date:  2013-02-15       Impact factor: 3.234

4.  Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study.

Authors:  Barbara Gomes; Paul McCrone; Sue Hall; Jonathan Koffman; Irene J Higginson
Journal:  BMC Cancer       Date:  2010-08-02       Impact factor: 4.430

5.  Age, gender, will, and use of home-visit nursing care are critical factors in home care for malignant diseases; a retrospective study involving 346 patients in Japan.

Authors:  Yuko Kodama; Tomoko Matsumura; Takuhiro Yamaguchi; Morihito Takita; Shohei Kawagoe; Yukihiro Kimura; Satoshi Hirahara; Hiroshi Suzuki; Hideki Ohta; Shigeru Onozawa; Tadashi Wada; Yukiyasu Nakamura; Kazushi Nakano; Masahiro Kami; Koichiro Yuji
Journal:  BMC Palliat Care       Date:  2011-11-01       Impact factor: 3.234

6.  The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial.

Authors:  Samar M Aoun; Gunn Grande; Denise Howting; Kathleen Deas; Chris Toye; Lakkhina Troeung; Kelli Stajduhar; Gail Ewing
Journal:  PLoS One       Date:  2015-04-07       Impact factor: 3.240

7.  Understanding hospital admissions close to the end of life (ACE) study.

Authors:  Zoë Slote Morris; Miranda Fyfe; Natalie Momen; Sarah Hoare; Stephen Barclay
Journal:  BMC Health Serv Res       Date:  2013-03-11       Impact factor: 2.655

8.  Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study.

Authors:  Barbara Gomes; Natalia Calanzani; Jonathan Koffman; Irene J Higginson
Journal:  BMC Med       Date:  2015-10-09       Impact factor: 8.775

9.  Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care.

Authors:  Natalia Calanzani; Irene J Higginson; Jonathan Koffman; Barbara Gomes
Journal:  PLoS One       Date:  2016-01-08       Impact factor: 3.240

10.  A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses.

Authors:  Maurice Nagington; Catherine Walshe; Karen A Luker
Journal:  Nurs Philos       Date:  2015-09-03       Impact factor: 1.279

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