Literature DB >> 19128286

'I'm not an outsider, I'm his mother!' A phenomenological enquiry into carer experiences of exclusion from acute psychiatric settings.

Claire Wilkinson1, Sue McAndrew.   

Abstract

Contemporary standards and policies advocate carer involvement in planning, implementing, and evaluating mental health services. Critics have questioned why such standards and policies fail to move from rhetoric to reality, this particularly being applicable to carer involvement within acute psychiatric settings. As there is only limited UK research on this topic, this interpretive phenomenological study was undertaken to explore the perceived level of involvement from the perspective of carers of service users who were admitted to acute inpatient settings within the previous 2 years. Interviews were conducted with four individuals who cared for a loved one with a mental illness. The interview analysis was influenced by Van Manen, whose interpretive approach seeks to generate a deeper understanding of the phenomenon under study. Four main themes emerged: powerlessness, feeling isolated, needing to be recognized and valued, and a desire for partnership. The findings reflect the views expressed by carers in other studies, identifying that while carers seek to work in partnership with health-care professionals, at a clinical level they often feel excluded. The study concludes by discussing ways of improving and promoting carer involvement and advocating a partnership in care approach within acute psychiatry.

Entities:  

Mesh:

Year:  2008        PMID: 19128286     DOI: 10.1111/j.1447-0349.2008.00574.x

Source DB:  PubMed          Journal:  Int J Ment Health Nurs        ISSN: 1445-8330            Impact factor:   3.503


  20 in total

1.  Held to ransom: Parents of self-harming adults describe their lived experience of professional care and caregivers.

Authors:  Britt-Marie Lindgren; Sture Aström; Ulla Hällgren Graneheim
Journal:  Int J Qual Stud Health Well-being       Date:  2010-09-24

2.  Next of kin's experiences of involvement during involuntary hospitalisation and coercion.

Authors:  Reidun Førde; Reidun Norvoll; Marit Helene Hem; Reidar Pedersen
Journal:  BMC Med Ethics       Date:  2016-11-24       Impact factor: 2.652

3.  Involved, inputting or informing: "Shared" decision making in adult mental health care.

Authors:  Eleanor Bradley; Debra Green
Journal:  Health Expect       Date:  2017-08-04       Impact factor: 3.377

4.  How to make carer involvement in mental health inpatient units happen: a focus group study with patients, carers and clinicians.

Authors:  Domenico Giacco; Aysegul Dirik; Justina Kaselionyte; Stefan Priebe
Journal:  BMC Psychiatry       Date:  2017-03-21       Impact factor: 3.630

5.  Service users and carers in low- and middle-income countries.

Authors:  Nasser Loza; Randa Effat
Journal:  BJPsych Int       Date:  2017-02-01

6.  Evaluation of the acceptability and usefulness of an information website for caregivers of people with bipolar disorder.

Authors:  Lesley Berk; Michael Berk; Seetal Dodd; Claire Kelly; Stefan Cvetkovski; Anthony Francis Jorm
Journal:  BMC Med       Date:  2013-07-11       Impact factor: 8.775

7.  Involving the family in the care and treatment of women with postpartum psychosis: Swedish psychiatrists' experiences.

Authors:  I Engqvist; K Nilsson
Journal:  Psychiatry J       Date:  2013-01-29

Review 8.  Implementing family involvement in the treatment of patients with psychosis: a systematic review of facilitating and hindering factors.

Authors:  Erica Eassom; Domenico Giacco; Aysegul Dirik; Stefan Priebe
Journal:  BMJ Open       Date:  2014-10-03       Impact factor: 2.692

Review 9.  Why involve families in acute mental healthcare? A collaborative conceptual review.

Authors:  Aysegul Dirik; Sima Sandhu; Domenico Giacco; Katherine Barrett; Gerry Bennison; Sue Collinson; Stefan Priebe
Journal:  BMJ Open       Date:  2017-09-27       Impact factor: 2.692

10.  A cluster randomised controlled trial and process evaluation of a training programme for mental health professionals to enhance user involvement in care planning in service users with severe mental health issues (EQUIP): study protocol for a randomised controlled trial.

Authors:  Peter Bower; Chris Roberts; Neil O'Leary; Patrick Callaghan; Penny Bee; Claire Fraser; Chris Gibbons; Nicola Olleveant; Anne Rogers; Linda Davies; Richard Drake; Caroline Sanders; Oonagh Meade; Andrew Grundy; Lauren Walker; Lindsey Cree; Kathryn Berzins; Helen Brooks; Susan Beatty; Patrick Cahoon; Anita Rolfe; Karina Lovell
Journal:  Trials       Date:  2015-08-13       Impact factor: 2.279

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