Literature DB >> 18662420

Caregivers' differing needs across key experiences of the advanced cancer disease trajectory.

Lori L DuBenske1, Kuang-Yi Wen, David H Gustafson, Charles A Guarnaccia, James F Cleary, Susan K Dinauer, Fiona M McTavish.   

Abstract

OBJECTIVES: Familial caregivers are providing increasing amounts of care to advanced cancer patients. Increased understanding of caregivers' needs is vital in providing necessary support to lessen caregiver burden and morbidity. Current literature has identified caregiver and patient needs at broad stages of the cancer trajectory; however, such broad stages may be too general to inform a practice of targeting specific interventions when they have the greatest utility. This study examines a variety of particular needs across a number of more discrete illness-related transition experiences specifically in the advanced cancer disease trajectory.
METHODS: One hundred fifty-nine female informal caregivers of people with advanced cancer completed a needs assessment survey.
RESULTS: Analyses of these cross-sectional retrospective-report data reveal that cancer caregiver needs vary across specific key experiences occurring within the broader stages of illness identified by current literature. Furthermore, caregivers have unique needs during bereavement. SIGNIFICANCE OF
RESULTS: Although the sample characteristics are demographically limited, this study provides preliminary evidence that the broad stages are not specific enough increments for effectively examining caregiver needs and supports the need for more precise distribution of cancer-related information at more discrete times in the illness course.

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Mesh:

Year:  2008        PMID: 18662420      PMCID: PMC3590014          DOI: 10.1017/S1478951508000400

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  18 in total

1.  The economic value of informal caregiving.

Authors:  P S Arno; C Levine; M M Memmott
Journal:  Health Aff (Millwood)       Date:  1999 Mar-Apr       Impact factor: 6.301

2.  The transition from caregiving to bereavement: the relationship of care-related strain and adjustment to death.

Authors:  D M Bass; K Bowman
Journal:  Gerontologist       Date:  1990-02

Review 3.  Educational needs of home caregivers of terminally ill patients: literature review.

Authors:  P Thielemann
Journal:  Am J Hosp Palliat Care       Date:  2000 Jul-Aug       Impact factor: 2.500

4.  Increasing understanding of patient needs during and after hospitalization.

Authors:  D H Gustafson; N K Arora; E C Nelson; E W Boberg
Journal:  Jt Comm J Qual Improv       Date:  2001-02

5.  Involving family members in cancer care: focus group considerations of patients and oncological providers.

Authors:  J Speice; J Harkness; H Laneri; R Frankel; D Roter; A B Kornblith; T Ahles; E Winer; S Fleishman; P Luber; M Zevon; R McQuellon; P Trief; J Finkel; J Spira; D Greenberg; J Rowland; J C Holland
Journal:  Psychooncology       Date:  2000 Mar-Apr       Impact factor: 3.894

6.  Cancer patients' sources of information: use and quality issues.

Authors:  Moyra E Mills; Robin Davidson
Journal:  Psychooncology       Date:  2002 Sep-Oct       Impact factor: 3.894

Review 7.  Family caregivers of elderly patients with cancer: understanding and minimizing the burden of care.

Authors:  William E Haley
Journal:  J Support Oncol       Date:  2003 Nov-Dec

8.  Daily geographies of caregivers: mobility, routine, scale.

Authors:  Janine Wiles
Journal:  Soc Sci Med       Date:  2003-10       Impact factor: 4.634

9.  A description of the needs of noninstitutionalized cancer patients and their primary care givers.

Authors:  A L Wingate; N R Lackey
Journal:  Cancer Nurs       Date:  1989-08       Impact factor: 2.592

10.  Two models of caregiver strain and bereavement adjustment: a comparison of husband and daughter caregivers of breast cancer hospice patients.

Authors:  Lori L Bernard; Charles A Guarnaccia
Journal:  Gerontologist       Date:  2003-12
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  26 in total

1.  Creating a bond between caregivers online: effect on caregivers' coping strategies.

Authors:  Kang Namkoong; Lori L DuBenske; Bret R Shaw; David H Gustafson; Robert P Hawkins; Dhavan V Shah; Fiona M McTavish; James F Cleary
Journal:  J Health Commun       Date:  2011-10-17

2.  Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes.

Authors:  Lori L DuBenske; David H Gustafson; Bret R Shaw; James F Cleary
Journal:  Med Decis Making       Date:  2010-11-01       Impact factor: 2.583

Review 3.  Development of cancer needs questionnaire for parents and carers of adolescents and young adults with cancer.

Authors:  Mariko L Carey; Tara Clinton-McHarg; Robert William Sanson-Fisher; Anthony Shakeshaft
Journal:  Support Care Cancer       Date:  2011-05-01       Impact factor: 3.603

4.  Potential roles for new communication technologies in treatment of addiction.

Authors:  Kimberly Johnson; Andrew Isham; Dhavan V Shah; David H Gustafson
Journal:  Curr Psychiatry Rep       Date:  2011-10       Impact factor: 5.285

5.  Factors associated with depressive symptoms in cancer family caregivers of patients receiving chemotherapy.

Authors:  Anna-Leila Williams; Alison J Holmes Tisch; Jane Dixon; Ruth McCorkle
Journal:  Support Care Cancer       Date:  2013-04-07       Impact factor: 3.603

6.  Thinking Forward: Future-oriented Thinking among Patients with Tobacco-associated Thoracic Diseases and Their Surrogates.

Authors:  Joanna L Hart; Emily Pflug; Vanessa Madden; Scott D Halpern
Journal:  Am J Respir Crit Care Med       Date:  2016-02-01       Impact factor: 21.405

7.  Medical Communication-related Informational Need and Resource Preferences Among Family Caregivers for Head and Neck Cancer Patients.

Authors:  Margaret L Longacre; Thomas J Galloway; Claudia F Parvanta; Carolyn Y Fang
Journal:  J Cancer Educ       Date:  2015-12       Impact factor: 2.037

8.  Bereaved Family Cancer Caregivers' Unmet Needs: Measure Development and Validation.

Authors:  Youngmee Kim; Charles S Carver; Rachel S Cannady
Journal:  Ann Behav Med       Date:  2020-02-21

9.  Social support needs: discordance between home hospice nurses and former family caregivers.

Authors:  Maija Reblin; Kristin G Cloyes; Joan Carpenter; Patricia H Berry; Margaret F Clayton; Lee Ellington
Journal:  Palliat Support Care       Date:  2014-02-17

10.  An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers.

Authors:  Betty Ferrell; Jo Hanson; Marcia Grant
Journal:  Psychooncology       Date:  2012-10-14       Impact factor: 3.894

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