Literature DB >> 18705740

Ethical dilemmas of a large national multi-centre study in Australia: time for some consistency.

Andrea Driscoll1, Judy Currey, Linda Worrall-Carter, Simon Stewart.   

Abstract

AIMS AND
OBJECTIVES: To examine the impact and obstacles that individual Institutional Research Ethics Committee (IRECs) had on a large-scale national multi-centre clinical audit called the National Benchmarks and Evidence-based National Clinical guidelines for Heart failure management programmes Study.
BACKGROUND: Multi-centre research is commonplace in the health care system. However, IRECs continue to fail to differentiate between research and quality audit projects.
METHODS: The National Benchmarks and Evidence-based National Clinical guidelines for Heart failure management programmes study used an investigator-developed questionnaire concerning a clinical audit for heart failure programmes throughout Australia. Ethical guidelines developed by the National governing body of health and medical research in Australia classified the National Benchmarks and Evidence-based National Clinical guidelines for Heart failure management programmes Study as a low risk clinical audit not requiring ethical approval by IREC.
RESULTS: Fifteen of 27 IRECs stipulated that the research proposal undergo full ethical review. None of the IRECs acknowledged: national quality assurance guidelines and recommendations nor ethics approval from other IRECs. Twelve of the 15 IRECs used different ethics application forms. Variability in the type of amendments was prolific. Lack of uniformity in ethical review processes resulted in a six- to eight-month delay in commencing the national study.
CONCLUSIONS: Development of a national ethics application form with full ethical review by the first IREC and compulsory expedited review by subsequent IRECs would resolve issues raised in this paper. IRECs must change their ethics approval processes to one that enhances facilitation of multi-centre research which is now normative process for health services. RELEVANCE TO CLINICAL PRACTICE: The findings of this study highlight inconsistent ethical requirements between different IRECs. Also highlighted are the obstacles and delays that IRECs create when undertaking multi-centre clinical audits. However, in our clinical practice it is vital that clinical audits are undertaken for evaluation purposes. The findings of this study raise awareness of inconsistent ethical processes and highlight the need for expedient ethical review for clinical audits.

Entities:  

Mesh:

Year:  2008        PMID: 18705740     DOI: 10.1111/j.1365-2702.2007.02219.x

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  9 in total

1.  Ethics and privacy issues of a practice-based surveillance system: need for a national-level institutional research ethics board and consent standards.

Authors:  Jyoti A Kotecha; Donna Manca; Anita Lambert-Lanning; Karim Keshavjee; Neil Drummond; Marshall Godwin; Michelle Greiver; Wayne Putnam; Marie-Thérèse Lussier; Richard Birtwhistle
Journal:  Can Fam Physician       Date:  2011-10       Impact factor: 3.275

2.  Assessing the Quality and Performance of Institutional Review Boards: Levels of Initial Reviews.

Authors:  Min-Fu Tsan; Bruce Ling; Ulrike Feske; Susan Zickmund; Roslyn Stone; Ali Sonel; Robert M Arnold; Michael Fine; Daniel E Hall
Journal:  J Empir Res Hum Res Ethics       Date:  2020-09-11       Impact factor: 1.742

3.  Time required for institutional review board review at one Veterans Affairs medical center.

Authors:  Daniel E Hall; Barbara H Hanusa; Roslyn A Stone; Bruce S Ling; Robert M Arnold
Journal:  JAMA Surg       Date:  2015-02       Impact factor: 14.766

4.  Time required to review research protocols at 10 Veterans Affairs Institutional Review Boards.

Authors:  Patrick R Varley; Ulrike Feske; Shasha Gao; Roslyn A Stone; Sijian Zhang; Robert Monte; Robert M Arnold; Daniel E Hall
Journal:  J Surg Res       Date:  2016-06-08       Impact factor: 2.192

5.  Ethical aspects in tissue research: thematic analysis of ethical statements to the research ethics committee.

Authors:  Arja Halkoaho; Anna-Maija Pietilä; Mari Vesalainen; Kirsi Vähäkangas
Journal:  BMC Med Ethics       Date:  2012-08-08       Impact factor: 2.652

6.  Informed consent for MRI and fMRI research: analysis of a sample of Canadian consent documents.

Authors:  Nicole Palmour; William Affleck; Emily Bell; Constance Deslauriers; Bruce Pike; Julien Doyon; Eric Racine
Journal:  BMC Med Ethics       Date:  2011-01-14       Impact factor: 2.652

7.  Prioritizing Initiatives for Institutional Review Board (IRB) Quality Improvement.

Authors:  Daniel E Hall; Ulrike Feske; Barbara H Hanusa; Bruce S Ling; Roslyn A Stone; Shasha Gao; Galen E Switzer; Aram Dobalian; Michael J Fine; Robert M Arnold
Journal:  AJOB Empir Bioeth       Date:  2016-06-23

8.  A Scoping Review of Empirical Research Relating to Quality and Effectiveness of Research Ethics Review.

Authors:  Stuart G Nicholls; Tavis P Hayes; Jamie C Brehaut; Michael McDonald; Charles Weijer; Raphael Saginur; Dean Fergusson
Journal:  PLoS One       Date:  2015-07-30       Impact factor: 3.240

9.  The high costs of getting ethical and site-specific approvals for multi-centre research.

Authors:  Adrian G Barnett; Megan J Campbell; Carla Shield; Alison Farrington; Lisa Hall; Katie Page; Anne Gardner; Brett G Mitchell; Nicholas Graves
Journal:  Res Integr Peer Rev       Date:  2016-12-07
  9 in total

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