PURPOSE: The purpose of this focused ethnographic study was to explore the quality of life (QOL) of school-age heart-transplant recipients. DESIGN AND METHODS: Semistructured interviews were conducted with 11 parent-child dyads. Data were analyzed using content analysis and constant comparison. RESULTS: Participants identified key factors impacting the children's QOL including: participation in normal activities, normalcy, staying healthy, sources of strength and support, and struggles (parents' perspectives) and doing what kids do, being with family and friends, and being a heart transplant kid (children's perspectives). PRACTICE IMPLICATIONS: Interventions focusing on the key factors identified by participants may impact the QOL of school-age heart-transplant recipients.
PURPOSE: The purpose of this focused ethnographic study was to explore the quality of life (QOL) of school-age heart-transplant recipients. DESIGN AND METHODS: Semistructured interviews were conducted with 11 parent-child dyads. Data were analyzed using content analysis and constant comparison. RESULTS:Participants identified key factors impacting the children's QOL including: participation in normal activities, normalcy, staying healthy, sources of strength and support, and struggles (parents' perspectives) and doing what kids do, being with family and friends, and being a heart transplant kid (children's perspectives). PRACTICE IMPLICATIONS: Interventions focusing on the key factors identified by participants may impact the QOL of school-age heart-transplant recipients.
Authors: Julie A Davis; Michael G McBride; Maryanne R K Chrisant; Sujata M Patil; Brian D Hanna; Stephen M Paridon Journal: J Heart Lung Transplant Date: 2006-05-02 Impact factor: 10.247
Authors: John M Tilford; Scott D Grosse; James M Robbins; Jeffrey M Pyne; Mario A Cleves; Charlotte A Hobbs Journal: Qual Life Res Date: 2005-05 Impact factor: 4.147
Authors: Eyal Shemesh; Rachel A Annunziato; Benjamin L Shneider; Jeffrey H Newcorn; Jill K Warshaw; Christina A Dugan; Bruce D Gelb; Nanda Kerkar; Rachel Yehuda; Sukru Emre Journal: Pediatr Transplant Date: 2005-10