Anastasios N Kanatas1, Simon N Rogers. 1. Specialty registrar in Oral and Maxillofacial Surgery, Leeds and St. James University Hospitals NHS Trust, Great George Street, Leeds, UK.
Abstract
AIMS AND BACKGROUND: There is a plethora of instruments which measure health-related quality of life (HRQOL), although only a fraction of these have been used in surgical studies and palliative care. Clinicians involved in the management of head and neck pathology face the difficult task of selecting the instrument most suited to the aspect of the patients' perspective that they want to measure. The aim of this article is to guide head and neck trainees in deciding on the use of the appropriate instrument for evaluation of the patient's perspective. METHODS AND STUDY DESIGN: The two authors independently searched and scrutinized the literature. The ISI search engine with cross-reference using PubMed and Ovid was searched with the terms "quality of life", "questionnaire" and specific specialty terms. Studies written in the English language were selected and the abstracts searched for evidence of patient self-completed questionnaires and HRQOL outcome. RESULTS: There are five broad category headings into which quality of life studies in head and neck oncology can be divided. These include: patient performance questionnaires, generic quality of life questionnaires, generic cancer questionnaires, head and neck cancer questionnaires, and head and neck functional questionnaires. CONCLUSIONS: Patient perspective can be assessed using a number of instruments, including open interview, semi-structured interview, and the simple questionnaire. The choice of instrument depends somewhat on personal preference, the outcomes being measured, and available resources.
AIMS AND BACKGROUND: There is a plethora of instruments which measure health-related quality of life (HRQOL), although only a fraction of these have been used in surgical studies and palliative care. Clinicians involved in the management of head and neck pathology face the difficult task of selecting the instrument most suited to the aspect of the patients' perspective that they want to measure. The aim of this article is to guide head and neck trainees in deciding on the use of the appropriate instrument for evaluation of the patient's perspective. METHODS AND STUDY DESIGN: The two authors independently searched and scrutinized the literature. The ISI search engine with cross-reference using PubMed and Ovid was searched with the terms "quality of life", "questionnaire" and specific specialty terms. Studies written in the English language were selected and the abstracts searched for evidence of patient self-completed questionnaires and HRQOL outcome. RESULTS: There are five broad category headings into which quality of life studies in head and neck oncology can be divided. These include: patient performance questionnaires, generic quality of life questionnaires, generic cancer questionnaires, head and neck cancer questionnaires, and head and neck functional questionnaires. CONCLUSIONS: Patient perspective can be assessed using a number of instruments, including open interview, semi-structured interview, and the simple questionnaire. The choice of instrument depends somewhat on personal preference, the outcomes being measured, and available resources.
Authors: Ivana Petrovic; Hina Panchal; Paula Demetrio De Souza Franca; Marisol Hernandez; Colleen C McCarthy; Jatin P Shah Journal: Head Neck Date: 2018-12-12 Impact factor: 3.147
Authors: A Kanatas; N Ghazali; D Lowe; M Udberg; J Heseltine; E O'Mahony; S N Rogers Journal: Eur Arch Otorhinolaryngol Date: 2012-06-29 Impact factor: 2.503
Authors: S N Rogers; E S Hogg; W K A Cheung; L K L Lai; P Jassal; D Lowe; A Kanatas Journal: Eur Arch Otorhinolaryngol Date: 2014-07-22 Impact factor: 2.503
Authors: Joseph M Herman; Helen Kitchen; Arnold Degboe; Natalie V J Aldhouse; Andrew Trigg; Mary Hodgin; Amol Narang; Colin D Johnson Journal: Qual Life Res Date: 2019-07-04 Impact factor: 4.147
Authors: Arnold Degboe; Sarah L Knight; Katarina Halling; Andrew Trigg; Tamara Al-Zubeidi; Natalie Aldhouse; Helen Kitchen; Lori Wirth; Simon N Rogers Journal: J Patient Rep Outcomes Date: 2018-08-01