Literature DB >> 18999298

Synthesizing community wisdom: A model for sharing cancer-related resources through social networking and collaborative partnerships.

Jacob B Weiss1, Nancy M Lorenzi, Nancy Lorenzi.   

Abstract

Despite the availability of community-based support services, cancer patients and survivors are not aware of many of these resources. Without access to community programs, cancer survivors are at risk for lower quality of care and lower quality of life. At the same time, non-profit community organizations lack access to advanced consumer informatics applications to effectively promote awareness of their services. In addition to the current models of print and online resource guides, new community-driven informatics approaches are needed to achieve the goal of comprehensive care for cancer survivors. We present the formulation of a novel model for synthesizing a local communitys collective wisdom of cancer-related resources through a combination of online social networking technologies and real-world collaborative partnerships. This approach can improve awareness of essential, but underutilized community resources.

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Mesh:

Year:  2008        PMID: 18999298      PMCID: PMC2656050     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  2 in total

1.  CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved.

Authors:  David H Gustafson; Robert P Hawkins; Eric W Boberg; Fiona McTavish; Betta Owens; Meg Wise; Haile Berhe; Suzanne Pingree
Journal:  Int J Med Inform       Date:  2002-11-12       Impact factor: 4.046

2.  Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: patient and provider perspectives.

Authors:  E G Eakin; L A Strycker
Journal:  Psychooncology       Date:  2001 Mar-Apr       Impact factor: 3.894

  2 in total
  5 in total

1.  GetHealthyHarlem.org: developing a web platform for health promotion and wellness driven by and for the Harlem community.

Authors:  Sharib A Khan; Jessica S Ancker; Jianhua Li; David Kaufman; Carly Hutchinson; Alwyn Cohall; Rita Kukafka
Journal:  AMIA Annu Symp Proc       Date:  2009-11-14

2.  Catalyzing Social Support for Breast Cancer Patients.

Authors:  Meredith M Skeels; Kenton T Unruh; Christopher Powell; Wanda Pratt
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2010-04

3.  Recommendations for the design, implementation and evaluation of social support in online communities, networks, and groups.

Authors:  Jacob B Weiss; Eta S Berner; Kevin B Johnson; Dario A Giuse; Barbara A Murphy; Nancy M Lorenzi
Journal:  J Biomed Inform       Date:  2013-04-11       Impact factor: 6.317

4.  Managing the personal side of health: how patient expertise differs from the expertise of clinicians.

Authors:  Andrea Hartzler; Wanda Pratt
Journal:  J Med Internet Res       Date:  2011-08-16       Impact factor: 5.428

5.  Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.

Authors:  Kim M Unertl; Chris L Schaefbauer; Terrance R Campbell; Charles Senteio; Katie A Siek; Suzanne Bakken; Tiffany C Veinot
Journal:  J Am Med Inform Assoc       Date:  2015-07-30       Impact factor: 4.497

  5 in total

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