Literature DB >> 18955845

I am doing the best that I can!: Living with inflammatory bowel disease and/or irritable bowel syndrome (part II).

Paula C Fletcher1, Margaret A Schneider, Valerie Van Ravenswaay, Zaida Leon.   

Abstract

INTRODUCTION: Inflammatory bowel disease (IBD) (Crohn disease or ulcerative colitis) and irritable bowel syndrome (IBS) are 2 gastrointestinal (GI) disorders that are chronic, are debilitating, and diminish quality of life and have no known etiology. Persons with IBD and/or IBS share similar signs and symptoms, although IBS does not result in intestinal inflammation/alteration or increase one's risk for colorectal cancer as does IBD. The literature reports different mechanisms by which to cope with a GI disorder; however, few studies have focused on the life experiences/coping abilities from the perspective of those who have a GI disorder. As such, exploring the lived experiences of women diagnosed with IBD and/or IBS would provide information about coping strategies from the perspective of those affected, which in turn would be useful for other individuals affected by these conditions and individuals treating patients with GI disorders.
PURPOSE: The overall objective of this research was to explore the lived experiences of women diagnosed with the GI disorders of IBD and/or IBS. This article will focus on the strategies that women used for coping with such a diagnosis.
METHODOLOGY: Eight women diagnosed with IBD and/or IBS were recruited from a university in southern Ontario, Canada. Each woman completed a background questionnaire, an e-mail interview, and a face-to-face interview. These data were subsequently analyzed for trends using phenomenology to direct the analysis.
RESULTS: Women reported using a number of strategies to help them cope with their diagnosis of IBD or IBS: positive attitude, support, controlling the situation and surroundings, distraction/ignoring the problem, relaxation techniques, and education/knowledge.
CONCLUSIONS: This research enables women to share their experiences concerning their coping strategies used in the management of IBD and/or IBS. The qualitative nature of this study provides the "voice" of women who have a GI disorder, which is often lacking in the literature, thus providing healthcare professionals with insight into the feelings and experiences of these women. The inability to understand the experiences of individuals with chronic conditions can act as a barrier in the treatment and interaction/rapport between healthcare professional and client.

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Mesh:

Year:  2008        PMID: 18955845     DOI: 10.1097/01.NUR.0000325382.99717.ac

Source DB:  PubMed          Journal:  Clin Nurse Spec        ISSN: 0887-6274            Impact factor:   1.067


  10 in total

1.  Understanding gastrointestinal distress: a framework for clinical practice.

Authors:  Brennan M R Spiegel; Dinesh Khanna; Roger Bolus; Nikhil Agarwal; Puja Khanna; Lin Chang
Journal:  Am J Gastroenterol       Date:  2011-03       Impact factor: 10.864

2.  The burden of inflammatory bowel disease: a patient-reported qualitative analysis and development of a conceptual model.

Authors:  Jennifer Devlen; Kathleen Beusterien; Linnette Yen; Awais Ahmed; Adam S Cheifetz; Alan C Moss
Journal:  Inflamm Bowel Dis       Date:  2014-03       Impact factor: 5.325

3.  Experiences of patients with chronic gastrointestinal conditions: in their own words.

Authors:  Jennifer B McCormick; Rachel R Hammer; Ruth M Farrell; Gail Geller; Katherine M James; Edward V Loftus; Mary Beth Mercer; Jon C Tilburt; Richard R Sharp
Journal:  Health Qual Life Outcomes       Date:  2012-03-08       Impact factor: 3.186

4.  Adolescents' Lived Experiences While Hospitalized After Surgery for Ulcerative Colitis.

Authors:  Ida Østrup Olsen; Susanne Jensen; Lene Larsen; Erik Elgaard Sørensen
Journal:  Gastroenterol Nurs       Date:  2016 Jul-Aug       Impact factor: 0.978

5.  Adapting to ulcerative colitis to try to live a 'normal' life: a qualitative study of patients' experiences in the Midlands region of England.

Authors:  Christel McMullan; Thomas D Pinkney; Laura L Jones; Laura Magill; Dmitri Nepogodiev; Shri Pathmakanthan; Rachel Cooney; Jonathan M Mathers
Journal:  BMJ Open       Date:  2017-08-21       Impact factor: 2.692

6.  Patient self-reported concerns in inflammatory bowel diseases: A gender-specific subjective quality-of-life indicator.

Authors:  Valérie Pittet; Carla Vaucher; Florian Froehlich; Bernard Burnand; Pierre Michetti; Michel H Maillard
Journal:  PLoS One       Date:  2017-02-10       Impact factor: 3.240

7.  The lived experience of adults with cystic fibrosis: what they would tell their younger selves about the gut.

Authors:  L Cave; L J Milnes
Journal:  J Hum Nutr Diet       Date:  2019-11-25       Impact factor: 3.089

Review 8.  Understanding the health and social care needs of people living with IBD: a meta-synthesis of the evidence.

Authors:  Karen Kemp; Jane Griffiths; Karina Lovell
Journal:  World J Gastroenterol       Date:  2012-11-21       Impact factor: 5.742

9.  A qualitative study exploring the health-related quality of life and symptomatic experiences of adults and adolescents with ulcerative colitis.

Authors:  Louise Newton; Jason A Randall; Theresa Hunter; Shannon Keith; Tara Symonds; Roberta J Secrest; Wendy J Komocsar; Sarah E Curtis; Linda Abetz-Webb; Michael Kappelman; April N Naegeli
Journal:  J Patient Rep Outcomes       Date:  2019-10-30

10.  Experience Lived by Iranian Patients with Irritable Bowel Syndrome: Transitory Crisis and Liberation.

Authors:  Zinat Mohebbi; Farkhondeh Sharif; Hamid Peyrovi; Mahnaz Rakhshan; Mahvash Alizade Naini; Ladan Zarshenas
Journal:  Invest Educ Enferm       Date:  2019-09
  10 in total

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