Literature DB >> 18815853

The Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias: an interdisciplinary approach.

Erin M Carter1, Lorraine Montuori, Jessica G Davis, Cathleen L Raggio.   

Abstract

Skeletal dysplasias are a group of over 300 genetic conditions often marked by short stature and a range of orthopedic problems. To meet the diverse medical, orthopedic, and psychosocial needs of individuals with skeletal dysplasias, the Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias was organized at Hospital for Special Surgery in 2003. The center is the only one of its kind in the New York City metropolitan area and is dedicated to providing comprehensive medical care for individuals with skeletal dysplasias. The center is staffed by an interdisciplinary core team of health professionals consisting of an orthopedic surgeon, a medical geneticist, a genetic counselor/clinical coordinator, and a social worker. This interdisciplinary team of health professionals is committed to improving the quality of life for people with skeletal dysplasias through clinical care, research, education, and patient advocacy. Goals are achieved through a collaborative process that utilizes the expertise of the different professionals.

Entities:  

Year:  2008        PMID: 18815853      PMCID: PMC2553170          DOI: 10.1007/s11420-008-9076-5

Source DB:  PubMed          Journal:  HSS J        ISSN: 1556-3316


  10 in total

1.  Improving primary care for patients with chronic illness.

Authors:  Thomas Bodenheimer; Edward H Wagner; Kevin Grumbach
Journal:  JAMA       Date:  2002-10-09       Impact factor: 56.272

2.  Hip dysplasia in Hurler's syndrome: orthopaedic management after bone marrow transplantation.

Authors:  E L Masterson; P G Murphy; A O'Meara; D P Moore; F E Dowling; E E Fogarty
Journal:  J Pediatr Orthop       Date:  1996 Nov-Dec       Impact factor: 2.324

Review 3.  Collaborative practice teams: from multidisciplinary to interdisciplinary.

Authors:  M L Warren; S Houston; R Luquire
Journal:  Outcomes Manag Nurs Pract       Date:  1998 Jul-Sep

4.  A meta-analysis of interventions to improve care for chronic illnesses.

Authors:  Alexander C Tsai; Sally C Morton; Carol M Mangione; Emmett B Keeler
Journal:  Am J Manag Care       Date:  2005-08       Impact factor: 2.229

5.  The need for a new medical model: a challenge for biomedicine.

Authors:  G L Engel
Journal:  Science       Date:  1977-04-08       Impact factor: 47.728

Review 6.  Pseudoachondroplasia and multiple epiphyseal dysplasia: New etiologic developments.

Authors:  S Unger; J T Hecht
Journal:  Am J Med Genet       Date:  2001

7.  Qualitative evaluation of regular morning meetings aimed at improving interdisciplinary communication and patient outcomes.

Authors:  Judy Aston; Edward Shi; Helen Bullôt; Robyn Galway; Jackie Crisp
Journal:  Int J Nurs Pract       Date:  2005-10       Impact factor: 2.066

8.  Bone-marrow transplantation in Hurler's syndrome. Effect on skeletal development.

Authors:  R E Field; J A Buchanan; M G Copplemans; P M Aichroth
Journal:  J Bone Joint Surg Br       Date:  1994-11

9.  Pseudoachondroplasia and multiple epiphyseal dysplasia due to mutations in the cartilage oligomeric matrix protein gene.

Authors:  M D Briggs; S M Hoffman; L M King; A S Olsen; H Mohrenweiser; J G Leroy; G R Mortier; D L Rimoin; R S Lachman; E S Gaines
Journal:  Nat Genet       Date:  1995-07       Impact factor: 38.330

10.  Mutations in exon 17B of cartilage oligomeric matrix protein (COMP) cause pseudoachondroplasia.

Authors:  J T Hecht; L D Nelson; E Crowder; Y Wang; F F Elder; W R Harrison; C A Francomano; C K Prange; G G Lennon; M Deere
Journal:  Nat Genet       Date:  1995-07       Impact factor: 38.330

  10 in total

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