Literature DB >> 19189227

Modification, translation and adaptation of questionnaires: should copyright laws be observed?

Elizabeth F Juniper1.   

Abstract

This commentary is intended to start a discussion about whether people should be allowed to modify, translate, adapt or sell copyrighted questionnaires without the permission of the developer (copyright-holder).

Entities:  

Mesh：

Year:  2009        PMID： 19189227     DOI： 10.1007/s11136-008-9440-4

Source DB:  PubMed          Journal:  Qual Life Res        ISSN： 0962-9343            Impact factor:   4.147


  9 in total

1.  Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials.

Authors:  E F Juniper; G H Guyatt; R S Epstein; P J Ferrie; R Jaeschke; T K Hiller
Journal:  Thorax       Date:  1992-02       Impact factor: 9.139

2.  An 18-item standardized Asthma Quality of Life Questionnaire-AQLQ(S).

Authors:  Eirini Grammatopoulou; Emmanouil Skordilis; Dimitra Koutsouki; George Baltopoulos
Journal:  Qual Life Res       Date:  2007-12-14       Impact factor: 4.147

3.  Evaluation of 2 interactive voice-response telephone versions of health-related quality-of-life questionnaires.

Authors:  Elizabeth F Juniper; Michael Schatz; Bridget A Juniper; Robert S Zeiger
Journal:  J Allergy Clin Immunol       Date:  2008-06-12       Impact factor: 10.793

4.  Validation of a standardized version of the Asthma Quality of Life Questionnaire.

Authors:  E F Juniper; A S Buist; F M Cox; P J Ferrie; D R King
Journal:  Chest       Date:  1999-05       Impact factor: 9.410

5.  Development and validation of the Mini Asthma Quality of Life Questionnaire.

Authors:  E F Juniper; G H Guyatt; F M Cox; P J Ferrie; D R King
Journal:  Eur Respir J       Date:  1999-07       Impact factor: 16.671

6.  Clinical impact versus factor analysis for quality of life questionnaire construction.

Authors:  E F Juniper; G H Guyatt; D L Streiner; D R King
Journal:  J Clin Epidemiol       Date:  1997-03       Impact factor: 6.437

7.  Does electronic implementation of questionnaires used in asthma alter responses compared to paper implementation?

Authors:  J J Caro; I Caro; J Caro; F Wouters; E F Juniper
Journal:  Qual Life Res       Date:  2001       Impact factor: 4.147

8.  Development and validation of an electronic version of the Rhinoconjunctivitis Quality of Life Questionnaire.

Authors:  E F Juniper; B Riis; B A Juniper
Journal:  Allergy       Date:  2007-05-22       Impact factor: 13.146

9.  Patients may respond differently to paper and electronic versions of the same questionnaires.

Authors:  Elizabeth F Juniper; John M Langlands; Bridget A Juniper
Journal:  Respir Med       Date:  2008-11-22       Impact factor: 3.415
  9 in total
  3 in total

1.  Intellectual property rights and good research practice.

Authors:  Dennis A Revicki; Carolyn E Schwartz
Journal:  Qual Life Res       Date:  2009-12       Impact factor: 4.147

2.  Patient-reported outcomes instruments: bridging the gap between international copyright laws and common practice for developers and users--a case example.

Authors:  Caroline Anfray
Journal:  Qual Life Res       Date:  2009-12       Impact factor: 4.147

3.  Reflection paper on copyright, patient-reported outcome instruments and their translations.

Authors:  Caroline Anfray; Benjamin Arnold; Mona Martin; Sonya Eremenco; Donald L Patrick; Katrin Conway; Catherine Acquadro
Journal:  Health Qual Life Outcomes       Date:  2018-12-05       Impact factor: 3.186
  3 in total

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