Literature DB >> 19032619

Multiple views reveal the complexity of dementia diagnosis.

Andrew L Robinson1, Carolyn G Emden, Jean A Elder, Emma J Lea, James C Vickers, Paul A Turner.   

Abstract

OBJECTIVE: To reveal views about dementia diagnosis derived from a larger study of information needs of carers of people with dementia in Tasmania, Australia.
METHODS: Over 100 participants, including family carers, health professionals and dementia service personnel, met as discrete focus groups. Data pertinent to dementia diagnosis were segregated and subjected to across-group comparative analysis.
RESULTS: The term dementia held connotations of stigma and futility, despite stated benefits of having a diagnosis. General practitioners were regarded as pivotal but having inadequate diagnostic and treatment options. While most health professionals advocated a longitudinal diagnostic process, this created considerable stress for family carers who sought a speedy process. Without a diagnosis, some dementia-specific services were undeliverable.
CONCLUSION: Dementia diagnosis is steeped in deep-rooted difficulties and stressful implications, compounded by carers' differing needs and interests. Better understanding between care providers of their conflicting and consistent views could contribute to better dementia care.

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Year:  2008        PMID: 19032619     DOI: 10.1111/j.1741-6612.2008.00316.x

Source DB:  PubMed          Journal:  Australas J Ageing        ISSN: 1440-6381            Impact factor:   2.111


  4 in total

Review 1.  Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies.

Authors:  Jeanette C Prorok; Salinda Horgan; Dallas P Seitz
Journal:  CMAJ       Date:  2013-09-03       Impact factor: 8.262

2.  Difficulties in disclosing the diagnosis of dementia: a qualitative study in general practice.

Authors:  Jill Phillips; Constance Dimity Pond; Nerida Elizabeth Paterson; Cate Howell; Allan Shell; Nigel P Stocks; Susan M Goode; John E Marley
Journal:  Br J Gen Pract       Date:  2012-08       Impact factor: 5.386

3.  Understanding diagnosis and management of dementia and guideline implementation in general practice: a qualitative study using the theoretical domains framework.

Authors:  Kerry Murphy; Denise A O'Connor; Colette J Browning; Simon D French; Susan Michie; Jill J Francis; Grant M Russell; Barbara Workman; Leon Flicker; Martin P Eccles; Sally E Green
Journal:  Implement Sci       Date:  2014-03-03       Impact factor: 7.327

4.  Treatment goal setting for complex patients: protocol for a scoping review.

Authors:  Agnes Grudniewicz; Michelle Nelson; Kerry Kuluski; Vincci Lui; Heather V Cunningham; Jason X Nie; Heather Colquhoun; Walter P Wodchis; Susan Taylor; Mayura Loganathan; Ross E Upshur
Journal:  BMJ Open       Date:  2016-05-25       Impact factor: 2.692

  4 in total

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