Literature DB >> 18793318

'Hands of Time': the experience of establishing a support group for people affected by mesothelioma.

S Moore1, C Teehan, A Cornwall, K Ball, J Thomas.   

Abstract

Expertise and management of mesothelioma are known to vary throughout the UK. The support needs of people with mesothelioma and their family members are poorly understood and poorly met. Support group participation can contribute to the supportive care of people with cancer and their family members by improving adaptation and reinforcing effective coping strategies. This paper describes the initial experience of establishing a support group for people affected by mesothelioma. The structure and process of developing and running the group are described and the challenges involved are discussed. The findings of a small evaluation of the group are presented.

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Mesh:

Year:  2008        PMID: 18793318     DOI: 10.1111/j.1365-2354.2007.00912.x

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  5 in total

Review 1.  Guidelines for the diagnosis and treatment of malignant pleural mesothelioma.

Authors:  Nico van Zandwijk; Christopher Clarke; Douglas Henderson; A William Musk; Kwun Fong; Anna Nowak; Robert Loneragan; Brian McCaughan; Michael Boyer; Malcolm Feigen; David Currow; Penelope Schofield; Beth Ivimey Nick Pavlakis; Jocelyn McLean; Henry Marshall; Steven Leong; Victoria Keena; Andrew Penman
Journal:  J Thorac Dis       Date:  2013-12       Impact factor: 2.895

Review 2.  Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review.

Authors:  Vanessa C Delisle; Stephanie T Gumuchian; Danielle B Rice; Alexander W Levis; Lorie A Kloda; Annett Körner; Brett D Thombs
Journal:  Patient       Date:  2017-06       Impact factor: 3.883

3.  Living beyond expectations: a qualitative study into the experience of long-term survivors with pleural mesothelioma and their carers.

Authors:  Matthew Johnson; Peter Allmark; Angela Tod
Journal:  BMJ Open Respir Res       Date:  2022-05

4.  Quality of life of survivors of malignant pleural mesothelioma in Japan: a cross sectional study.

Authors:  Yasuko Nagamatsu; Isao Oze; Keisuke Aoe; Katsuyuki Hotta; Katsuya Kato; Junko Nakagawa; Keiko Hara; Takumi Kishimoto; Nobukazu Fujimoto
Journal:  BMC Cancer       Date:  2018-03-27       Impact factor: 4.430

5.  Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers.

Authors:  Antonella Granieri; Stella Tamburello; Antonino Tamburello; Silvia Casale; Chiara Cont; Fanny Guglielmucci; Marco Innamorati
Journal:  Neuropsychiatr Dis Treat       Date:  2013-08-14       Impact factor: 2.570

  5 in total

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