Literature DB >> 18696319

Making sense of caregiving for persons with multiple sclerosis (MS): the dimensional structure of sense making and relations with positive and negative adjustment.

Kenneth I Pakenham1.   

Abstract

BACKGROUND: Sense making is a meaning-making process that refers to the development of explanations for adversity. Despite a growing interest in this construct within the chronic illness literature, it has been neglected in research on carers.
PURPOSE: This study examines the dimensional structure of a multi-item measure of sense making in carers of people with multiple sclerosis (MS) and investigates relations between sense making and both positive and negative adjustment outcomes.
METHOD: Participants were 232 carers and their care recipients. Questionnaires were completed at first assessment (time 1) and 12 months later (time 2).
RESULTS: Factor analysis of the Carer Sense Making Scale (CSMS) revealed six psychometrically sound factors: catalyst for change, acceptance, spiritual perspective, incomprehensible, relationship ties, and causal attribution. Results of regression analyses indicated that the time 2 CSMS factors accounted for significant amounts of variance in each of the time 2 adjustment outcomes (life satisfaction, positive affect, anxiety, depression, care recipient adjustment ratings of carer) after controlling for time 1 adjustment and relevant demographic and illness variables.
CONCLUSION: Findings delineate the dimensional structure of sense making in caregiving and the differential links between sense-making dimensions and adjustment, and have implications for the measurement of sense making.

Entities:  

Mesh:

Year:  2008        PMID: 18696319     DOI: 10.1080/10705500802222345

Source DB:  PubMed          Journal:  Int J Behav Med        ISSN: 1070-5503


  22 in total

1.  On the relation between meaning in life and psychological well-being.

Authors:  S Zika; K Chamberlain
Journal:  Br J Psychol       Date:  1992-02

2.  Getting unstuck: the roles of hope, finding meaning, and rumination in the adjustment to bereavement among college students.

Authors:  Scott T Michael; C R Snyder
Journal:  Death Stud       Date:  2005-06

3.  The nature of sense making in caregiving for persons with multiple sclerosis.

Authors:  Kenneth I Pakenham
Journal:  Disabil Rehabil       Date:  2008       Impact factor: 3.033

4.  Finding meaning: an alternative paradigm for Alzheimer's disease family caregivers.

Authors:  C J Farran; E Keane-Hagerty; S Salloway; S Kupferer; C S Wilken
Journal:  Gerontologist       Date:  1991-08

5.  Making sense of dementia and adjusting to loss: psychological reactions to a diagnosis of dementia in couples.

Authors:  L Robinson; L Clare; K Evans
Journal:  Aging Ment Health       Date:  2005-07       Impact factor: 3.658

6.  Causal attribution, perceived benefits, and morbidity after a heart attack: an 8-year study.

Authors:  G Affleck; H Tennen; S Croog; S Levine
Journal:  J Consult Clin Psychol       Date:  1987-02

7.  The conceptualization of meaning in illness.

Authors:  B L Fife
Journal:  Soc Sci Med       Date:  1994-01       Impact factor: 4.634

8.  Quality of life among persons with multiple sclerosis and their caregivers.

Authors:  K J Aronson
Journal:  Neurology       Date:  1997-01       Impact factor: 9.910

9.  Making sense of illness or disability: the nature of sense making in multiple sclerosis (MS).

Authors:  Kenneth I Pakenham
Journal:  J Health Psychol       Date:  2008-01

Review 10.  The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review.

Authors:  L P McKeown; A P Porter-Armstrong; G D Baxter
Journal:  Clin Rehabil       Date:  2003-05       Impact factor: 3.477

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  6 in total

1.  Couples coping with multiple sclerosis: a dyadic perspective on the roles of mindfulness and acceptance.

Authors:  Kenneth I Pakenham; Christina Samios
Journal:  J Behav Med       Date:  2012-06-12

2.  Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study.

Authors:  Elodie J O'Connor; Marita P McCabe
Journal:  Qual Life Res       Date:  2010-12-02       Impact factor: 4.147

3.  Informal caregivers assisting people with multiple sclerosis: factors associated with the strength of the caregiver/care recipient relationship.

Authors:  Robert J Buchanan; Chunfeng Huang
Journal:  Int J MS Care       Date:  2011

4.  Do Flexible Goal Adjustment and Acceptance Help Preserve Quality of Life in Patients with Multiple Sclerosis?

Authors:  Stefaan Van Damme; Annelies De Waegeneer; Jan Debruyne
Journal:  Int J Behav Med       Date:  2016-06

5.  Beyond Disease: Happiness, Goals, and Meanings among Persons with Multiple Sclerosis and Their Caregivers.

Authors:  Antonella Delle Fave; Marta Bassi; Beatrice Allegri; Sabina Cilia; Monica Falautano; Benedetta Goretti; Monica Grobberio; Eleonora Minacapelli; Marianna Pattini; Erika Pietrolongo; Manuela Valsecchi; Maria Pia Amato; Alessandra Lugaresi; Francesco Patti
Journal:  Front Psychol       Date:  2017-12-20

Review 6.  Dimethyl Fumarate in the Treatment of Relapsing-Remitting Multiple Sclerosis: Patient Reported Outcomes and Perspectives.

Authors:  Osman Ozel; Caila B Vaughn; Svetlana P Eckert; Dejan Jakimovski; Alexis A Lizarraga; Bianca Weinstock-Guttman
Journal:  Patient Relat Outcome Meas       Date:  2019-12-11
  6 in total

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