Literature DB >> 18936543

Frontotemporal dementia: change of familial caregiver burden and partner relation in a Dutch cohort of 63 patients.

Samantha Riedijk1, Hugo Duivenvoorden, Sonia Rosso, John Van Swieten, Martinus Niermeijer, Aad Tibben.   

Abstract

BACKGROUND/AIMS: The current study examined the change of caregiver burden and the development of the quality of the partner relation in frontotemporal dementia (FTD).
METHODS: During a 2-year period, deterioration, behavioural problems, caregiver burden, general psychopathology, quality of life, social support, coping strategies and relationship quality were inspected in 63 FTD caregiver-care recipient dyads.
RESULTS: After 2 years patients reached maximum dementia severity with stable Neuropsychiatric Inventory levels. Contrary to expectations, caregiver burden decreased and psychological well-being remained stable. Coping style and social support changed unfavourably. Relationship closeness and getting along were preserved, whereas communication and sharing viewpoint on life were dramatically reduced.
CONCLUSIONS: FTD caregivers need support in coping with the increasingly hopeless situation of their patients. Future research methods into caregiver burden should address response shift as a means for psychological adjustment. Copyright 2008 S. Karger AG, Basel.

Entities:  

Mesh:

Year:  2008        PMID: 18936543     DOI: 10.1159/000164276

Source DB:  PubMed          Journal:  Dement Geriatr Cogn Disord        ISSN: 1420-8008            Impact factor:   2.959


  10 in total

Review 1.  [Carer burden in dementia: origins and intervention].

Authors:  A Kurz; G Wilz
Journal:  Nervenarzt       Date:  2011-03       Impact factor: 1.214

2.  Relationship Turmoil and Emotional Empathy in Frontotemporal Dementia.

Authors:  Akitoshi Takeda; Virginia E Sturm; Katherine P Rankin; Robin Ketelle; Bruce L Miller; David C Perry
Journal:  Alzheimer Dis Assoc Disord       Date:  2019 Jul-Sep       Impact factor: 2.703

3.  Caregiver burden in frontotemporal degeneration and corticobasal syndrome.

Authors:  Nicole Armstrong; Nicole Schupf; Jordan Grafman; Edward D Huey
Journal:  Dement Geriatr Cogn Disord       Date:  2013-09-10       Impact factor: 2.959

4.  Frontotemporal dementia: the impact of patient behavioral symptoms on the physical and mental health of family caregivers.

Authors:  Cindy C Wong; Margaret I Wallhagen
Journal:  Dement Geriatr Cogn Dis Extra       Date:  2012-11-17

5.  Dignity in people with frontotemporal dementia and similar disorders - a qualitative study of the perspective of family caregivers.

Authors:  Mette Sagbakken; Dagfinn Nåden; Ingun Ulstein; Kari Kvaal; Birgitta Langhammer; May-Karin Rognstad
Journal:  BMC Health Serv Res       Date:  2017-06-23       Impact factor: 2.655

6.  Metaphors for the Meaning of Caring for a Spouse with Dementia.

Authors:  Kirsten Thorsen; Aud Johannessen
Journal:  J Multidiscip Healthc       Date:  2021-01-29

Review 7.  A Call for Drug Therapies for the Treatment of Social Behavior Disorders in Dementia: Systematic Review of Evidence and State of the Art.

Authors:  Chiara Cerami; Giulia Perini; Andrea Panzavolta; Matteo Cotta Ramusino; Alfredo Costa
Journal:  Int J Mol Sci       Date:  2022-09-30       Impact factor: 6.208

8.  Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study.

Authors:  Patricia Lillo; Eneida Mioshi; John R Hodges
Journal:  BMC Neurol       Date:  2012-12-07       Impact factor: 2.474

9.  Cultural differences are reflected in variables associated with carer burden in FTD: a comparison study between India and Australia.

Authors:  Shailaja Mekala; Suvarna Alladi; Kammammettu Chandrasekar; Safiya Fathima; Claire M O 'Connor; Colleen McKinnon; Michael Hornberger; Olivier Piguet; John R Hodges; Eneida Mioshi
Journal:  Dement Neuropsychol       Date:  2013 Jan-Mar

10.  Caregiver burden in patients with behavioural variant frontotemporal dementia and non-fluent variant and semantic variant primary progressive aphasia.

Authors:  Michael Guger; Stefan Raschbacher; Lukas Kellermair; Milan R Vosko; Christian Eggers; Thomas Forstner; Karin Leitner; Alexandra Fuchs; Franz Fellner; Gerhard Ransmayr
Journal:  J Neural Transm (Vienna)       Date:  2021-07-19       Impact factor: 3.575

  10 in total

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