BACKGROUND: Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. OBJECTIVES: The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinent lines of research. METHOD: A Delphi technique was used with an interdisciplinary panel (n = 14-16) of researchers and frontline clinicians in pediatric palliative care in Canada. RESULTS: Four priority research questions were identified: What matters most for patients and parents receiving pediatric palliative services? What are the bereavement needs of families in pediatric palliative care? What are the best practice standards in pain and symptom management? What are effective strategies to alleviate suffering at the end of life? CONCLUSIONS: These identified priorities will provide guidance and direction for research efforts in Canada, and may prove useful in providing optimal care to patients and families in pediatric palliative care.
BACKGROUND: Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. OBJECTIVES: The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinent lines of research. METHOD: A Delphi technique was used with an interdisciplinary panel (n = 14-16) of researchers and frontline clinicians in pediatric palliative care in Canada. RESULTS: Four priority research questions were identified: What matters most for patients and parents receiving pediatric palliative services? What are the bereavement needs of families in pediatric palliative care? What are the best practice standards in pain and symptom management? What are effective strategies to alleviate suffering at the end of life? CONCLUSIONS: These identified priorities will provide guidance and direction for research efforts in Canada, and may prove useful in providing optimal care to patients and families in pediatric palliative care.
Authors: Udo Schüklenk; Johannes J M van Delden; Jocelyn Downie; Sheila A M McLean; Ross Upshur; Daniel Weinstock Journal: Bioethics Date: 2011-11 Impact factor: 1.898
Authors: Justin N Baker; Deena R Levine; Pamela S Hinds; Meaghann S Weaver; Melody J Cunningham; Liza Johnson; Doralina Anghelescu; Belinda Mandrell; Deborah V Gibson; Barbara Jones; Joanne Wolfe; Chris Feudtner; Sarah Friebert; Brian Carter; Javier R Kane Journal: J Pediatr Date: 2015-05-28 Impact factor: 4.406
Authors: Julia Downing; Caprice Knapp; Mary Ann Muckaden; Susan Fowler-Kerry; Joan Marston Journal: BMC Palliat Care Date: 2015-08-04 Impact factor: 3.234
Authors: Anne Hunt; Erica Brown; Jane Coad; Sophie Staniszewska; Suzanne Hacking; Brigit Chesworth; Lizzie Chambers Journal: J Child Health Care Date: 2013-11-21 Impact factor: 1.979