Literature DB >> 19236619

The transition from children's to adult diabetes services: understanding the 'problem'.

D Allen1, J Gregory.   

Abstract

AIMS: The importance of getting transition right for young people with diabetes is increasingly recognized and a strong professional consensus has emerged on best practice in this domain. Research evidence to inform the design of transitional healthcare services is weak, however, and prevailing views about 'the problem of transition' are based on a number of assumptions about adolescence, adulthood and chronic disease management which have been accepted uncritically.
METHODS: Drawing on youth studies and the sociology of chronic disease management, in this paper we describe how 'the problem of transition' has been defined in the professional and UK policy literature and examine the assumptions that underpin it.
RESULTS: We argue that the overwhelming emphasis is on how best to support young people in fitting in with the healthcare system. This has produced an orientation which is more concerned with supporting young people in the process of becoming adults rather than giving attention to their contemporaneous experiences and needs. Two years after the introduction of the UK National Service Framework for diabetes, the challenge of transitional services remains.
CONCLUSIONS: We suggest that the time has come to consider alternative formulations of the 'problem'. Rather than asking how best to manage transition, we might ask how best to meet the needs of young people with diabetes at this stage of the life course. This requires an understanding of their experiences, the social networks in which they are embedded and consideration of how self-management might be supported by the healthcare system.

Entities:  

Mesh:

Year:  2009        PMID: 19236619     DOI: 10.1111/j.1464-5491.2008.02647.x

Source DB:  PubMed          Journal:  Diabet Med        ISSN: 0742-3071            Impact factor:   4.359


  23 in total

1.  Emerging adults with type 1 diabetes: a comparison to peers without diabetes.

Authors:  Dianne K Palladino; Vicki S Helgeson; Kerry A Reynolds; Dorothy J Becker; Linda M Siminerio; Oscar Escobar
Journal:  J Pediatr Psychol       Date:  2013-03-07

2.  Relation of parent knowledge to glycemic control among emerging adults with type 1 diabetes: a mediational model.

Authors:  Vicki S Helgeson; Abigail Kunz Vaughn; Howard Seltman; Trevor Orchard; Dorothy Becker; Ingrid Libman
Journal:  J Behav Med       Date:  2017-09-16

Review 3.  Transfer from pediatric to adult health care: effects on diabetes outcomes.

Authors:  Sarah K Lyons; Dorothy J Becker; Vicki S Helgeson
Journal:  Pediatr Diabetes       Date:  2013-12-18       Impact factor: 4.866

4.  Cognitive adaptation theory as a predictor of adjustment to emerging adulthood for youth with and without type 1 diabetes.

Authors:  Vicki S Helgeson; Kerry A Reynolds; Linda M Siminerio; Dorothy J Becker; Oscar Escobar
Journal:  J Psychosom Res       Date:  2014-09-28       Impact factor: 3.006

5.  The Challenge of and Opportunities for Transitioning and Maintaining a Continuum of Care Among Adolescents and Young Adults Living with HIV in Resource Limited Settings.

Authors:  Jennifer Jao; Lee Fairlie; David Griffith; Allison L Agwu
Journal:  Curr Trop Med Rep       Date:  2016-10-13

6.  Outcomes of a Comprehensive Retention Strategy for Youth With HIV After Transfer to Adult Care in the United States.

Authors:  David Griffith; Lillian Jin; Jocelyn Childs; Roberto Posada; Jennifer Jao; Allison Agwu
Journal:  Pediatr Infect Dis J       Date:  2019-07       Impact factor: 2.129

7.  The medical home concept and congenital adrenal hyperplasia: a comfortable habitat!

Authors:  Selma Feldman Witchel
Journal:  Int J Pediatr Endocrinol       Date:  2010-06-08

Review 8.  [Building bridges during transition of patients with type 1 diabetes. Adult medical and pediatric point of views].

Authors:  F P Busse-Voigt; W Kiess; M Stumvoll; N Hering; T M Kapellen
Journal:  Internist (Berl)       Date:  2009-10       Impact factor: 0.743

Review 9.  The transition from pediatric to adult diabetes care services.

Authors:  Kathleen M Hanna; Jason Woodward
Journal:  Clin Nurse Spec       Date:  2013 May-Jun       Impact factor: 1.067

10.  Transitioning the adolescent inflammatory bowel disease patient: guidelines for the adult and pediatric gastroenterologist.

Authors:  Yvette Leung; Melvin B Heyman; Uma Mahadevan
Journal:  Inflamm Bowel Dis       Date:  2010-12-16       Impact factor: 5.325

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