Literature DB >> 19167803

Medical promise and the recalibration of expectation: hope and HIV treatment engagement in a transitional setting.

Tim Rhodes1, Sarah Bernays, Katarina Janković Terzić.   

Abstract

Globalising discourses of HIV treatment scale-up emphasise a meta-narrative of hope and restitution for the HIV pandemic. Between 2005 and 2007, we undertook qualitative baseline and longitudinal research with people living with HIV/AIDS in the transitional setting of Serbia. We draw here upon the thematic analyses of baseline and prospective interview accounts of 20 individuals. These describe a condition of pervasive treatment insecurity, characterised by the inconsistent availability of medicines for combination HIV treatment and illness monitoring tests. Such treatment insecurity fostered treatment doubts, and sometimes resistance. Narratives position treatment hope and expectation in relation to the collision of three forms of time horizon: 'biographical', 'clinical' and 'transition'. Clinical time extends beyond shrinking biographical time, which is running out while people are constrained to wait for the treatment system to deliver. The uncertainty produced by this is moderated via a meta-narrative of transition. Transition narratives offer a bridge between old and new Europe, and between hope and the recalibration of expectation. They accept an inevitability of uncertainty while leaving open the possibility of slow progress to a better treatment future. This protects against a giving-up at once of self and nation-state, and enables the continuation of the waiting game that characterises transition, and in which patients and expert systems engage. This study illustrates the double-edge of medical promise in a transitional setting. It shows that disjuncture between discourses of global promise and local expectation creates uncertainty which affected individuals have to find some way of accounting for.

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Year:  2009        PMID: 19167803     DOI: 10.1016/j.socscimed.2008.12.017

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  11 in total

1.  Systemic barriers accessing HIV treatment among people who inject drugs in Russia: a qualitative study.

Authors:  Anya Sarang; Tim Rhodes; Nicolas Sheon
Journal:  Health Policy Plan       Date:  2012-11-28       Impact factor: 3.344

2.  Policing drug users in Russia: risk, fear, and structural violence.

Authors:  Anya Sarang; Tim Rhodes; Nicolas Sheon; Kimberly Page
Journal:  Subst Use Misuse       Date:  2010-05       Impact factor: 2.164

3.  'Not Until I'm Absolutely Half-Dead and Have To:' Accounting for Non-Use of Antiretroviral Therapy in Semi-Structured Interviews with People Living with HIV in Australia.

Authors:  Christy E Newman; Limin Mao; Asha Persson; Martin Holt; Sean Slavin; Michael R Kidd; Jeffrey J Post; Edwina Wright; John de Wit
Journal:  AIDS Patient Care STDS       Date:  2015-03-25       Impact factor: 5.078

4.  Factors shaping expectations for complete relief from symptoms during rehabilitation for patients with spine pain.

Authors:  Mark D Bishop; Paul Mintken; Joel E Bialosky; Joshua A Cleland
Journal:  Physiother Theory Pract       Date:  2018-02-16       Impact factor: 2.279

5.  Hope Matters: Developing and Validating a Measure of Future Expectations Among Young Women in a High HIV Prevalence Setting in Rural South Africa (HPTN 068).

Authors:  Laurie Abler; Lauren Hill; Suzanne Maman; Robert DeVellis; Rhian Twine; Kathleen Kahn; Catherine MacPhail; Audrey Pettifor
Journal:  AIDS Behav       Date:  2017-07

6.  Hope, the Household Environment, and Sexual Risk Behaviors Among Young Women in Rural South Africa (HPTN 068).

Authors:  Lauren M Hill; Laurie Abler; Suzanne Maman; Rhian Twine; Kathleen Kahn; Catherine MacPhail; Audrey Pettifor
Journal:  AIDS Behav       Date:  2018-06

7.  Eliciting critical hope in community-based HIV research with transgender women in Toronto, Canada: methodological insights.

Authors:  Carmen H Logie; David J Kinitz; Lesley Gittings; Yasmeen Persad; Ashley Lacombe-Duncan; Tonia Poteat
Journal:  Health Promot Int       Date:  2022-06-23       Impact factor: 3.734

8.  Is the promise of methadone Kenya's solution to managing HIV and addiction? A mixed-method mathematical modelling and qualitative study.

Authors:  Tim Rhodes; Andy Guise; James Ndimbii; Steffanie Strathdee; Elizabeth Ngugi; Lucy Platt; Ann Kurth; Charles Cleland; Peter Vickerman
Journal:  BMJ Open       Date:  2015-03-06       Impact factor: 2.692

9.  A qualitative study of changes in expectations over time among patients with chronic low back pain seeking four CAM therapies.

Authors:  Emery R Eaves; Karen J Sherman; Cheryl Ritenbaugh; Clarissa Hsu; Mark Nichter; Judith A Turner; Daniel C Cherkin
Journal:  BMC Complement Altern Med       Date:  2015-02-05       Impact factor: 3.659

10.  Families as catalysts for peer adherence support in enhancing hope for people living with HIV/AIDS in South Africa.

Authors:  Caroline Masquillier; Edwin Wouters; Dimitri Mortelmans; Frederik le Roux Booysen
Journal:  J Int AIDS Soc       Date:  2014-04-03       Impact factor: 5.396

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