Literature DB >> 19077062

The needs of carers of people with multiple sclerosis: a literature review.

Margarita Corry1, Alison While.   

Abstract

People with multiple sclerosis depend heavily upon their families and other informal carers as they receive limited support from health-care professionals or health-care services. Adopting the carer role results in a life-changing experience, which may bring rewards and challenges to the carer. This paper reviews the research addressing the experiences of carers of people with multiple sclerosis published between 2002 and 2007 building upon an earlier review. The literature suggests that carers have needs across various domains and that spouses/partners have particular needs. Much of the evidence has limited generalizibility although the geographical spread of the evidence indicates considerable consistency of need. The review describes ongoing carer needs which require supportive care and provides the basis for the development and testing of carer interventions for use by health-care professionals.
© 2008 The Authors. Journal compilation © 2008 Nordic College of Caring Science.

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Mesh:

Year:  2008        PMID: 19077062     DOI: 10.1111/j.1471-6712.2008.00645.x

Source DB:  PubMed          Journal:  Scand J Caring Sci        ISSN: 0283-9318


  10 in total

1.  "It's just horrible": a qualitative study of patients' and carers' experiences of bowel dysfunction in multiple sclerosis.

Authors:  Lesley Dibley; Maureen Coggrave; Doreen McClurg; Sue Woodward; Christine Norton
Journal:  J Neurol       Date:  2017-05-26       Impact factor: 4.849

2.  Telephone interventions, delivered by healthcare professionals, for providing education and psychosocial support for informal caregivers of adults with diagnosed illnesses.

Authors:  Margarita Corry; Kathleen Neenan; Sally Brabyn; Greg Sheaf; Valerie Smith
Journal:  Cochrane Database Syst Rev       Date:  2019-05-14

3.  Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis.

Authors:  E Bayen; C Papeix; P Pradat-Diehl; C Lubetzki; M E Joël
Journal:  Behav Neurol       Date:  2015-05-20       Impact factor: 3.342

4.  Mediational Model of Multiple Sclerosis Impairments, Family Needs, and Caregiver Mental Health in Guadalajara, Mexico.

Authors:  Melody N Mickens; Paul B Perrin; Adriana Aguayo; Brenda Rabago; Miguel A Macías-Islas; Juan Carlos Arango-Lasprilla
Journal:  Behav Neurol       Date:  2018-01-17       Impact factor: 3.342

5.  Design and Preliminary Evaluation of a New Ankle Foot Orthosis on Kinetics and Kinematics parameters for Multiple Sclerosis Patients.

Authors:  Keyvani Hafshejani A; Aminian Gh; Azimian M; Bahramizadeh M; Safaeepour Z; Biglarian A; Keivani M
Journal:  J Biomed Phys Eng       Date:  2020-12-01

6.  "I would stress less if I knew that the nurse is taking care of it": Multiple Sclerosis inpatients' and health care professionals' views of their nursing-experience and nursing consultation in rehabilitation-a qualitative study.

Authors:  Verena Witzig-Brändli; Cordula Lange; Sabine Gschwend; Myrta Kohler
Journal:  BMC Nurs       Date:  2022-08-23

7.  Relational Satisfaction of Spousal/Partner Informal Caregivers of People with Multiple Sclerosis: Relational Commitment, Caregiving Burden, and Prorelational Behavioral Tendencies.

Authors:  Moira Tzitzika; Efthymios Lampridis; Dimitris Kalamaras
Journal:  Int J MS Care       Date:  2020 Mar-Apr

8.  Self-help Acceptance and Commitment Therapy for Carers of People with Multiple Sclerosis: A Feasibility Randomised Controlled Trial.

Authors:  Kristy-Jane Potter; Nima Golijana-Moghaddam; Nikos Evangelou; Jacqueline R Mhizha-Murira; Roshan das Nair
Journal:  J Clin Psychol Med Settings       Date:  2021-06

9.  Understanding leisure-time physical activity: Voices of people with MS who have moderate-to-severe disability and their family caregivers.

Authors:  Afolasade Fakolade; Julie Lamarre; Amy Latimer-Cheung; Trisha Parsons; Sarah A Morrow; Marcia Finlayson
Journal:  Health Expect       Date:  2017-07-19       Impact factor: 3.377

Review 10.  A systematic review of the effectiveness of self-management interventions in people with multiple sclerosis at improving depression, anxiety and quality of life.

Authors:  Tara Kidd; Nicola Carey; Freda Mold; Sue Westwood; Maria Miklaucich; Emmanouela Konstantara; Annette Sterr; Debbie Cooke
Journal:  PLoS One       Date:  2017-10-11       Impact factor: 3.240

  10 in total

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