Literature DB >> 18786063

Satisfaction with services among people with progressive neurological illnesses and their carers in Australia.

Marita P McCabe1, Candice Roberts, Lucy Firth.   

Abstract

The current study investigated the types of support networks and services accessed by people with progressive neurological illness, as well as the assessment of the usefulness of these services. The participants were 25 people with multiple sclerosis, 15 people with motor neurone disease, 23 people with Parkinson's disease, and six people with Huntington's disease. Twenty-eight professionals who worked with people with these illnesses and 41 carers of people with these illnesses also were interviewed. The results demonstrate that all of the groups of respondents indicated a strong need for basic services (e.g. home help), as well as specialized services (e.g. support groups). These two services also were identified as the most useful services by all of the groups of respondents. The similarities and differences between the groups, as well as the patients and carers, are examined. These findings demonstrate the importance of providing basic services for people with progressive neurological illnesses.

Entities:  

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Year:  2008        PMID: 18786063     DOI: 10.1111/j.1442-2018.2008.00399.x

Source DB:  PubMed          Journal:  Nurs Health Sci        ISSN: 1441-0745            Impact factor:   1.857


  6 in total

1.  The role of support groups in facilitating families in coping with a genetic condition and in discussion of genetic risk information.

Authors:  Gillian Plumridge; Alison Metcalfe; Jane Coad; Paramjit Gill
Journal:  Health Expect       Date:  2011-02-17       Impact factor: 3.377

2.  Utilisation of Healthcare and Associated Services in Huntington's disease: a data mining study.

Authors:  Monica Busse; Dr Hasan Al-Madfai; Joyce Kenkre; G Bernhard Landwehrmeyer; Annarita Bentivoglio; Anne Rosser
Journal:  PLoS Curr       Date:  2011-01-21

3.  Expectations of multiple sclerosis patients and their families: a qualitative study in iran.

Authors:  Shahla Abolhassani; Ahmadreza Yazdannik; Fariba Taleghani; Ahmadreza Zamani
Journal:  Iran Red Crescent Med J       Date:  2015-02-01       Impact factor: 0.611

4.  An Investigation of Perspectives of Respite Admission Among People Living With Amyotrophic Lateral Sclerosis and the Hospitals That Support Them.

Authors:  Michiko Nakai; Yugo Narita; Hidekazu Tomimoto
Journal:  J Prim Care Community Health       Date:  2017-03-08

5.  What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives.

Authors:  Anne Hogden; David Greenfield; Peter Nugus; Matthew C Kiernan
Journal:  Patient Prefer Adherence       Date:  2012-11-27       Impact factor: 2.711

6.  Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson's disease.

Authors:  David Morley; Sarah Dummett; Laura Kelly; Ray Fitzpatrick; Crispin Jenkinson
Journal:  BMC Neurol       Date:  2018-02-17       Impact factor: 2.474

  6 in total

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