Literature DB >> 18834710

The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL).

Nancy L Young1, James W Varni, Laurie Snider, Anna McCormick, Bonita Sawatzky, Marjorie Scott, Gillian King, Ross Hetherington, Ellen Sears, David Nicholas.   

Abstract

OBJECTIVE: This study tested the impact of web administration on well-established measures of children's physical function and quality of life. STUDY DESIGN AND
SETTING: Participants were recruited from clinics at six hospitals. They completed the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL) questionnaires twice, in a crossover design that used paper and web-based modes of administration. Intraclass correlation coefficients were used to assess the validity of the new web formats relative to the original paper formats and their test-retest reliability.
RESULTS: Sixty-nine children ranging in age from 8.0 to 13.4 years (mean=11.0 years) completed the study. The sample included children with cerebral palsy (19), spina bifida (23), and cystic fibrosis (27). The mean ASK score was 77.5 and the mean PedsQL score was 69.1. The intermethod intraclass correlation coefficients were 0.98 (lower limit 0.94) for the ASK and 0.64 (lower limit 0.35) for the PedsQL. These compare to intraclass correlation coefficients of 0.99 and 0.94, respectively, for traditional paper formats.
CONCLUSION: The web ASK was valid in comparison to the original paper format. Consistency in mode of administration may be more important when using the PedsQL. Both measures were highly reliable on paper and on the web.

Entities:  

Mesh:

Year:  2008        PMID: 18834710     DOI: 10.1016/j.jclinepi.2008.06.011

Source DB:  PubMed          Journal:  J Clin Epidemiol        ISSN: 0895-4356            Impact factor:   6.437


  16 in total

1.  Patient-Reported Outcomes Measurement Information System Tools for Collecting Patient-Reported Outcomes in Children With Juvenile Arthritis.

Authors:  Timothy G Brandon; Brandon D Becker; Katherine B Bevans; Pamela F Weiss
Journal:  Arthritis Care Res (Hoboken)       Date:  2017-03       Impact factor: 4.794

2.  Persistent pain in a community-based sample of children and adolescents.

Authors:  Samantha Fuss; Gabrielle Pagé; Joel Katz
Journal:  Pain Res Manag       Date:  2011 Sep-Oct       Impact factor: 3.037

3.  Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.

Authors:  L Coombes; K Bristowe; C Ellis-Smith; J Aworinde; L K Fraser; J Downing; M Bluebond-Langner; L Chambers; F E M Murtagh; R Harding
Journal:  Qual Life Res       Date:  2021-03-18       Impact factor: 4.147

Review 4.  Equivalence of electronic and paper-based patient-reported outcome measures.

Authors:  Niloufar Campbell; Faraz Ali; Andrew Y Finlay; Sam S Salek
Journal:  Qual Life Res       Date:  2015-02-22       Impact factor: 4.147

5.  Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application.

Authors:  Lotte Haverman; Vivian Engelen; Marion A J van Rossum; Hugo S A Heymans; Martha A Grootenhuis
Journal:  BMC Pediatr       Date:  2011-01-12       Impact factor: 2.125

6.  Effectiveness of a web-based protocol for the screening and phenotyping of individuals with Tourette syndrome for genetic studies.

Authors:  Crystelle A Egan; Susan E Marakovitz; Julia A O'Rourke; Lisa Osiecki; Cornelia Illmann; Lauren Barton; Elizabeth McLaughlin; Rachel Proujansky; Justin Royal; Heather Cowley; Martha Rangel-Lugo; David L Pauls; Jeremiah M Scharf; Carol A Mathews
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2012-10-22       Impact factor: 3.568

7.  Health-related quality of life over time in children with eosinophilic esophagitis and their families.

Authors:  Mary D Klinnert; Lori Silveira; Rachel Harris; Wendy Moore; Dan Atkins; David M Fleischer; Calies Menard-Katcher; Seema Aceves; Jonathan M Spergel; James P Franciosi; Glenn T Furuta
Journal:  J Pediatr Gastroenterol Nutr       Date:  2014-09       Impact factor: 2.839

8.  Disordered eating behaviors in adolescents with celiac disease.

Authors:  Itay Tokatly Latzer; Liat Lerner-Geva; Daniel Stein; Batia Weiss; Orit Pinhas-Hamiel
Journal:  Eat Weight Disord       Date:  2018-10-27       Impact factor: 4.652

Review 9.  Equivalence of electronic and paper administration of patient-reported outcome measures: a systematic review and meta-analysis of studies conducted between 2007 and 2013.

Authors:  Willie Muehlhausen; Helen Doll; Nuz Quadri; Bethany Fordham; Paul O'Donohoe; Nijda Dogar; Diane J Wild
Journal:  Health Qual Life Outcomes       Date:  2015-10-07       Impact factor: 3.186

10.  Validity of the Aboriginal children's health and well-being measure: Aaniish Naa Gegii?

Authors:  Nancy L Young; Mary Jo Wabano; Koyo Usuba; Brenda Pangowish; Mélanie Trottier; Diane Jacko; Tricia A Burke; Rita G Corbiere
Journal:  Health Qual Life Outcomes       Date:  2015-09-17       Impact factor: 3.186

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